hello to all...i spent hours looking thru posts, need info not posted

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CJLQ's mom
New Member


Date Joined Oct 2006
Total Posts : 3
   Posted 10/23/2006 4:06 PM (GMT -7)   
Hello to all, my name is Kathy. looking for info on some type of seizure alarm. my son has tuberous sclerosis and had infentile spasms or drop seizures till he was a little over 4. seizure free and no meds for about 6 years. then at the end of july 06' he had to be taken to ER cuz his seizure wouldn't stop.He also vomitted. spent 3 days in childrens hosp. was put on keppra, only 250mg. after a month and a half, we discussed with neurologist about stopping meds. she agreed saying the amount he was on wasn't enough to protect him in the first place. but less than 2 weeks after taking him off keppra he had a seizure sometime in the morning... (after the first seizure i installed 2 cammeras in his room, with a monitor, i can hear him breathing) i had looked at the monitor and all seemed fine... i went to wake him up a couple hours later and he was wet and cold. this time he had not only vomitted but urinated. his temp dropped to 94degrees. and again, the seizure didn't want to stop, but this time after about an hour it did, and we were able to come home. however i'm scared to death, that the next seizure will result in death. i'm afraid that they are so silent i will not know as i didn't know this time that he has thrown up and will choke on his vomit. please if anyone has ANY info on something i would greatly appreciate it...

HALO
Regular Member


Date Joined Nov 2004
Total Posts : 167
   Posted 10/24/2006 8:50 PM (GMT -7)   

Welcome to HW.  I'm so sorry to hear about your son.  Here is some information on some great seizure alarms.  I wish you and your family well.  Please keep us posted.  You will find everyone here very supportive and helpful even if you just need to someone to listen to you vent for a while

                                                                Seizure Alarms 

 
 
 
   
 
Any comments, questions or concerns please email me
 (Please include your user name)   Wader@Healingwell.net 
 
 
 
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Intractible Epilepsy,7 knee surgeries, 1 shoulder surgery, compressed discs in spine, Curvature of spine, sacroiliac joint disfunction, leg length deficency. Meds:  Topamax 300mg's, Klonopin 1.5mg's, Lamictal 200 mg's
No one left behind!
RLTW!
Educate, Enlighten, and Empower!
Epilepsy Forum Co-Moderator


CJLQ's mom
New Member


Date Joined Oct 2006
Total Posts : 3
   Posted 10/25/2006 8:38 AM (GMT -7)   
Thank you for the nice welcome. yes those are great sites. unfortunately, i've been to them, and b/c i live in US they are, at this time, unavailable. they are looking to be in the US soon tho. thank you so much for sending the info, and the quick response. Kathy

HALO
Regular Member


Date Joined Nov 2004
Total Posts : 167
   Posted 10/25/2006 10:08 AM (GMT -7)   
You're welcome. If I can find anything else...I'll let you know. In the mean time....hang in there
Intractible Epilepsy,7 knee surgeries, 1 shoulder surgery, compressed discs in spine, Curvature of spine, sacroiliac joint disfunction, leg length deficency. Meds:  Topamax 300mg's, Klonopin 1.5mg's, Lamictal 200 mg's
No one left behind!
RLTW!
Educate, Enlighten, and Empower!
Epilepsy Forum Co-Moderator

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