new type of seizure.. strange

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kennyThe Yuppie
New Member


Date Joined May 2006
Total Posts : 15
   Posted 6/13/2006 10:27 AM (GMT -7)   
 i have a history of having complex partials, and grand mal seizures.. not ever really controlled by meds. recently i have moved back in with my parents because my seizures increased due to stress from living on my own. well, this past week while falling asleep i started having strange seizures.. ill be just about to fall asleep when the left side of my body starts to convulse like in in a grand mal.. but this is the strangest part. im still "awake" i can hear myself making grunting noises and i can see my body. i cant talk while in these, and my right side is basically paralyzed. i tried calling my neuro, but he never seems to be in. has anyone every seen or heard of these?

Tiffanie
New Member


Date Joined Jun 2006
Total Posts : 5
   Posted 6/13/2006 8:15 PM (GMT -7)   
                     Hey , i'm Tiffanie and i'm 15 years old , i have the same types of seizures
well the only one i have is Grand mal and Petit Mal , some times i even have Nocturnal ones too.So i know how hard it is , if you wanna talk feel free to
IM me / rock on loser xo or e-mail me kewlchick733@msn.com
 
                ~ Tiffanie

kennyThe Yuppie
New Member


Date Joined May 2006
Total Posts : 15
   Posted 6/13/2006 8:41 PM (GMT -7)   
Tiffanie said...
                     Hey , i'm Tiffanie and i'm 15 years old , i have the same types of seizures
well the only one i have is Grand mal and Petit Mal , some times i even have Nocturnal ones too.So i know how hard it is , if you wanna talk feel free to
IM me / rock on loser xo or e-mail me kewlchick733@msn.com
 
                ~ Tiffanie
thanks tiffanie. its been a hard road for me as well. ive only met one other person who has epilespy and she hasnt had a seizure since she was 4. i wasnt able to talk about it with anyone in fear that they might reject me as a friend in high school... the only people i could turn to was my family especially my younger sister liz. shes done so much research, and has more knowledge than anyone i have talked to which helps me a lot.
 
most of my seizures occure while im sleeping, or about to fall asleep. usually those are grand mal.. during the day though i have other types. ive learned to live with it though.. and im no longer afraid to tell people. people i tell usually dont understand but are cool with it.
 
i dont have an IM sreen name.. but i do have a myspace. :) hit me up and ill give you the address.
 
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