Sometimes it takes a long time to find the right coctail of meds to control the seizures.
Twenty years though ~ that's pretty alarming - does your neurologist know what you're going through? Have you tried different neurologists for another opinion or a "Epileptologist"? (they specialize in seizure disorders ONLY whereas a Neurologist specializes in ALL neurological disorders). Don't quit the meds without contacting your Neurologist or PCP.
Diagnosed with epilepsy and ulcerative colitis in 1979,
Been on meds ever since.