Gosh, I know what you are talking about
I had a Rt. temporal lobe labectomy in 1998
and and since then two other surgeries.
In 98 I was having about
50 plus seizures
a day. I went two years without a seizure.
Once they returned I had the implant
called the Vagus Nerve Stimulator
implanted. That helped for two years,
and then stopped and I had two more
brain surgeries in 2002. I went almost
four years without a seizure.
Now I am going into the hospital in two
week for video EEG monitoring to find
out what is happening. I have been
through Hell and back you could say.
I have been on every medication
available and have tried everything.
When I went to my neuro. at the
begining of the month she said because
of my brain surgeries we have to start
from scratch as if I were just diagnosed
with epilepsy. I have had epilepsy for
15 years now. And I am only 28.
It is so hard I know. And at this point
I am not sure what I am going to do.
I will not allow anymore brain surgery
because I only have the left side of my
brain left now and there is Epilepsy
activity on the left side however if they
remove that I will never walk again.
I can't allow that. I am sorry to have
to cut this short but I have a meeting at
church in a few. If you would like to talk
back and forth I will give you my church
e-mail address. It is firstname.lastname@example.org
Please feel free to e-mail me. Been
there done that so to speak. Good luck
and I wish you all the best with this.
Blessings to you,