I am 44 years od and started having Grand Mall seizure when I was 8 due to enchepilites because of a mosqito bite. originally I was on phenobarbitol and dilantin 3x daily and I would have a sezure on or about every 9 weeks. since I founfd meberal, a refinement of phenobarbitol and got my doctor to put me on it I have not had a Grand Mal seizure since 1984, but STRESS, CAFFINE, and LACK OF SLEEP definately increase your possibility to have a seizure. I also found out went your body has adjusted to the Meds and the time windows and dosages you are taking them if you alter them can cause a seizure also. Maby not a Major seizure but a simple seizure
I have found a new doctor and now he wants to try to take me off the meberal and replace it with depekote. but as soon as we slowly dropped the dosage and and my meberal level fell below the level I needed to maintain a consistensy level within my system I got the begining part of the AURA like when I was going to have a grand Mal seizure. now my job in the office is stressfull and I believe it contributes majorly and when I was home I am OK . To Bad these work at home programs are all a scam. they would definately help everyone out with epilepsy. Hope this Helps out
Post Edited (AOKGUY) : 8/16/2007 1:04:21 PM (GMT-6)
Barbiturates such as Meberal and Nembutal, are used to treat anxiety, tension and sleep as well as seizure disorders. Meberal is Phenobarbital.
I had a seizure 39 years ago and was on Phenobarbital for a couple of years but have never had a seizure since.
Looks like you got a great post right ahead of mine. Take care and keep posting.
Post Edited (AOKGUY) : 8/18/2007 10:45:25 AM (GMT-6)
Hi, I'm 49 years old and I was a child epileptic. I had my first seizure when I was around 2. I had gran mal and petite mal and it was difficult to get under control. I was finally put on a combo of dexedrine and meberal and never had another seizure! My last seizure was in 1964 and I was taken off all medication when I was eleven in 1969. I honestly don't know if I had any side effects from the meberal or dexedrine.
Just thought I'd share. :)
I have been on Meberal since 1981. I had my first of 2 grand mal seizure in 1978 at age 26, and was started on Dilantin. In 1981, while pregnant, I had my second. I was started on Meberal, due to possible side effects to my unborn child. I have been seizure free since.
Before I had my first seizure, I was having hallucinations and de’javus (sp) for a few months. I was working hard, and had an erratic sleep patter (due to work) and under increased stress. I now only notice an occasional aura, so it I do, I slow down, and make sure to be rested, work on keeping my stress down and maybe take an extra ½-1 pill every third night for a week.
Mostly due to cost ($300+ vs $5) and that Meberal is difficult to find, I am now going off the Meberal (300 mgm at bedtime) and switching to Phenobarbital (100 mgm q hs). I’m a week into this switch and so far, so good other than headaches, fatigue….
I think Meberal is a good medication, and if it was cheaper, I would stay on it.