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parks
New Member


Date Joined Aug 2006
Total Posts : 4
   Posted 8/18/2006 7:47 AM (GMT -7)   
I am 58 years old and have suffered from epilepsy from the age of 10, having Grand and Petit mal siezures. I was initally given Phenobarbitone which was supplemented with Epanutin. This seemed to do the trick.

However within the last few years I have been suffering from what the specialist call 'Episodes', where I seem to be on 'autopilot' and cannot communicate properly. These episodes have gradually increased to a weekly basis, where I do not respond to questions or requests but stare blankly.

I can perform routine jobs but they take longer and are often repeated.
I sit with my eyes shut or stare and make no conversation but am aware of what is going on around me.

I have been to the hospital and had all the usual tests. My medication has been changed but to no avail.

At present I am taking Epanutin 400mg, Tegeratol Retard 1200mg and within the last week Lamotrigine 50mg to which will be increased gradually by my GP.

Has anybody experienced similar symptoms, if so please get in touch

RanMan
Veteran Member


Date Joined Feb 2003
Total Posts : 665
   Posted 8/18/2006 12:50 PM (GMT -7)   

Parks, mad mad

I can relate. I get the same thing, my neurologist calls it a "speech arrest".

I am 50 yrs old and was dx'd with EP when I was 21, had a grand mal seizure only the one time (until 2002 which resulted in me losing my drivers licence) and 2004 while raking leaves on my front lawn.

My neurologist thinks that the meds are causing my "speech arrests" or "auras".

"However within the last few years I have been suffering from what the specialist call 'Episodes', where I seem to be on 'autopilot' and cannot communicate properly. These episodes have gradually increased to a weekly basis, where I do not respond to questions or requests but stare blankly. "
 
"I can perform routine jobs but they take longer and are often repeated.
I sit with my eyes shut or stare and make no conversation but am aware of what is going on around me."

Since this has slowed me down, it severely effected my work so my employer sent me to a neuro/psyc Doctor to document what I can/can't do (so he knows I'm not faking it to get out of doing certain things) and also stated the fact that I could not learn new skills (so they couldn't put me in a new position and also considering my age) ~ similar to your situation. My employer of 30 yrs. then recommended that I go on Disability, I was 47 at the time. Now I'm on "medical retirement" due to my condition (caused from the meds).

But then if I don't/didn't take the meds, I could have a full blown gran mal seizure.

Randy

BTW I'm on dilantin and pheonobarb.

 



 

Diagnosed with epilepsy and ulcerative colitis in 1979,
Been on meds ever since.
 
275mg-dilantin/day
120mg-pheonobarb/day
3,000mg-Mesasol/day
20mg-Celexa/day


parks
New Member


Date Joined Aug 2006
Total Posts : 4
   Posted 8/19/2006 9:41 AM (GMT -7)   
Ranman,
 
Thanks, I shall Investigate the "speech arrest" avenue.
 
 
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