If I get a simple partial, I can't speak or even form words in my head. This seems to be the main symptom - my body operates OK otherwise providing I'm not doing anything too complicated. Each one lasts between 10 and 30 seconds. Sometimes I get 'aftershocks' a few minutes afterwards, which are basically milder versions. These can go on for a while, coming and going, and sometimes turn into a complex partial - though Keppra, almost entirely useless in every other respect, has cut down the number of times this happens.
It must be said, though, that I'm the only person I know who has this speech thing. A posting on this forum a while ago revealed a remarkable number of ways in which people experience simple partials. So if your own are different, that doesn't necessarily mean it's not epilepsy. I've no idea if mine are temporal lobe or not, and nothing to say about Clobazam. Five years after being diagnosed with this stupid condition and I've still done next to no research on the subject.
I experienced complex partial seizures for over 5 years before any doctor diagnosed me. They began short, maybe 10-20 seconds and eventually lasted 45 sec to a minute. I would have a strange feeling wash over me, a dejuva ( it felt I should know what was going on but couldn't), and extreme tiredness followed. If i would have several in a row I would need to lie down. I could continue what I was doing with the seizure but not talk. I later learned that I would turn my head to the left and make a strange movement with my mouth. My husband would call it a" blank in my tape". Only people who knew me well could tell when I would have one.
I eventually was diagnosed with a brain tumor in my right temporal lobe. It was benign but had to be removed to discover that. The seizures stopped after the surgery. I hope. Lately I have been having ? seizure but not exactly like before. Anyone had different seizure symptoms after surgery? thanks for any input.
I also have SPs I used to think of as Petit-Mals,I've had epilepsy since 1979, controlled by meds.I get a form of petit mal seizures that my Dr. calls "speech arrest". It only lasts a few seconds, I am aware of what is going on around me but I can't respond.When I try to talk, my speech is slurred (more than usual).Most people have no problem speaking but I have to concentrate to form every word. (all the time but twice as hard during a speech arrest).Everybody thinks I'm stoned all the time.Boy, I didn't realize that we take our speech for granted so much.
My neurologist says that if I wasn't on meds, I would have a full out Grand-Mal seizure.
This just proves that the meds are working.Randy (Ontario) <!-- google_ad_section_end -->
I get the slurring too, Ran Man. I also do a certain amount of mumbling. I wasn't aware of either, incidentally. But the hospital recently asked someone who'd seen me having a seizure to write down the symptoms. It was quite an eye-opener. This is probably a useful exercise for everyone - sometimes our bodies can be doing this we're totally unaware of.
And you're right about us taking speech for granted. After a big seizure, it can be up to half an hour before I can speak again. It always feels like I can't think at all during this time. I can, of course, I can do nearly everything. But as I can't put anything into words, it just doesn't feel like thought.
I thought I'd also note that having conversations will trigger a seizure, and they happen usually between 5 and 10pm! I never have them in the morning.
Post Edited (ginny) : 2/24/2007 9:09:48 PM (GMT-7)
Dear Set 74, thank you for your nice comments. It was extremely frustrating to not be heard or understood for over 3 years. But I am glad that I was able to be persistent. I just worry about all of the people out there who are suffering these mysterious symptoms and are not getting the care that they need because their doctors do not believe them or do not have the knowledge to help them further. Very sad.
The gnawing feeling about driving that you spoke of is very familiar to me. Since I last wrote, I actually did have my driving privileges revoked and then quickly reinstated (thank God!). That was quite a blow! But I was one of the fortunate ones. My doctor's office was so supportive and helped me through this. Since I was diagnosed with "clustering simple partial seizures", the DMV felt that I could better judge when I was/was not safe to drive. Now that I know that what I have is seizures, I will refrain from driving on my "seizure days"....just in case.
This Thursday I will be going in for a Tesla-3 MRI to see if there is something going on in my temporal lobe and/or hypothalamus that might be causing these seizures. This will, in turn, determine whether I will need surgery....for which I will certainly obtain a second opinion. My heart goes out to all of you who have been on this path longer than I and have had to endure all of this uncertainty and angst.
Set 74, I sure hope that you find the right level of medication. That is so critical to you sense of well-being and hope. Good luck to you! Take care.
I had the four day EEG. I think it is the best test you can ever have to diagnose your seizures. Being wired that long is no fun, but it doesn't hurt. I would advise you to take gowns that button up the front because you won't be able to pull gowns or pajamas up over your head. Also plan on not being able to take a shower. You will be able to take a sponge bath. Your wires will reach into the bathroom. That is the only place you will not be videod. If you enjoy reading, take some good books.
Carla thank you so much! That is the exact advice I was looking for. I'll definitely bring books and work with me. That'll set off the bells and whistles! Hehehe....Nothing like a little stress to encourage a seizure to come on!