Hi, I'm new. I have questions

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Yung
New Member


Date Joined Aug 2005
Total Posts : 9
   Posted 8/3/2006 6:41 PM (GMT -7)   
Hi, I had my first siezure in late 2004, I was very confused to what has happened to me when I awoke. Tongue bites, vomiting, heavy legs, fatigue. It was scary as hell, my life flashed up. It felt like that was it, and i was done at the moment. After that...I noticed I've my brain has start little or partial seizures aka Auras? I did not know what was wrong with me. I know i should get this checked out, but the thing is i had no medicare or insurance so it was hard to find someone greatful enough to help me find out what my problem was. I had a total of 6 episodes and each time it make the next one worst. When i finally found help they put my through MRI and EGG and ct. All were normal. Doctors Then placed me on Dilantin 100mg three a day. well what i want to talk about is the auras or partial seizures. I've been getting into these almost everyday or other day. It's fear. Is there any way to shorten or prevent these aura's from ever occuring agian? Dilantin works, I dont have full siezures, seizure free for about 6 months =D . it just alot of partials seizures that scare me. Could they build up into a full siezure because each time I get through one of auras the next one feels worst and stronger then the last.

Yung
New Member


Date Joined Aug 2005
Total Posts : 9
   Posted 8/4/2006 2:57 PM (GMT -7)   
yeah I have had a MRI and EEG, They said there wasn't any abnormal activity. Shouldn't there be atleast something that would show up? I'm taking Dilantin daily but I still feel an occasion aura's running through.
 
What are the causes of seizure?
So far...I know that if your fatigue, you have a high risk of getting a seizure. Like empty stomche or tireness. Lack of sleep? Sometimes my heart beats abnormally when i feel. It's hard not playin the sports I love with this curse.
 
I am trying my best to learn as much as possibe and adapt to this new life. so if there's anything kind of imformation for anyone or everyone that would help me help others. lets us know.
 
I'm going go get check up and agian a nuero soon, blood check for dilantin level, and I have alot of questions I need to ask. Any suggestions? or comments would be great.
 
Oh, I'm from Georgia by the way.

Post Edited (Yung) : 8/5/2006 6:23:42 PM (GMT-6)


Yung
New Member


Date Joined Aug 2005
Total Posts : 9
   Posted 8/5/2006 5:22 PM (GMT -7)   
Hi jwj,
Ouch thats hurtful, I'm sorry to hear that. Not a single specialist could help you out? Man thats not right. I don't know what to tell you but you should keep searching, Don't give up. You have to come up with something.

Rogue
Regular Member


Date Joined Aug 2006
Total Posts : 65
   Posted 8/6/2006 10:00 PM (GMT -7)   

Yung,

I just moved from Georgia, and I know it was really hard for me to get any help while I lived there.  After a really bad night, followed by a few really bad days in the hospital, I ended up being sent to Emory hospital, up in Atlanta, for VEEG, and a better MRI.  All my previous tests had come back normal, and though I tried several medications, I couldn't find a combination that would get the seizures under control.  Well, the docs at Emory were finally able to catch something on the feed, and solve the mystery AND they ended up writing off the bill.  They have a lot of patients who come in w/o insurance, and they have a financial counselor meet with you while you're there, so it can be taken care of before you leave.  It might be a good subject to bring up with the neuro.

As for the fear of auras, I deal with that pretty much daily, too.  I always worry when I'm out in public, that the auras will become full seizures, and my heart starts racing just thinking about it.  When I have tonic-clonic seizures my heart rate will go up to 140 before I black out, so when my heart starts racing with an aura, it's easy to freak out.  One thing I've found that helps is to kind of talk myself through it.  I don't know if it will make any sense, but when I start to panic, I remind myself that I'm alright, that it's okay to have an aura.  I try picturing a really peaceful place, like mountains or a lake, and make myself focus on walking around, looking at the different views.  I guess it kind of takes my attention away from my heart racing, and once I'm through it, I know I'm okay for awhile.  I can't handle living in fear, so I have to learn to work through it, and pay really close attention, so I can tell if a full seizure is coming on and be able to get somewhere safe.

I don't know if this will help much, but it's just an idea to try.  Good luck with the neuro.  :-)


~Heidi Hope~
 
 
"For I know the plans I have for you", says the Lord.  "Plans to prosper you and not to harm you.  Plans to give you Hope & a Future."
Jeremiah 29:11


kman78
Regular Member


Date Joined Jul 2006
Total Posts : 74
   Posted 8/9/2006 7:28 PM (GMT -7)   

 

Hi yung, I too have a sensation of fear as my aura.  However, I typically will just have partial complex seizures rather than tonic clonic ones. In regards to your ?, any aura can theoretically spread to involve the whole brain and result in a genralized seizure(convulsions).  Also the more seizures you have in a time period does decrease your seizure threshold and make another seizure more likely.  It can also make generalization more likely as well.  since you are having all these auras it is probably a good idea for the doctor to either increase the dilantin or add a second anticonvulsant.

 

Hope this helps, kurt 


Yung
New Member


Date Joined Aug 2005
Total Posts : 9
   Posted 8/15/2006 3:01 PM (GMT -7)   
Thanks rogue, it sure does help out alot. When I feel, or happen to have an aura ON I freak out and my heart would be running crazy. Knowing that there's others out there who goes through the similar things feel more...at ease. I'm going to use what you do and picture all the great things in life that calms me if i go through another aura. Thanks Rogue! -Yung

Yung
New Member


Date Joined Aug 2005
Total Posts : 9
   Posted 8/15/2006 3:11 PM (GMT -7)   
Hi kurt,
what do you mean "the more seizures you have in a time period does (decrease your seizure threshold)[?] and make another seizure more likely. It can also make generalization more likely as well." the more seizures you have, more seizures will occur? like if you go through it, it'll train the brain to find another way to have another seizure more easily? I'll check with the docs soon about dilantin increase. Oh by the way, They say dilantin is old and has quite alot of side effects. IS there any other than dilantin?

Rogue
Regular Member


Date Joined Aug 2006
Total Posts : 65
   Posted 8/20/2006 5:13 PM (GMT -7)   
Yung,
I'm glad it helped. Knowing you're not the only one who deals with something a certain way always helps. I know that's why I like coming to this forum.
~Heidi Hope~
 
 
"For I know the plans I have for you", says the Lord.  "Plans to prosper you and not to harm you.  Plans to give you Hope & a Future."
Jeremiah 29:11

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