Hi there Dinger 57,
I am from Australia, and had the surgery done only 6 weeks ago. Yes it is extremely daunting and a frightening prospect to face, but, as my neurosurgeon told me ,it is less painful than having your appendix taken out. I had 5 centimetres of my left temporal lobe removed and the hippocampus behind that. I was concerned about loss of memory and other functions before the operation and was keen to have a wada test done for conclusive proof of what may be lost when the tempoaral lobe was removed, my nuerologist had me take a relative new test which is claimed ,( and proved for me), to be far more conclusive and less invasive than the wada test- this new test is called an fMRI standing for functional mri scan, it is very similar to a usual mri only you are required to think of nouns to the verbs they show on a screen in front of you whilst the scan is in progress, from this thwy can tell which side of your brain is active and would very likely have these functions .
For me this test proved that all these functions crossed from the left side of my brain to the right when I was a child , which meant the operation had little risk of loss of memory etc.
As far as the surgery itself is concerned , I woke up from surgery with no pain , I was given morphine during surgery and this didnt wear off until the following night ,yes I did get headaches but not violent ones like you may expect. The brain you see has no feelings which helps to minimize pain. I did not get a really severe headache until the night I came home from hospital 7 days later.
Please contact me if you would like more information,but I can assure you it is definitle worthwile, have you seen a nurosurgeon yet? has he given you an idea of what percentage of success would be in your case? In my case it was 70$ chance of cure 20$ chance of improvement and 10$ chance of no change.
One thing to remember ,every case is different and every one will be affected differently.
I return to work in 5 days time,I still have a little trouble focusing on close things but this is to be expected.
Hi Dinger57. I know this sounds easy for me to say, but there is no need to scared(although I must admit I was nervous also before my op), I assume you have been through all the various tests to see if you are a suitable candidate for surgery, telemetry EEG, spect scans , Physcologists to test your current capabilities and other specialists to see if your body is mentally capable of handling the op,just to name a few. If your surgeon believes you are a suitable candidate and he has given you a good percentage rate of success, I would doubt you will come out of the op with any scary damage to you.( my surgeon told me my rate of sucess was 70% chance of CURE,which astounded me as no one has ever said they could cure me). I am now approaching 12 weeks since my operation and have not had any turns.
I have experienced some problems regaining normal eyesight,by normal I mean the same as I had before the operation. I saw my surgeon last week and he believes my eyes will be normal within 6 months.When I was in hospital I was given steriods for my entire stay, twice a day, this is to help reduce the swelling around the eyes that occurs as a result of surgery,the swelling normally appears about 2 days after the op ,and the area around your eyes will go black-dont worry, if you are given steriods like I was it should disappear within 3-4 days.
The only other evidence of my operation is some very slight swelling around the face near my left ear and of course the scar on my head from the cut ,which now you would not know was there as my hair has covered it completly and there is no pain from scar at all,I do have a slight numbness on my left side of head which I am only aware of when I brush my hair,the surgeon said the nerves there will take about another 9 months to reconnect ,so even the numbness will go away eventually.
One thing I did do before I went to hospital , because I wanted re assurance incase anything did go wrong,just like you are worrying now. I got an enduring power of attorney,for one of my parents to take control of all my financial affairs and to have the legal right to be able to do things on my behalf. I dont know what the laws are where you live but it must be an enduring power of attorney here. Doing this helped give me peace of mind.
I had no memory loss but that coulld be due to the fact that all the functions normally performed in the left temporal lobe,including memory, had switched to my right temporal lobe as a child. This was only discovered when I had the fMRI scan done.
I hope you have been able to get into a private hospital or at the very least single room accomadation in the hospital. I was fortunate and had both .
I wont go on with more at the momement I dont want you to worry un necessarily,take care ,and I hope that all goes really well for you. Keep in touch.
Victoria is still having some vision lost on her left side, it comes and goes. Yesterday she had four episodes. Today she said nothing. Reducing the steroids alittle more and seeing the doctor tomorrow.
Keep you posted
Fran and Victoria
Before my daughter went for surgery we went to a healer. He told us that she took his energy very well and that the colors would go away,that never happened. What does the yantra do? Do you have to meditate with it like yoga ? We were at the doctor yesterday. Told us that the weakness and the hand tremors can be from the steroids and that her body went through alot having three surgeries in a weeks time and that the body needs time to heal, we will just watch and see. Patholgy report showed some aggressive cell growth and that it was still a JPA. The MRI that they took after surgery was clean they say,although cells could of been left behind since the tumor is begnin the cells could become dormint or just die off, we hope. We wil have another MRI late February or March. Hope all is well with you.