My daughter had her surgery on Friday Nov. 10th to have the intercranial with leads done, it was about a six hour procedure. She was put into ICU after and the data started to register on the seizures she was starting to have. On Saturday the doctors came in to say that they were getting good data but that it was on the edge of were the leads were and that they would have to go back in to put more leads in.That took place on Monday Nov. 13th another six hour procedure. She was back in ICU stayed over night and in a regular room on Tuesday. They lowered her medication some because the seizure activity slowed down. She was very uncomfortable, did not want to move her head. She had a partial seizure and the doctors received the information they wanted to get. She had a vision test done on Wednesday the 15th and they also tried to stimulate some of the leads in her brain. The stimulation was bringing on a seizure so they stopped it. That night she got very sick and kept throwing up, it was awful. In the morning she was running a slight fever,but the surgery still went on. She went in Thursday the 16th morning at 9:00 AM and was done at 3:15 pm. I was so frightened wondering if the fever would get worse, that infection was setting in, that when she opened her eyes that she would be frightend if she lost any of her sight. I had so many different things running through my mind and it all turned out wonderful. The doctors said that if they did not do the intercranial the results might not have been the same, it helped tremendously. It was a long hall and having three surgeries in less then a week was such a toll on Victoria, but she was such a trooper. She has been through so much and today is Saturday the 18th and she is up and about and feeling more herself. We are waiting for a MRI, the doctors say that the percent of her being seizure free is 50 to 70 percent. We hope it will never happen again and are so happy that she did not lose any eye sight. Thank You Dr Feldstein,Dr Goodman, Dr Gilliam and Dr.Pack.
DEAR LOU LOU:
MY you are a strong mom,god bless you and Victoria. I sure hope the best for you and your daughter. SURGERY seems like a strong fight to correct seizures,you took a huge chance,and I"ll keep your family in prayer.