I have had a brain injury when i was 15 and was diagnosed with epilepsy at 16 ..... and am now nealry 28
I have temple lobe epilepsy I used to have most of my grand mals in my sleep, until recently, that is ...... now have them whilst awake as well.
the grand mals are one part part the absentee seizures I have are a huge part of my condition...... proberly the worst part... they are severe and can be quiet often....
As I have quiest bad side effects and that would be a whole another post, but I am sure any one on the list of meds could understand and i am having trouble with every day life...
I am on i am on 4 meds in my cocktail at present
topamax 100mg morn & night
tegretol cr 400 mg morn & night
lamictal 25 mg morn & night
tegretol 100mg morn & night
I have just been for a whole heap of tests eegs mri cat scans and pet scans
and still to go a sleep deprived eeg,
I am being evaluated to see if I would be a good canditadate for
a temple lobectomy my neuro thinks I am a good candidate and has sent me to a top neuro for his opinion,...... to see if surgery could cure this...my removing a piece that stops the signals from going through or something..... find out mre 19th oct.....
I would so appreciate to hear from any one that has had any surgery ....... or is looking at having any......
bit scared really