I won't let this go so easily. If things get alot worse I can be very demanding with doctors!! They work for us and they can be fired!! lol.
Tks for all your support. You have helped me alot and I do appreciate you very much. Take care and I will keep you updated on this. I hope you are having some better days. You are in my thoughts and prayers.
I posted a note about seeing my doc. I had made a list of all my symptoms since the last time I saw her. She sat there and read all the symptoms and said. these are not normal lupus symptoms and not anxiety/panic attacks. I told her I know...lol.....she said you have just described word by word the symptoms of "Dysautonomia". I had never heard of that before. It is when the autonomic nervous system malfunctions.
She is sending me to another neuro and a clinic that specialies in this disorder. The appts haven't been set up yet, but they are suppose to call me when they are.
So we will see if this is the cause of the problems I have been having or if I need further testing for other things.
Thank you so much for all your wonderful support and advice. I will keep you updated on this when I find out more. Take care and God bless you all!!
Thank you so much for all the info on this. I guess I missed somewhere in my research where this can cause seizures. I'm sure you read my signature with all my diseases and that alot of them relate to what you said. I was also dx'd with MVP many years ago as well. I forgot to put that in my list.
I'm sorry to hear that you have FD. I'm sure this is hard for you to cope with. I hope you have many, many years left and they are wrong about the lifespan of FD. You sound like you are a fighter. Just keep on fighting and hang in there!!
Thank you again for all your help. You will be in my thoughts and prayers. I will keep track of your health and I will let you know what I find out.
Take care, Babs