djdaz_1985 Update

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djdaz_1985
Veteran Member


Date Joined Jan 2006
Total Posts : 2408
   Posted 10/15/2006 2:31 AM (GMT -7)   
Hi guys,
 
Just thoiught id write to give you an update on my condition. After about 5 months being seizure free, I think I had a seizure last night / this morning. There was coffee all over the floor, (I am the only one in our house that drinks coffee), I feel like ive gone 10 rounds with Mike Tyson and there is a burn on my stomach (probably from the coffee as I drink it black... it matches the one on my right foot now!)   
 
Nobody else is awake in our house yet, so I am yet to have this confirmed but I felt like posting an update and I really wanted to talk to someone and my mum is still in bed! This means that I am gonna have to wait another year before regaining my UK D/L.
 
I know these things happen every now and again, but its a real disappointment when Im working on regaining my driving licence, Ive made it to 5 months and then I have to start all over again.
 
Maybe I need my medication reviewing??? I take 600mg Carbamazipine Retard twice daily and it is usually enough to control the seizures, although I do get the odd one break through. Should I see a doctor? Should I just accept it as one of those things that happens every now and again?
 
Thats me finished for a while, thanks for listening
 
Darren
 
Despite being an epileptic for some time, I still feel embarassed when I have seizures 
 


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 10/15/2006 9:18 AM (GMT -7)   
Hey Darren.. How are you doing now? Have you talked to your mom? When was the last time you seen your neuro? You're right, you may need to up your dosages... Hang in there, we're here for you, please let us know how you are doing...
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea

djdaz_1985
Veteran Member


Date Joined Jan 2006
Total Posts : 2408
   Posted 10/15/2006 2:56 PM (GMT -7)   

Thanks for replying Ducky,

I havnt seen a neuro for quite a while as I seemed to be stable, but I am considering having a neuro review (if I can get one... Neuro's are hard to get hold of in Wales!) I am feeling better tonight, although I never feel completely OK until about 24 hours after the seizure... My taste buds go very funny and I have got absolutely no co-ordination at all (getting off the sofa without falling over can be a struggle sometimes)

I will keep you posted

Darren


 


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 10/15/2006 2:58 PM (GMT -7)   
Please be careful Darren... big hugs coming your way {{{{{[[[[[(((((Darren)))))]]]]]}}}}}
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea

HALO
Regular Member


Date Joined Nov 2004
Total Posts : 167
   Posted 10/25/2006 1:45 AM (GMT -7)   
Darren Have you been able to see a neuro yet? If you can't get to see a neuro very soon I would recommend you go to the ER and see them. Some treatment is better than none. I hope you are doing better. I have also had experience with seizure and coffee. So, now I only drink coffee from a spill proof travel mug.
Intractible Epilepsy,7 knee surgeries, 1 shoulder surgery, compressed discs in spine, Curvature of spine, sacroiliac joint disfunction, leg length deficency. Meds:  Topamax 300mg's, Klonopin 1.5mg's, Lamictal 200 mg's
No one left behind!
RLTW!
Educate, Enlighten, and Empower!
Epilepsy Forum Co-Moderator

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