lets share our stories : )

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AnonymousMe
Regular Member


Date Joined Oct 2006
Total Posts : 20
   Posted 11/15/2006 8:36 PM (GMT -6)   
hey would anyone want to share their story? i think it would be nice to know what everyone has gone through and how they have dealt with their epilepsy.

loulou0621
New Member


Date Joined Nov 2006
Total Posts : 10
   Posted 11/15/2006 9:02 PM (GMT -6)   
Have you read Epilepsy and JPA Brain Tumor ?

HALO
Regular Member


Date Joined Nov 2004
Total Posts : 167
   Posted 11/16/2006 12:33 PM (GMT -6)   
I was Dx'd at age 5. Was seizure free med free at age 15. Had multiple concussions playing sports over the years, and had a major head trauma at age 19... seizures returned. Was officially re-DX'd by the Army in 2002. Since then I have been unable to work/drive. Had as many as six partial siezures with secondary tonic clonics a week. I am now down to about 5 a month. I have been put on 72 hr mental holds twice by the police for have a seizure, had my shoulder injured in the ER while they tried to restrain me while I was post ictal, and have been diagnosed again in 2004 and again in 2006. I have multiple abnormal EEG's. I take Topamax, Lamictal, and Klonopin.
Intractible Epilepsy,7 knee surgeries, 1 shoulder surgery, compressed discs in spine, Curvature of spine, sacroiliac joint disfunction, leg length deficency. Meds:  Topamax 300mg's, Klonopin 1.5mg's, Lamictal 200 mg's
No one left behind!
RLTW!
Educate, Enlighten, and Empower!
Epilepsy Forum Co-Moderator

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