I am in the process of being tested for TLE. My sleep deprived EEG came back with abnormal results which were, as neuro put it, "non-specific." She has now ordered an ambulatory 72 hour EEG which I will have done in October. My symptoms are quite varied. I am hoping to hear from someone who already carries this firm Dx and if so, what was it like to be you before meds? do meds help? do you have any memory loss? do any of my symptoms sound similar?
Psychic-As an adult, the bulk of my "spells", for lack of better word, will just feel like I have entered some kind of mystical state. I don't lose my sense of who I am etc... but it feels like as if I having some kind of re-connection to and strange familiar past time/space. Like I am re-experiencing an old familiar memory of some kind; and yet this kind of spell can occur in a place I have never been before. This feels different from classic deja-vu. It is actually a pleasant experience because when it happens I want to just stay in that moment forever. Although I have episodes of classaic déjà vu (where everything I say or do seems like I have said it exactly the same way before) but this feels very different. It feels like I am seeing the universe much more clearly for the first time, as if I am approaching some kind of enlightened state where I will soon "know" everything, figure everything out; figure out the mystery of life itself, It feels like a powerfully joyful feeling, like I don’t want it to ever end. There is a time/space quality as if I am experiencing the world and somehow gone back in time to a period "before time" as in a priori, primordial, or primeval state. It has a very spiritual feeling, like I am connecting with something much bigger than myself. It feels like I’ve reached such a spiritual epiphany. The sensation is a pleasant one that lasts between 1 and 4 minutes or so in length.
Olefactory- sometimes I will smell something that no one else around me does. Usually it has been an ammonia-type smell, chlorine bleach, gasoline, dead mouse, and dirty smelly feet. It only lasts under a minute and then it is gone.
Auditory-Although I have never processed any unusual sounds or noises, my hearing has always been super-sensitive. Loud noises or high-pitched noises actually hurt my ears. I have tinitis (ringing in the ears) pretty frequently.
there is no specific taste that comes over me, it just appears as a yucky, foul/bad taste in my mouth, even though I have already brushed my teeth for the day etc.. it happens as briefly as the smells I listed above, and doesn’t coincide with ingesting/eating anything. Sometimes foods will not taste right to me, they will taste off. I put the food aside and when I later return to it, it will taste perfectly fine.
I sometimes I feel as if I am standing from the vantage point of being twelve feel tall, almost as if my body has elongated somehow, it lasts under a minute just as the above symptoms do. Much less frequently I have felt when looking at my hands or feet; parts of my body that may be in my view, appear smaller. Again it is very short in duration like the other symptoms, a few seconds or so. I have had a lot of both flashes and floaters since young adulthood. Sometimes I see things just as I am waking up but when I am fully awake they are gone. I also have vivid and detailed dreams and nightmares which I can always recall after I wake up.
in localized portion of my skin like my thigh, sometimes my skin feels like there are crawly type feelings under it, almost as if something is moving underneath. At other times a localized part of my skin (like a part of my arm or leg) feels hyper sensitive, even a soft sheet can feel scratchy in that one area of my skin. Touch in general is hypersensitive, if I don’t know someone is about
to touch me, say they come from behind me, I get pretty startled..
GI-I have had periods of rapid onset of nausea throughout my day for many years, that has nothing to do with eating. I have not vomited just felt very nauseated. This lasts a few minutes and then goes away. I used to think that maybe my blood sugar was low, and that eating a snack would make it disappear, but eating something has never alleviated the nausea; it just goes away on it’s own. I also get this funny feeling in my stomach that feels like yeast bubbling.
(Alteration of Time)
this is a weird feeling and hard to describe but it feels as if someone has just hit the fast forward button or pause button on time. Time, as its unfolding feels either like it’s going slightly faster than it should, or like it’s just a tad too slow, almost like everything around me is going on at a sligthly slower pace. The best way to describe it is when you are dealing with a VCR, you can adjust the tracking on the film and there are gradations where you can slow the film down just a bit. These sensations like the others are either momentary up to only a few minutes long.
(Feeling of Detachment from my body- almost Outer Body Experience) I have had a few episodes througout my life, like I was floating a bit away from myself maybe only a foot or two. Almost hovering next to my body. The internist as a teen, told me it was depersonalization and asked me if I was under alot of stress. The sensation is like watching yourself performing functions almost as if you are not connected to yourself somehow. Often as a young child I would feel confused and approach my father, mother or teacher and tell them, "I’m not sure if I am awake or asleep." This happened frequently but I have learned how to tolerate these sensations. Now as an adult it has seem to either decrease, or I just got better at ignoring it; I’m not sure which.
(Angry + vioent thoughts/ feelings) Sometimes I will feel absolutely rageful and I am not certain why. It has nothing to do with circumstances going on and is void of any emotional type thoughts preceding the episode. Lasts typically a few minutes and I am always cognizant at the time that I shouldn’t be feeling so angry and am puzzled, as to why I am.
All replies would be appreciated!!
Post edited due to rule #1