Topomax... Depression... seeing a seizure... you name it!

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iowyth
New Member


Date Joined Oct 2006
Total Posts : 10
   Posted 10/15/2006 2:51 AM (GMT -7)   
I used to visit a site like this years ago. I visited it every day, made friends. I even found out about Topomax on the site and got my neurologist to put me on it. But about 5 years ago I just got sick of it. i got tired of always talking about epilepsy. Tired of defining my life by my condition and left the site. I don't know what happened to it or my friends there. Can't remember the name of it because... hey! I'm epileptic!
Today I cam here and I am enjoying it. So great to once again read notes from people who are experiencing some of the same things I am.
 
But this morning I have admitted something to myself. I'm depressed. I have been for years. Mildly depressed? maybe worse than that. I only really leave the house to go to work and I have lost my connection to all my friends, losing my connection to my family. Depression is something I have never experienced before. I was strong and positive. I always looked forward. Now... I can barely cook meals or keep my house clean. I don't want to get up from the sofa to answer the phone and I justify it all be saying "this is the way I like to live"
 
I think it's the Topomax? I was told a side effect might be depression. But I don't want to give it up. I can't give it up. It has brought me so much control. I take it in conjunction with Tegretol. I have less auras, less GM's. I need this.
 
I want to find a way to get this under some sort of control without medication. I want to get my life back, just a bit. Just so I can keep my house cleaner and be nicer to my family. But I don't want any more pills. I am so tired of pills.
 
my other topic.... Seeing a seizure. I have never seen anyone have a seizure. I know what the begining and the end of a seizure feels like.... But I have never seen one. My children have, my co-workers have. Does anyone else feel this way? Here is something that happens to us all the time, defines us... but we don't know what it looks like. I mean other than fake ones on TV shows.

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 10/15/2006 9:23 AM (GMT -7)   
Hey iowyth... I welcomed you in another post, but I'll welcome you again.. WELCOME TO HEALING WELL! :) So good to have you here... you will find a great bunch of understanding and caring people here, all going through the same things you are...

A depression... If you do suffer from depression it could be the topomax, or it could be your lifestyle. You said that you only leave the house to go to work and have lost the connection with your friends and are starting to loose the connection with your family.. why is that? Getting out of the house and even if it is just walking the neighborhood and keeping in touch with friends and family can reverse those feelings of depression without medication... Have you touch with those people by your choice?

Either way, we are your friends, and will are here for you... we will never turn you away... hang in there, and keep posting, we'll get you through this!

Duck
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea

iowyth
New Member


Date Joined Oct 2006
Total Posts : 10
   Posted 10/16/2006 2:30 AM (GMT -7)   
That's very kind

iowyth
New Member


Date Joined Oct 2006
Total Posts : 10
   Posted 10/16/2006 2:54 AM (GMT -7)   
Ok, after writing that little response I walked away from the computer and did a few things. (went and looked at your fun site also, Ducky)
That was an interesting question? Did the liferstyle cause the depression or did the depression cause the lifestyle? Have I lost touch with my friends by choice? Yes. I find maintaining relationships too much work. My family? No, I haven't lost touch with my family, but I'm trying to beat them off. However, that's awfully hard to do with a loving and devoted family. My parent's and sister and brothers are on the phone all the time trying to get me to visit and talk and be a part of their lives.
I have two grown sons who live with me and I am not trying to lose touch with them. They are the centre of my world.
I keep telling myself to get up on Sunday morning and go to church... or go for a walk in the village, get to know this neighbourhood I have lived in for 10 years. I just can't do it. I would rather watch TV or read a book and stay in the comfort and safety of my home. I really don't want to leave this house... except to go to work.
I think it's the Topomax because I never felt this in my life before taking it. Now, some other things have changed in my life that could be causing this. menopause is approaching. I go divorced 5 years ago. My children have grown up. ????
But I blame the Topomax, I also praise it because I live an almost seizure free life.

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 10/16/2006 9:20 AM (GMT -7)   
Hhhmmm... have you been on the Topomax for the 5 years too? Maybe it is a combination of all of it? Menopause, the divorce, the medicine... just too much at once? Ok, I need to look some stuff up... and I'll et back with ya... :)
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea

HALO
Regular Member


Date Joined Nov 2004
Total Posts : 167
   Posted 10/25/2006 1:34 AM (GMT -7)   
iowyth,
Welcome to HW from me as well! Depression and epilepsy go hand in hand. So, it may be the Topomax it may not be. I have been on topomax for a little over a year now and have not experienced any depression. But, again, different people experience different side effects from the same meds. But, back to my orignial statement. We tend to worry about when our next seiaure is going to occur, will it be in public, what will people think, how will they react, how will our reinds and family react, will we loose friends, will our family reject us,will we loose our job, will we be able to find a new job, will we loose our priviledge to drive, how will or meds make us feel, will or neuro listen to us. These are all things that we may think about either consciously or subconciosly and they cause depression. Have told your neruo that you are depressed? That is something that you really need to communicate to you neuro so that it can be addressed. It is very common and easy to remedy. Keep us posted and we'll definately keep you in our thoughts
Intractible Epilepsy,7 knee surgeries, 1 shoulder surgery, compressed discs in spine, Curvature of spine, sacroiliac joint disfunction, leg length deficency. Meds:  Topamax 300mg's, Klonopin 1.5mg's, Lamictal 200 mg's
No one left behind!
RLTW!
Educate, Enlighten, and Empower!
Epilepsy Forum Co-Moderator


Lozz
New Member


Date Joined Oct 2006
Total Posts : 2
   Posted 10/30/2006 3:00 PM (GMT -7)   

Hi I am a 29 year old girl and have never been on any of these kinds of sites before. I was diagnosed with epilepsy 13 years ago the day of my 17th birthday! Happy Birthday huh? I have burried my head in the sand reguarding my epilepsy, I have ignored it in the hopes it would go away or I would try and pretended it was happening to someone else.

I currently take Topamax with a mix of other drugs and have also taken Tegretol in the past. Tegretol was an awful experience for me it changed my whole personality and I couldn't stop it. Normally I am a peaceful calm non aggresive person but Tegretol changed all that! I became angry aggresive and then one day exploded and I hit my Mum so hard I gave her a black eye (not my proudest moment) I didn't even know I had done it. I was very quickly removed from those drugs. I am currently on a mix of Topamax, Keppra & Zonisamide. Before I was put on the mix I was put on Topamax as the sole medication to try and control me but I suffered from sleepiness and depression so the dosage was reduced and other drugs added in. I still have very blue days but now they aren't as severe now the dosage has been reduced. I am still not controlled but I feel so much better in myself on a cocktail than a when I was on the max dose of Topamax. My specialist was talking about putting me on a low dose of anti depressents but I have decided to try and fight it myself and I now make more of an effort not to stay curled up on the sofa reading or watching TV and go out and see friends and family and I have to say it has worked for me. However we are not all the same so I wish you good luck and hope you find what works for you.

 


iowyth
New Member


Date Joined Oct 2006
Total Posts : 10
   Posted 11/1/2006 1:40 AM (GMT -7)   
It's funny, isn't it Lozz, how these medications affect us all differently. I have been on Tegretol for almost 22 years with little side effect at all. But it's Topomax that I get the side effects from... and you seem to be just the opposite!

lola<3
New Member


Date Joined Nov 2006
Total Posts : 1
   Posted 11/7/2006 7:18 PM (GMT -7)   
I was wondering, I haven't felt any side effects really. But I do feel like Im loosing my memory. Im only fifteen and it really effecting me, school and test, family and I can't name any more but my memory is just shot. Could this be Topomax?

dinger57
Regular Member


Date Joined Mar 2006
Total Posts : 51
   Posted 11/12/2006 4:19 PM (GMT -7)   
Topamax made my legs to go num. It also effect my vision. Once I got off of it my vision came back like it was before i got on these drug.
Had My Brain surgery, and I was so scared, but the doctors made me feel good and and I did. They kidded with me before the surgery and before I knew it I was in recovery Thanks for helping me. Mine is on the  left temporal lobe. They say it is deep it my brain.


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 11/12/2006 6:46 PM (GMT -7)   
hey there dinger57, so what are you on now since you're not on the Topamax?
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea

HALO
Regular Member


Date Joined Nov 2004
Total Posts : 167
   Posted 11/16/2006 11:42 AM (GMT -7)   
Topamoax can effect vision, definately effects memory, and can make extremeties go numb. If you are experiencing these side effects and they are long lasting and bothersome you definately need to tell your neuro. Some people can take it with little to no side effects. Some, the side effects go away, and some the side effects are long lasting but tolerable. Topamax effetcs my memory, but it is the main med that I have found so far that dramitically reduces my seizures...so I tolerate it. I did have the numbness in my hands and face at first. But, it went away after about 2 months, and it also made me very very tired.
Intractible Epilepsy,7 knee surgeries, 1 shoulder surgery, compressed discs in spine, Curvature of spine, sacroiliac joint disfunction, leg length deficency. Meds:  Topamax 300mg's, Klonopin 1.5mg's, Lamictal 200 mg's
No one left behind!
RLTW!
Educate, Enlighten, and Empower!
Epilepsy Forum Co-Moderator


forevershanda
New Member


Date Joined Nov 2006
Total Posts : 6
   Posted 11/17/2006 3:02 PM (GMT -7)   
I'm so sorry to hear about the depression. It can really put a mar on your life. I battle it quiet a bit. I'm not epileptic but am blessed with bi-polar and lupus. Sometimes, when I'm in a depression, I do have to force myself to get out and do things. And I mean force, and each time I do it, it helps a little. I know you said you didn't want to take any more meds, but I would like to mention some over the counter meds that have helped people I know, and me before I went on my mood medication. First, a Bcomplex vitamin can help. Also, there is Happy Camper (Yes that is the actual name of it!!!) and Sam-E. They can be found at places like drug emporium and are homeopathic/all natural. My son uses the Happy Camper when he's heading down. My son was just diagnosed epileptic. I posted here after his first seizure while we were waiting to go to the Neuro this last week. Tyler did not have another seizure for almost two weeks. But the little booger had one halfway between Amarillo and Lubbock on the way to the neuro. Talk about timing!! And frantic! Trying to get pulled over and keep him safe (the back seat of a truck is not a good place for a GM) and then calling 911 because he was 6 minutes into it. The seizure lasted a total of 16 mintues and the neuro met us at the hosptial in Lubbock. He put Ty on Topamax. There was another he considered, but because Tyler is prone to depression did not feel it would be a good idea. Felt we would have a better shot with the Topamax. This was on Tuesday, so we'll have to see how he does. The major thing he warned us about is that it could "dull" a person. If a person was pretty intelligent, they could start not performing as well. So we were cautioned to watch his school work and activity closely for this side effect.
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