Hi I am new here and I hope someone can me some information if they have been through the samething my daughter is going through.
My Daughters name is Victoria she is 10 now. We go to New York Columbia Presbyterian Hospital. Her Neuro Dr. is Alison Pack ,Surgeon is Dr. Neil A. Feldstein(you can do a search on his name to get his information) the second surgeon that will join Dr Feldstein this time is Dr. Robert
Victoria was four years old when she had her first seizure, nothing was done for the first one. Four year later she had another one. We went to
Westchester Medical Center. They did CT Scan, found nothing,EEG nothing to talk about, they put her on Tegretol. We then went to New York
Columbia for a second opion, they orderd a MRI. The first MRI came back showing a bright spot so we had to go back for another with contast to
see what it was. Victoria was still having auras with seeing colors being on the medicene so they change it to Lamictal and it was still the
same . The doctors said that the will operate. On June 23,2004 Victoria was operated,everything went well. When they did the MRI after surgery
it was still showing a bright area. The doctors said it could be scar tissue or residule tumor, but the only way to confrim it would be to go back in. The doctor was giving us reassurance that he felt comfortable of what he took out,said though sometimes brain tissue could look good
but it's not , but that we would keep a close eye on it. Victoria was going for her MRI's and there was no change, she was seizure free for
over 2 years. The doctors were talking about weening her off her Lamictal in September ,we were so happy. Then on August 23rd she had a seizure. We went to the hospital they did another MRI, she was due for her next one in Sept. The MRI showed some regrowth in the occipital lobe. Victoria is back to seeing the colors and vision they upped her medicene . She was put in the hospital for 10 days on EEG and they
capture some activity saying it is coming form the same area where the tumor is. They want to make sure that they don't miss anything this
time. She is schedule for a intercranial with brain leads on November 10th and when they get the data they need they schedule her next operation to resect everything on November 17th. We went to Memorial Sloan Kettring in New York also and the said that they would do the same thing that Columbia is doing,that gave me reassurance . Although she will either lose a quadrant or her whole left periferal vision. I'm really scared ,but she is such a tropper. I would like to know if anyone had a intercranial with leads ? Does anyone know Dr. Robert Goodman ?