My daughter is 17 and had her first seizure when she was 4. She has a grand mal seizure about once a year. Her latest one was this past June and after looking up some info on epilepsy, I came across the fact that auras are actually partial seizures. I was never told that and hadn't read it before. When I told my daughter that she said well then I have those all the time. Now I have no idea how many seizures she has had. Her neuro just moved in June and left us with another doc in the group. After letting her know about the auras, she decided to add Keppra to my daughters daily carbatrol. I decided to asked for a another neuro after the "new" one miscommunicated some important things with me. We met the latest one and really liked that he wants to be aggressive with getting her seizures under control.
My daughter is a senior and this has totally disrupted her life. Her neuro took her off the carbatrol because he said it's an old medicine with a lot more side effects than the new ones. So now my daughter is currently on 750 mg Keppra in the a.m. and 1000 Keppra at night. The problem is the way she feels. The tiredness she has always complained about and the auras - dizzy, chemical smell, nausea, tingling. She complains of the feeling that her brain is swelling in the back of her head. This is how she feels most everyday:
fatigued, nausea, dizzy, off balance, feeling of
brain swelling, tingling in hands and feet
chemical smell, muscles ache, eyeballs have
wiggled, eyelids wiggle while closed, headache
vision blurry, if she moves her head to fast she
Has anyone experienced these same feelings? I don't know if more things are happening because she is off the carbatrol or if some of these may be the keppra. Her doc doesn't think it's the meds. She has been on the Keppra now for about 2 months. She has been off the carbatrol for 2 weeks.
She recently had a 3T MRI that showed scar tissue or a possible benign tumor in her left temporal lobe. The doc said that this maybe causing the seizures and we are awaiting entry into the Epilepsy monitoring unit. They are trying to see if she is a candidate for surgery. The problem is all of these feelings she is experiencing. It is affecting her school and her participation in the drill team. She cries a lot lately and says she just wants to feel normal again. She thinkgs that sometimes people (including me) think that she is faking it. I know that she worries about having a grand mal at school and I told her that if she stresses about it or anything, it can cause her to feel worse. Can anyone tell me if you have any of these same strange feelings? Do you think they are from partial seizures or possibly the medicine or both? Thank you for taking the time to read this. We are so frustrated with all of this.