seizure activity has gone way up. Clobazam not working?

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Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 7/4/2006 5:11 PM (GMT -6)   
Hi everyone,
I'm a regular in the lupus forum, but I suffer from simple partials due to a stroke I had in 2004.  The Clobazam I have been taking since 2004 has worked great until now.  I'm all of a sudden having 4 or 5 seizures a day, even though I've increased my Clobazam to its maximum doseage (doctor advised).  Anyone else have trouble with their medications all of a sudden not working any more? 
Thanks for any input you might have!
ginny confused
"Thank you God for the storms that blow me right into your arms!"

Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(stroke),Sjogren's, Raynaud's, seizure disorder, libman sach's endocarditis, vasculitis, sacroiliitis, Neutropenia, thrombocytopenia, food allergies
Prednisone, Imuran, Coumidin, Clobazam, Amitriptyline, micronor, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Acidophilus

Veteran Member

Date Joined Dec 2004
Total Posts : 8198
   Posted 7/7/2006 10:30 PM (GMT -6)   

Hi Ginny,

   I just wanted you to know that I'm sorry you are having to go through this again. I hope your doctor gets this under control quickly and the seizure subside. Keep us updated and you are in my thoughts and prayers. Please, be very careful.


Diagnosis: Lupus and Restless leg syndrome 1990, RA, Asthma and  Fibro 1994, Sjogren's and Raynaud's 1995, Diverticulitis 1998, Minor stroke 2004, Atherosclerosis 2004, Seizures march 2005

JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.
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