epileptologists

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Uhura
Regular Member


Date Joined Nov 2005
Total Posts : 166
   Posted 3/20/2006 8:47 PM (GMT -7)   
What's the best way to find an epileptologist in your state (Utah in my case)?
 
Uhura

Uhura
Regular Member


Date Joined Nov 2005
Total Posts : 166
   Posted 3/21/2006 8:07 AM (GMT -7)   
Why does it say 'last comment Jennifer' but there is nothing?

Uhura

baci
New Member


Date Joined Dec 2007
Total Posts : 19
   Posted 12/29/2007 5:24 AM (GMT -7)   
Hi Uhura-do you have a neurologist? The first time I went to see my neuro he immediately referred me to my eptileptologist(sp?) Maybe you should ask your neurologist to refer you to one Hope this helps

djdaz_1985
Veteran Member


Date Joined Jan 2006
Total Posts : 2408
   Posted 12/29/2007 5:35 AM (GMT -7)   
You may be able to google to find a list of epileptologists in Utah, but the best way to get a good one is to go through a neuro as they will know the best ones

Everyone has a guardian angel. They help pick you up when you fall, comfort you through your times of need and help you appreciate the times when things are going well.
 
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Another Day
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Date Joined Mar 2007
Total Posts : 1055
   Posted 12/29/2007 4:04 PM (GMT -7)   
The way I found mine was through a neurologist in my home town.  He sent me to the neurologist, at Vanderbilt University Hospital, a teaching university, who specializes in epilepsy.  I hope this is helpful.
 
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Spaz Ellie
Regular Member


Date Joined Aug 2006
Total Posts : 166
   Posted 1/9/2008 2:08 PM (GMT -7)   
I had used Google to find mine. Since at the time I had an (open access) PPO, I didn't need a referral so I just called and made an appointment. Mine was very strict, however, and wouldn't see me until she had all of my medical records. I'm not sure if it varies by state, but my epileptologist will not treat me for any other neuro-related conditions EXCEPT seizures. So I had to have both a Epileptologist AND a Neurologist.

Mine was very set on finding the root of the problem, but after she ran every test under the sun along with cardio-related tests she kind of dropped me like a bag of poo and told me to keep taking my medicine (which never seemed to stop increasing). I also have Lyme Disease (amongst about 10 other diagnoses) which she refuses to acknowledge has any impact on neurological functioning (or lack thereof).

I will say they seem to be a lot more knowledgeable about everything inside and outside of the box. During a VEEG she was able to notice some heart issues I was having and promptly have me referred elsewhere. However, when it came to infectious disease she's very stand-off-ish.

If you don't have luck finding one, try to call your local medical learning facility. I'd guess it would be University of Utah and ask them. Most UNI's are actually helpful in finding care and some even offer it!
It's not hard to fall, when you float like a cannonball

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