Glad to "see" you over here. Not quite as active as the lupus board, but you can get some good info here.
I started having what turned out to be partial complex seizures in 2003. I had no idea they were seizures at the time. I knew something was terribly wrong, but I was totally clueless that what I was experiencing was a type of seizure.
The third doctor I described them to (my current rheumie) is the one who told me I was describing a type of seizure and sent me to a neurologist. I was started on carbitrol first. That worked pretty good for me. However, after a few months my liver enzymes went high.
Next came keppra. I didn't have trouble tolerating it (it is metabolized thru the kidneys) but I wasn't having very good seizure control. Topomax was added and so far so good.
Like everyone has said, we are all different and what works for one might or might not work for another. But, in almost all cases, there is something or a combination of somethings that will work. Keep us posted.
SLE, limited scleroderma, Sjogrens, Hashimoto's Thyroiditis, seizure disorder, Raynauds, Autoimmune Enchephalopathy