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lovexhappens
New Member


Date Joined Jul 2006
Total Posts : 2
   Posted 7/11/2006 6:54 PM (GMT -7)   
Hello Everybody I'm 16 and they think I might be having petit mal seizures. I had a 20min eeg but It was normal. This coming Fri-Mon I will have a 72hr EEG to see if they find anything. I'm always tired 24/7 no matter if I get a good nights sleep. I have blank outs as my mom says which cause blank expressions and me to stare into space for a few seconds. After my lips chatter. This has been going on for awhile they didnt know what was going on. I recently got my permit and ive done these "blankouts" twice in one day behind the wheel causing me not to see whats going on- making my mom freak out. My mom isnt letting me drive anymore untill they figure out whats going on, and im kind of scared to drive after that anyway. I'm wondering if anyone else with epilepsy has these kind of seizures, and maybe this is whats going on with me? ... also if they had their eeg come back normal, but still ended up with epilepsy?? .. any info would be great!! thanks for the help

lovexhappens
New Member


Date Joined Jul 2006
Total Posts : 2
   Posted 7/11/2006 9:10 PM (GMT -7)   
For awhile now. Ive been always tired for a over a year now and they couldnt find out what was amatter. And then my mom started noticing the "blankouts" and stares. Ive had an MRI that showed spots but they said it could of been from migraines b'c then they might of thought i had MS. but now with the other symptoms going on as well those spots could possibly be from this instead i guess. Hopefully ill find some answers soon. Im tired of all the tests being normal, but deff. not feeling normal at all.
 

QueensMom
New Member


Date Joined Jul 2006
Total Posts : 2
   Posted 7/26/2006 11:29 AM (GMT -7)   
I just found out my 4 yr. old has petit mal.  He took an eeg and it came back abnormal.  I saw him have a seizure during the test.  I couldn't believe it when they first told me his black outs were seizures.  I did some research on the computer and what I read was exactly what he was doing.  My son was put on Depakene and is scheduled to take a MRI.  The medicine has slowed down the number of times he has these seizures throughout the day.  I never know when they're coming and neither does he.
 
Congrats on your permit!!! Your mom is just trying to keep you safe as well as others.  My son will walk out into the street sometimes during his seizures.  I'm afraid that something might happen to him when he's at camp or if for that one second when he lets go of my hand while were walking.  It's hard for parents to control their emotions too.  But we love our children and always want to keep you safe. 
 
Stay encouraged!!

sparkelz
Regular Member


Date Joined Nov 2005
Total Posts : 33
   Posted 7/26/2006 2:57 PM (GMT -7)   
i have moloclynal epilepsy or something ike that i 4got how to spell it. but i had the same thing in the beginning. my type of epilepsy doesnt start till u become a teenager... ( me and u! lol) so before my symptoms got worse i remember driving one day and all of the sudden i blanked out and ended up on the sidewalk! i kno exactly how u feel... it was just like a two second thing one minute im driving..next minute im on the sidewalk and then im confused and i realized wat just happened. then later on i didnt go to the doctor and i started having siezures so u should definitely check that out!!

Rogue
Regular Member


Date Joined Aug 2006
Total Posts : 65
   Posted 8/4/2006 2:11 PM (GMT -7)   
I've had the 'jumping the sidewalk' problem recently, too, but I'm 24, which is so incredibly embarrassing. ;)
When I first started 'feeling off', my biggest irritation was that I would be walking around town (didn't have money for a car then, vs. not being able to drive one now), and realize that I was several blocks past where I was supposed to be going, and I didn't even remember walking! All of my regular EEG's were normal, only the VEEG showed problems, so I'm glad you're getting that done. MRI with contrast helped too.
As for being scared about the driving; yeah, it's a good idea to hold off until you get cleared by the docs, but don't ever let fear keep you from doing anything. Before I started having Grand Mals, I would Mountain bike and rock climb as often as I could. Then all of a sudden no one even wanted me to climb a ladder by myself! For a few weeks I was incredibly apprehensive about everything, but then one of my friends, who knew about the seizures and how I felt, asked me to go climb with her.
I got out there, looked up at a 150 ft. climb, and told myself there was no way; I could already picture myself bashing against the rocks. But with my friends coaxing, I decided to go up (w/ a harness and helmet, mind you). The first time I didn't get very far at all when I started to panic, and had to be let down. But after a break, and a hike and conversation with my friend, I was determined to try it again. And you know what? I made it all the way to the top! My friend couldn't even do that, and she'd been climbing two years longer than me. (I'm not bragging - ok, yes I am). ;)
It's still frustrating when I get told I can't do something, like drive. But I know it's only temporary, and as soon as I am able, I'll be back out there with the best of them.
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