Can anyone describe their symptoms of a simple partial, temporal lobe seizure?

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missannasmom
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Date Joined Mar 2007
Total Posts : 8
   Posted 3/29/2007 11:12 AM (GMT -6)   
Well my appointment was kind of an eye opener. I knew it was going to be hard for me to bring up that I had done my own reaseach..and boy was it ever. She really still thinks that I have a problem with my headaches and that it is all related together. She didn’t' see any concern in my MRI for thoughts of seizure so she didn't really want to talk to much about it. However she did order an EEG but I feel like she just did it to shut me up.

I do understand some of the things she said in the way of dx because she thinks some of the problems are more related to anxiety and depression than seizure. She's taking me off the topamax and switching to an antidepressant and suggested I start seeing a therapist.

I guess it's all kind of hard for me to swallow but maybe she's right. All I know is I can't deny what I keep feeling and how scary it's become to me. Whether it's panic, anxiety depression, headache or seizure it's real and it's seem there should be some other explanation. Maybe I'm just digging for an answer that's not there.

littlesisser8
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Date Joined Feb 2007
Total Posts : 10
   Posted 3/30/2007 9:58 PM (GMT -6)   

Dear missannasmom

From the sound of things, you seem to be having seizures that are very similar to mine, in many respects (please see "littlesisser8" above).  I was diagnosed with clustering SPS's in Dec. 2006 after experiencing many of the symptoms that you described.  Fortunately, since my seizures did occur on a monthly basis and occurred many times within one day (=clustering), I was able to get in for an EEG on the day that I was experiecing the seizure and they captured it very clearly on the EEG recording.  I was immediately prescribed Keppra and it has worked well so far.  Two days ago I saw my neurologist (who is an epilepsy specialist) and she was able to find the location of my seizures on my MRI.  It was very clear to her that my seizures are located in my right hippocampus...a structure within the temporal lobe.  She showed me how my right hippocampus was slightly smaller than my left hippocampus.  It is hard to know why this occurred and why my seizures appeared so late in life (they started when I was 44).  The most common reason is damage that occurs during development of the brain pre-natally.  Since my mother almost miscarried when she was pregnant with me (@ 3-months pregnant), there is a possibility that this did occur.  It feels good to have at least a possible explanation for what is happening.  My condition is not as severe as many and I feel fortunate that I have been able to manage as I have on the Keppra.  I hope that you find some answers for yourself and the treatment that will work well for you.  Let me know if you have any questions.  Take care.


littlesisser8
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Date Joined Feb 2007
Total Posts : 10
   Posted 3/30/2007 10:05 PM (GMT -6)   
Dear missannasmom-

I was also told more than once that I needed to see a counselor. That is what happens when a doctor does not know what you have....they conclude that it is your imagination. Well, I knew that I was not in need of therapy. I knew that what I was having was different than anxiety or depression. And I persisted in finding someone who knew what to look for. Do not give up hope. I was advised to go see an epilepsy specialist. Luckily, I live in a larger city and there was an Epilepsy Center nearby. I was diagnosed within a month...after years of no answers. Maybe you can contact the EEG dept/office to see if you can come in on the day that you are actually having your episodes (that was my word for them before I was diagnosed). That is how I was able to be diagnosed so quickly. If your episodes occur frequently enough and happen all on the same day, then you may have the kind of luck that I had. I walked in and within an hour had a diagnosis. I wish you the best with this. It does not sound like anxiety/depression to me...it sounds like temporal lobe SPS's. Good luck!

missannasmom
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Date Joined Mar 2007
Total Posts : 8
   Posted 4/2/2007 8:34 AM (GMT -6)   
Thanks so much for you words of encouragement. It really does help!
Like I've told others, it's not that I WANT it to be this. It just really seems like it is. When they called to schedule my EEG they told me I could come next week but I pushed it to the end of the month when these things keep happening. So that makes me feel somewhat better.

I know I'm an emotional person and that I do have a certain level of anxiety but like you said, I don't think it's really related to this. It's always been somthing I've been able to handle and I don't see how a panic/anxiety attack could sometimes happen when I'm on the verge of falling asleep. How stressful is that? It also seems strange to me that it could just be a migraine aura when it happens at the same time every month and pretty much unrealted to my headaches.

Anyway thanks so much for your encrouagement. I'll try not to let them get me down. I believe a person knows there own body best.
Thanks littlesisser8!

missannasmom
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Date Joined Mar 2007
Total Posts : 8
   Posted 4/2/2007 8:44 AM (GMT -6)   
Oh, littlesisser8-

I also wanted to ask you if you had any of this in your family history? I feel faily certain my doctor is dismissing my fears because she doesn't see any family history, infection or trauma to cause this. So really I'm just wondering if any of you had this just sort of come "out of the blue"?

I saw what you said about the pre-natal findings and that's very interesting. My concern would be from a head injury I had about 10 years ago, for which I was never seen by a doctor. I probabaly had a mild concusion but as a teen, doing something I wasn't supposed to be doing, I played it off.

Just curious if anyones fears were dismissed becaue of lack of family history?
Thanks!

littlesisser8
New Member


Date Joined Feb 2007
Total Posts : 10
   Posted 4/2/2007 8:49 AM (GMT -6)   
Dear Missannasmom-
 
I felt exactly the same way.  I did not want it to be seizures but after doing my own research, I pretty much knew that they were seizures.  It will probably take an epilpesy specialist to diagnose you.  But even then, because of the way my seizures were patterning (once a month), the specialist was a little skeptical at first.  But they was it for themselves on the EEG and I think that they learned alot themselves through my case.  I was the talk of the medical rounds according to one of the interns that I had talked to.  Too funny!  But, you are right, you do know yourself and your body better than anyone and you are NOT crazy...these are very real and very unsettling experiences to go through and you need and deserve appropriate medical care.  I plan on educating my Primary Care doctor and my gynecologist about SPS's...maybe when another patient comes in in the future with the same symptoms they will know better than to direct them into counseling.  I can only hope.  Good luck with your appointment. 

littlesisser8
New Member


Date Joined Feb 2007
Total Posts : 10
   Posted 4/2/2007 8:59 AM (GMT -6)   
No, I do not have a family history of seizure disorder. And, yes, absolutely they were dismissed. But as you read and learn more, there are no absolutes when it comes to causes for seizures. And my onset was late in life...which makes it even more questionable. But that is what makes it all so interesting...but does not fit into a neat little package for the doctors. Keep the faith....do not let them discourage you from finding your answers. Even though I still do not like having a diagnosis of seizures, at least I have something to work with and can move forward.

Kevinsgirl11
New Member


Date Joined Apr 2007
Total Posts : 3
   Posted 4/7/2007 12:20 AM (GMT -6)   
Hey, everyone...I'm new here, so please have patience with me if I'm repeating something someone else already said...
 
I, too, would like some information on what it's like to have petit mal seizures...my doctor thinks I might be having them, and he's sending me for an EEG, CT Scan, and neurological consult to find out... I've also been send for an ultrasound to check for PCOS (Polycystic Ovarian Syndrome), and I'd like to separate my symptoms accordingly (which is probably impossible).  If you could tell me if you have experienced any of the following and whether or not they are related to seizures, I'd appreciate it.
 
- periods of "spacing out", increasing in frequency (if I'm mid-sentence, I apparently stop talking- I don't notice this happens, but my friends and family mention it)
- falling, without remembering falling (all of a sudden, you're picking yourself off the ground)
- insomnia
- onset of unilateral migraines with aura (not a visual aura, though... my vision in my left eye gets blurry, and have a particular "taste" in my mouth)
- aversion to crowds/public speaking/noise
- eyelid fluttering
- history of febrile convulsions as a child
- lack of concentation
- grinding teeth while sleeping (I did this as a child, and lately it's been happening again...in the past year, I've worn the points off my eye teeth...my dentist tells me I have the eye teeth of a 50 or 60 year old...and I'm only 22...I take it as a sign of maturity and wisdom...hahaha)
 
Thanks, everyone...I really appreciate it.  These past few months have been very difficult, and this has added to the worry... especially since my doctor told me not to drive until we get this all settled out...last summer I had an "episode" while driving, and I almost rear-ended another car.  Better to be safe than sorry, I suppose, but it sucks that I lose some independence. 
 
Take care, everyone, and I look forward to hearing your responses...

Post Edited (Kevinsgirl11) : 4/7/2007 12:43:20 AM (GMT-6)


Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 4/24/2007 6:37 PM (GMT -6)   
Hi Kevinsgirl,
 
You've brought up a very interesting set of symptoms.... I find myself comparing them to what I experience.  I am in the process of getting a diagnosis of perimenopause, or POF (premature ovarian failure).  PCOS is also a possibility.
 
My seizures do have the auras like you mentioned.  I get an all over sense of fear, quickly followed by an overwhelming sense of
deja vu and bad smells.  I remain conscious and fully aware. I can talk and everything.  But these "seizures" are very distracting. I've been told they are simple partial seizures.  But I have yet to get an absolute diagnosis.  Every time I go in for an EEG, I never have a "seizure".  Go figure eh.  So I'm on the list for the seizure monitoring unit at the hospital.
 
Many of the symptoms you listed also fall into the perimenopause category, or a hormonal imbalance.  Just like me.  Do you have periods of anxiety and/or depression?  The lack of concentration can be seizures or hormones, so is the teeth grinding. 
 
I hope you get the answers you need. 
 
Ginny
I can do anything through Jesus Christ who strengthens me.  I have learned in whatever state I am in, to be content.  Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(stroke),Sjogren's, Raynaud's, seizure disorder, libman sach's endocarditis, vasculitis, sacroiliitis, Neutropenia, thrombocytopenia, possible early menopause - do diagnosis yet. Prednisone, Imuran, Coumidin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


missannasmom
New Member


Date Joined Mar 2007
Total Posts : 8
   Posted 4/27/2007 2:09 PM (GMT -6)   
Well here's and update incase anyone is curious. I had my EEG yesterday and of course it was normal. I'm glad! But it still doesn't explain the weirdness or my, what had been diagnosed as, Migraine Auras. I did start a new medication after my last appoinment which is agreeing with me MUCH BETTER than the Tompamax. It is more of an antidepressant. I now that I've been on it for almost a month my migraines actually seem to be getting better and I haven't had to may deja vu episodes. I know believe that my strange occurances are a part of my migraine problems but I still feel like there is a better explination than.. "that just happens with your headache".
 
I'll keep seaching but I've come to terms with the whole thing and am feeling much less anxious about it. Thanks for all the support and reasurance everyone here gave to me. It really helped me get to this point.
 
 

littlesisser8
New Member


Date Joined Feb 2007
Total Posts : 10
   Posted 5/4/2007 9:02 AM (GMT -6)   
Dear missannasmom:
 
I am glad to hear that you are feeling better but sorry to hear that the EEG did not show anything.  That can be very frustrating when you know that there is something that is not normal happening in your brain.  I hope that the new med does the trick.  Have you had an MRI done yet?  Only with my second MRI (it was a Tesla 3 MRI or something like that) did they confirm that I had a problem in my right hippocampus and when I read about seizures that occur in this region of the brain, they matched mine almost to a tee (sp?).  A regular radiologist would not be capable of seeing this...my epilepsy specialist saw it right away and even showed me the picture.  Having an actual diagnosis helps quite a bit...but it is the starting point in some respects as you start to navigate through the finding the correct treatment that works for you.  I hope that you get what you need and soon.  I do not know much about the auras that come with migraines but, like seizures, they are pretty complicated.   The best to you and please keep me posted.
 
 

Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 5/4/2007 9:12 PM (GMT -6)   
I can completely relate to your frustration about the EEG's coming back negative all the time.  That is my story too.  Every time I go in for an EEG, I never have a seizure!  But now, I'm going to the seizure monitoring unit on Monday. They'll hook me up to all those probes and wires and keep me there until I have one.  Good thing I'm having more than one a day right now!
 
My neuro also thought I was having anxiety attacks and that these weren't seizures.  I KNOW they are seizures.  I have anxiety and it's very different.  So yes, keep pestering those doctors for EEG's and try to get yourself on the wait list for a seizure monitoring session.  I am actually really excited about doing this next week.  I'll finally get some answers to all this.  Five years in the making!!
 
Good luck, keep us posted,
 
Ginny
I can do anything through Jesus Christ who strengthens me.  I have learned in whatever state I am in, to be content.  Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(stroke),Sjogren's, Raynaud's, seizure disorder, libman sach's endocarditis, vasculitis, sacroiliitis, Neutropenia, thrombocytopenia, possible early menopause - do diagnosis yet. Prednisone, Imuran, Coumidin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


littlesisser8
New Member


Date Joined Feb 2007
Total Posts : 10
   Posted 5/30/2007 9:50 PM (GMT -6)   

Hey Ginny!

How did the EEG monitoring session go?  Sorry that I did not ask sooner...I have not been on here for a couple of weeks.  I hope that you had some success.

Littlesisser8


Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 6/3/2007 4:29 PM (GMT -6)   
Hey Littlesisser!
 
Good timing for your post!  I'm actually going into the seizure monitoring unit this week. Perhaps even tomorrow!  I'm actually really excited about getting in there.  I've gone over 5 years without a proper diagnosis.  Isn't that crazy!  I'm having 2 or 3 simple partial seizures every day now.  I have noticed that a major trigger is conversation!  If I'm on the phone or talking with someone in person, the animation of a talk will make me have a seizure!  I mentioned that to the nurse and she thought that was very interesting.  So she wants me to be on the phone and having visitors into the room a lot!
 
I'm still on 32.25mg of Frisium (Clobazam).  I can't go down any further because the drug also treats anxiety disorders.  And, well, now that I'm down to this dose from the original 40mg, we've unearthed an anxiety disorder in me!  I never knew I had it.  So if I go lower than 32.25mg, my anxiety is awful.  But I'm still getting enough seizures to warrent this study. 
 
So that's the update on me. I"ll definitely touch base with you all when I get home from the hospital.  Shouldn't be in there too long. Not when I'm having 2 or 3 of these a day!
 
Thanks so much for asking about me Littlesisser!  I hope you get all the answers you are looking for too.
 
Blessings,
Ginny
I can do anything through Jesus Christ who strengthens me.  I have learned in whatever state I am in, to be content.  Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(stroke),Sjogren's, Raynaud's, seizure disorder, libman sach's endocarditis, vasculitis, sacroiliitis, Neutropenia, thrombocytopenia, possible early menopause - do diagnosis yet. Prednisone, Imuran, Coumidin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Another Day
Veteran Member


Date Joined Mar 2007
Total Posts : 1055
   Posted 6/3/2007 6:39 PM (GMT -6)   
Hey Ginny,
 
I had been wondering about you too.  It sounds like you shouldn't have to stay long.  Isn't it just amazing the strange things that can trigger our seizures?  Remember, don't pick your nose while you're being videoed.  :-)
 
Take care!
 
Carla

Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 6/3/2007 9:02 PM (GMT -6)   
Hey Carla!
 
Thanks for your support!  Darn!  I was really looking forward to ramming a couple of fingers up my nose this week....I guess that means I can't scratch my boobs either, eh? Hehehe..... tongue
 
Ginny
I can do anything through Jesus Christ who strengthens me.  I have learned in whatever state I am in, to be content.  Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(stroke),Sjogren's, Raynaud's, seizure disorder, libman sach's endocarditis, vasculitis, sacroiliitis, Neutropenia, thrombocytopenia, possible early menopause - do diagnosis yet. Prednisone, Imuran, Coumidin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


littlesisser8
New Member


Date Joined Feb 2007
Total Posts : 10
   Posted 6/3/2007 10:36 PM (GMT -6)   
Hi Ginny!

I hope that you find your answers as well. Let us know how it goes.

My thoughts are with you.

Littlesisser8

P.S. Boob-itching is strictly prohibited! LOL!!

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 6/5/2007 9:43 AM (GMT -6)   
Well, I'm still at home!  BAH!! I'm next on the list, and they're just waiting for one of the four patients to have another seizure, then they can be discharged.  (Come on people, have a seizure already.  Just let 'er rip!) tongue
 
So, today I might get the call, or tomorrow.  I'm just taking it day by day. I had 3 good sized simple partials yesterday, and one as soon as I woke up this morning.  My brain is saying "Get me in there, hook me up!" 
 
I'll be in touch!
 
Ginny
I can do anything through Jesus Christ who strengthens me.  I have learned in whatever state I am in, to be content.  Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(stroke),Sjogren's, Raynaud's, seizure disorder, libman sach's endocarditis, vasculitis, sacroiliitis, Neutropenia, thrombocytopenia, possible early menopause - do diagnosis yet. Prednisone, Imuran, Coumidin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


miraclesivseen
Regular Member


Date Joined May 2007
Total Posts : 169
   Posted 6/8/2007 8:06 AM (GMT -6)   
ok,I am confused.
 
I began having grand mal seizurs since i was an infant,
Continued on and off until I was 17.
At 18, rmoved a benign brain tumor the size of a grapefruit from the protctive covering of the brain.
 
Had another seizure at 21.
 
didnt have another until I was 34.
 
continud to have them one about every 6 months.
 
This Saturday I was sitting outside....began seeing bright silver lights.
Felt the aura....My husband got me to my feet...As soon as I saw his Blu shirt I knw I was saf, I lost consiousness.  Lasted about 15 sc.  He said I jumped up as though I could walk, then I again lost coniousnss, lost control of my bladder, and was nothing but dead weight.  carrid m into the house where i was so clammy, breathing was eratic.  
I also hav crohns disase and thyroid cancer.
Which I do not think contributed to the seizures.
I am currently on 800 mgs tegretol, 1000 mg keppra.
 
I have gon from no sizurs for years to 2 in on day errrggggg
Now I just feel out of it, like it can com on at any time.
They also wnt from me jrking (grand mal) to just loosing consiousnss and control of my bladder.
 
I also have that chewing gum typ symptoms with my lips.
 
My doctors do no know why this has come about out of the blue again.
 
I don't even know what kind of sizures these are.
 
I always have an aura, but this time it didnt giv me the time I normally have to gt "safe"
 
Any comments would b apprciated.
 
Thank you
 
gretchen
 

littlesisser8
New Member


Date Joined Feb 2007
Total Posts : 10
   Posted 7/5/2007 11:03 PM (GMT -6)   
Hey Ginny!
 
Anything new with you?  I have been wondering whether you were able to get in for your testing.  I would love to hear the latest.  I sent a previous message here but for some reason it did not post.  I hope that this one gets through. 
 
I hope that you are doing well. 
 
Littlesisser8

Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 7/9/2007 9:25 AM (GMT -6)   
Hey Littlesisser,
 
Well, you can read all my updates on my other threads.  A lot has happened since my time at the seizure monitoring unit.  I've explained it all in my other threads!
 
Thanks for asking how I'm doing.  How are you doing these days?
 
Ginny
I can do anything through Jesus Christ who strengthens me.  I have learned in whatever state I am in, to be content.  Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(stroke),Sjogren's, Raynaud's, seizure disorder, libman sach's endocarditis, vasculitis, sacroiliitis, Neutropenia, thrombocytopenia, possible early menopause - do diagnosis yet. Prednisone, Imuran, Coumidin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


disciple
New Member


Date Joined Jul 2007
Total Posts : 8
   Posted 7/24/2007 2:35 PM (GMT -6)   
I have simple partial epilepsy.  My seizures start out with me being spacey & then I get scared.  I was diagnosed in 1990

kpc
New Member


Date Joined Jan 2013
Total Posts : 1
   Posted 1/1/2013 7:12 PM (GMT -6)   
nothing has been posted here in years but thought I would give it a shot. Does anyone have these sps symptoms:
stomach ache
sudden onset intense depression
lasting only minutes
afterwards shaken up and scared because the depression was so intense. It is unbearable.
I do not suffer from bipolar or any other illnesses. Anyone eklse have these sps symptoms? need to relate to someone.
thanks!

MICHIGANMA64NANA
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Date Joined Jan 2013
Total Posts : 3
   Posted 1/27/2013 11:13 AM (GMT -6)   
When there are multiple diagnoses for different medical conditions, it makes it more complicated I think. Like, I have hypoglycemia (low blood sugar), so there are times when I don't eat right, that I get woozy, sometimes speech affected, wobbly, mental confusion.

Also, have hypothyroidism, which I take Armour thyroid to stabilize this. That can cause lots of symptoms like feeling hot and/or cold, mood swings, etc.

Another thing I deal with is irritable bowel syndrome. When I have colon attacks, I am mentally off, get hot, eyes roll in my head. I take bentyl for those attacks.

Besides that, I have been diagnosed with chronic fatigue syndrome and fibromyalgia, both considered "all in your head" by most doctors.

DJD (degenerative joint disease), herniated and bulging discs in my back, arthritis all make it difficult for me to move much. I am in a wheel chair part of the time and also use a walker. Getting in and out of a tub for showering is almost impossible, so I am like a "bag lady" not changing clothes or showering very often.

Since I am widowed, disabled, and overweight, and late 60's, there are problems with debilitating pain and depression, plus chronic anxiety. More reason for some docs to think my problems are all psychological or psychosomatic.

Forgot to mention, I have COPD which makes it difficult to breathe so I have all kinds of inhalers, CPap machine, and some other machine for breathing treatments with another med.

Although I have a bunch of different specialists for various issues, and a ton of meds to take for everything from high cholesterol to voltaren jel for pain , to prevacid for GERD, there are few that are mood changing meds:

I seldom take tramadol for pain, or flexeril for muscle relaxer,feldene (anti-inflamatory), and even less often do I take klonepin because my primary care physician thinks i should not need it except in rare situations (like when my son died), and for very limited time (like a week with no refills), and only half a mg once a day (which does not work) from 1mg which DID help!

Oh, I forgot that I now also have a heart condition called SVT, which I take diatezam (sp) to keep my heart rate from going up to over 150 when the ambulance took me to the hospital.

But, it all started with me "losing time", "blacking out", "going blank", voice like a little girl and crying and repeating "want to go home" but not knowing where it was,

wanting to say something but not knowing the words, knowing there was something important I needed to say, but not knowing what it was, even knowing that I was very upset or angry or sad about something but no idea what it was about (but feeling the emotion),

not knowing where I was or how i got there or why, not recognizing people who approached me in the mall although they knew me and had been in my home for social calls in the past (still don't remember them),

not aware I had just seen a special tv series program that I routinely watched...within seconds of it being over, and asking why the caregiver would not allow me to see my program,

what my phone number was, what car I drove, what my keys were for, and putting cold cereal box in the dishwasher or milk in the cupboard......just a few examples.

Sound familiar to anyone?

MICHIGANMA64NANA
New Member


Date Joined Jan 2013
Total Posts : 3
   Posted 1/27/2013 11:24 AM (GMT -6)   
Forgot to mention that I was put on tegretol after being seen at Ann Arbor (famous hospital i guess) and given an MRI...dont remember much about the trip. I have never seen any of the records from the testing there or what the doctors said. I hae been told I was diagnosed with ORGANIC BRAIN DISORDER; LEFT TEMPORAL LOBE SEIZURES.

It seemed to help some, but after a few years, it was no longer working, so now I am on NEURONTIN 600 mg, sposed to take 3 times a day. I usually remember to take it twice.

btw, the neurologist I see appears to be an idiot. He orders blood work, does EEG, and MRI's every year or so I guess. Just says everything is fine........I dont know what that means?

He sent a letter to my primary care physician that I should continue on the neurontin and the klonepin but did not actually prescribe them himself.

btw, I have had insomnia most of my life, but am some better with that since I have had the Cpap machine. I have a deviated septum (collapsed nostril) so........no wonder i had a hard time breathing through my nose to sleep.

Any suggestions?
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