allo! figured i'd introduce myself.
i'm 27, been having seizures for 12 or 13 years now. diagnosed with epilepsy about 8 years ago. currently not on any meds aside from the occasional ativan. i'm on the keto 'diet' experiment. just wondered if it'd work for someone my age. i'm the reason i'm not on meds. i have the scripts for em, i've just had it up to here with nothing working and dealing with side effects and non shalant neuros shrugging their shoulders and forever saying i don't know.
i suffer from simple/complex partial seizures daily and tonic clonic nocturnal *knocks wood* seizures. i had a spell of 3 years where they went random on me. most recently i had one....of course lol on my 27th birthday while camping. july 1st. i'm expecting more to come. been more than just agrivated and irritable lately- a sure sign, it's not over.
basically i was lucky. i only had 5 or 5 partials and one tonic that night. usually my tonics come in clusters of 2-3 and last from 4-7 min a peice. this last one was ...my husband guess' 2 minutes-ish.
i'm at my whits end looking for support or help or a new doctor that will do more than just push meds on me. they can't even agree it's epilepsy. it's just a convenient way of explaining what they can't. i'm sick of getting looks from doctors like what i'm experiencing isn't real or impossible, i'm sick of not getting any answers, i'm sick of not knowing when i'll be able to work or even leave the house alone. they don't know why i have it or what i have or how to treat it or change it or anything beyond drugs drugs drugs that i can't afford and don't want to take since it's all the same just higher and higher doses and different side effects i'd rather seize than have.
sorry i ranted there. well lol that's my intro.