Hi everyone, just popping back to let you lovely people on here know what is happening with my niece. She has had an MRI scan on her spine to make sure that is ok because Arnold Chiari Malformation is linked to spina bifida. Fortunately that scan is normal. The consultant wrote to her school saying that she is well enough to attend but is not allowed to do games and must be escorted when going up and down the stairs.
Well up until now the school have been great but they are now starting to get rather concerned at the disruption the fainting fits are causing. My niece goes to an all female school and is still fainting three to four times a day. She also has a constant headache at the back of her head where the brain is "peeping through". Even with prescription painkillers (diplofenac?), the pain is always there.
So.... next Tuesday my sister is taking my niece up to Great Ormond Street Hospital. They are the specialists and I am hoping they will be able to give us more information and help my niece cope with everyday life more. The consultant here seems to think she will grow out of this, but nothing is definite. The only "cure" is surgery but this is not always successful and, because it is brain surgery, is obviously never entered into lightly.
I'll keep you posted. Thanks. x