Can anyone describe their symptoms of a simple partial, temporal lobe seizure?

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MICHIGANMA64NANA
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Date Joined Jan 2013
Total Posts : 3
   Posted 1/27/2013 11:44 AM (GMT -6)   
Related to migraines: I have had them off and on for most of my life. I rarely have them anymore however. All I can say is ....prayer. When I did have them regularly, they would last several days. I could not stand light, sound, or movement.

Also, I do not drink alcohol in any form; I do smoke cigarettes about a pack a day (i make my own with pipe tobacco which saves a lot of money), and do absolutely no drugs that are not prescribed or street drugs including marajuana.

I do use glucosamine chondroitin once in awhile for joint pain and it really does help. I have fish oil, etc, but seldome remember to take them. I am on 50,000 units of vitamin D per week, plus liquid vitamin D, 1 t. per day. My vitamin D is still very low.

Forgot to mention that I also have chronic gastritis and some damage to my esophogus according to specialist for that. I take something for my stomach that has a long name I can't remember. I seldom take it.

Although I believe in Jesus as my Savior and am content that I will go to Heaven when I die, I do have anxiety (diagnoses with PTSD from childhood trauma and spousal abuse) although I do not appear to be anxious to other people.

In my 30's, I was a very controlling person, wanting my environment to be organized and worked hard at that. I also worked and went to college while raising 5 children by myself. By the time I was 40, I had lost control of my bowels, ended up in the hospital, told my colon was really bad, and that I also had CFIDS (Chronic Fatigue Immune Deficiency syndrome). I was completely helpless for about a year.

I am still mostly bed ridden, but most of it is just complete exhaustion most of the time for no reason. Pain is debilitating as is the anxiety. Mental confusion is frustrating as is my lack of easy communicating which I used to have. I have a very large vocabulary but regularly lose track of where words are that I need and i regress to using words that a grade schooler would use to talk.

My doc said it is similar to alzheimers what I ahve except taht it is ot consistent......some periods are very clear others are like looking through a fog and tehn there is the periodsof "nothing", blank.

love200
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Date Joined Feb 2013
Total Posts : 2
   Posted 2/24/2013 3:44 PM (GMT -6)   
Hi Ginny. i am 27th and from birth to now i have had temporal lobe epilepsy. Never knew that i had it and i wished i never had. it is hell. I get funny tastes that have gone. feeling that something bad is going to happen or that i feel that i have seen things but from in another life. very tired and fed up don't seem to be finding the right tablets. i just wished i would die or be killed. no one another stands. so ready to go.

SteMan
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Date Joined Apr 2013
Total Posts : 1
   Posted 4/17/2013 10:52 AM (GMT -6)   
Hello everyone,

Since my late 20's I have been getting these strange episodes. I've never spoke about them to anyone because they never really worried me, plus I never really knew how to describe them. I guess the only word I had at the time to describe them to myself was ‘euphoric’. They never happened that often, I would have 2-3 within a few days then nothing for months and it was like that up until I reached my 30’s when they seemed to just stop and I actually forgot about them as time went on.

So I got to my mid 30’s without any episodes… then it came back… and a little stronger. The first one happened at work. It came from no were, there was no warning. I was sat at my desk when this sudden sense of anxiety swept over me like a wave of cold air, again almost euphoric. I remained still and focused on my computer monitor when a huge feeling of familiarity gripped me. I felt like I could snap myself out of it, but something wanted to keep me there until it was over. Colleagues voices seem distant even though they are only sat a desk away; activities are still going on around me, giving me an intense feeling of familiarity. It doesn’t seem to feel like it has happened before, more like I knew what was going to happen a split second before it does. It seems as though I have a smirk on my face, as if I’m enjoying the experience, yet at the same time that sense of anxiety remains… or is it fear? The feeling then slowly washes away, I feel a little drained and nauseous, so I get up to go outside for some fresh air… the rest of the day seems strange.

I am now 42 and haven’t really had any since until last week, very similar to the above. So I decided to research the internet this time (not a good idea sometimes). I just wanted to know if I could find anything, and here I am discovering that other people have these symptons.

kingo
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Date Joined Apr 2013
Total Posts : 1
   Posted 4/24/2013 1:10 PM (GMT -6)   
I'm glad I found this thread. I just read the last post before mine, from SteMan, and am pretty amazed at how similar that description is to what happens to me, and how I've experienced this. I've never been diagnosed, never told a doctor because they've never seemed very serious. I am not sure I had them until about 2 years ago when I exchanged similar-sounding stories with my younger brother, and he told me he thought what he was having was something called Simple Partial Seizures. I know I had them around then; prior to that I would get very brief periods of feeling disconnected and unreal, along with a feeling that I was experiencing something I'd experienced before; I usually just called the experience Deja Vu. It was only recently in talking with some other people that I've discovered that what they call Deja Vu isn't really the same thing. To me it's always been a strong sense that I'm re-living something exactly that I've experienced before. To others it's just maybe any general sense of familiarity.

More recently though (I'm 41 now,) I've begun to have other feelings associated with these events. They start as a sort of euphoria, and then within a few seconds I begin having a series of mental images/experiences that, inevitably, I find it impossible to adequately describe afterwards. It's like there's another set of visuals super-imposed on top of what I'm actually seeing. Sometimes it's less severe, where it's like I'm experiencing a deja-vu like feeling while remembering, rapidly, a series of things that it seems, at the time, as if I've actually experienced. But as the feeling passes it seems that all of the things I'm remembering may never have actually happened. At the end I am left feeling tired, a little nauseated, and spaced out.

Szul_35
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Date Joined May 2013
Total Posts : 2
   Posted 5/9/2013 4:13 PM (GMT -6)   
I have partial seizures in the left mid-temporal region. I have many symptoms, but I'm not sure which applies to this, and which applies to the seizures? I get very disconnected. It's almost like watching a television, except I'm actually there but I might as well not be. I just seem dazed and lack personality during and after an episode. I have migraines afterward. These are my main symptoms, but there are many more that come along with it.

Breath13
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Date Joined May 2013
Total Posts : 1
   Posted 5/27/2013 8:53 PM (GMT -6)   
I am 31 year old male who just began experiencing seizures over the past 6 months after a potential brain injury. I'm am currently in the hospitol awaiting further tests. My last experience that landed me here happened like this: I was talking to friends in my lodging quarters with multiple beds when I began to feel strange. I walked over and sat on my bed. I became somewhat confused and was approached by friends asking questions about something trivial. Their line of inquiry seemed accusatory and confusing. Soon I understood nothing. I then became completely unaware of the external world. I maintained conciousness internally but no longer maintained my identity. I became mearly a witness. All of existence became one point of light racing forward on a black or infinite void background. Mine was a Birdseye view of sorts. Almost as one line on an EKG monitor screen. The point would expand and pixelate like a screensaver pattern and contract back to a single point, forward moving. The contractions felt discomfort and expansions felt relief. I could not voluntarily form thought. However, notions would occur to "me". I recall durring a point of discomfort the notion "better this than absolute nothingness" I experience a notion to press on. Suddenly at an expansion of the point, my conscious is in free fall as if skydiving. An intense flicker between seeing, and not begins. As if holding my eyes open I become aware that I am not falling but walking or standing. Is it wind? I see in front of me a form. I become aware it is a person. I become aware that it is speaking. I become aware that I have been screaming steadily. The person is directing speech towards me. I become aware of speach and attempt to form words from the scream. I feel I am being born as an adult, into some reality. The flickering has slowed and all but stops. On an off flash I am back in this world. Maybe on the floor or bed. I see people I recognize. I become aware that they are human, with developed personalities and speach. I scream but likely in my head. I become aware that I am a person. I become aware that I am not capable of developed speach, character or personality. Contrasting to them I consider myself retarded in all aspects of function and absent of character. I wield the scream untill it becomes what feels to be my first word(s) ever. Long and drawn out, each word hard to form: What. The. F**ck. suddenly I am being restrained on the floor. How did I get on the floor? I stand up and yell them off of me. I can now speak and state my case. "Get away, I've done nothing wrong!" EMS arrives. They question me. I raddle off name, social sec #, and b-day. Again they ask in the ambulance. I respond with my name. At this moment I realize I am that person but am a stranger to his life and character. I think" I guess that's who I am in this place" I felt I am so much more than him though. We arrive at the hospitol. I puke everywhere. I'm tired as hell. I sleep intermittently. They hit me with 1000mg dose of Dylantin. It feels like cement going into my veins. The pain brings me fully aware of who I am, where I am, what has happened. I no longer feel uncomfortable in my body. I am me again.

Freethinker_
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Date Joined Jul 2013
Total Posts : 1
   Posted 7/1/2013 5:41 PM (GMT -6)   
This is a great forum and I can relate to some of the symptoms described here, especially Steman's. I had yet another 45-60 second seizure a couple hours ago and while trying to find anwers I found this site.


A bit more about me. When I was 9 years old I had a concussion in a sporting accident and was in a coma for about 24 hours. It took a few weeks to fully recover from that and from then on I never had a problem, living the life of a typical kid growing up; even playing robust sports like hockey, football, and rugby. Then when I was in my mid-20s, I started getting these shakes every now and then, maybe once or a few times a year. I never thought much about it thinking they were one-offs at first. However, they have sinced varied in occurence and generally they come in spurts. I can go weeks or months without one and then at other times I can get a couple in one day...


The common threads or symptoms that I can derive from every episode follow a sequence like this: First, I could be doing anything in any setting, the shakes do not discrminate; however, something, a thought or a casual event, will trigger a sense of deja vu and with it comes light-headeness and increasing anxiety as I try to rationalize the thought or what is going on. It's like trying to solve an unresolved problem it seems. This struggle of "rationalizing to cease the anxiety" gets worse as no matter what, once deja vu is experienced, the shakes slowly begin and will run their course. So I brace and let it run its course. My whole body doesn't shake, but my left arm really firms up and shakes... If it were arm wrestling, I could prob beat Schwarznegger... Also, it seems I have to control my breathing and my heart pumps faster and harder obvisouly due to my muscles contracting... Then after a while, I feel I can get on top of it and regulate my shaking and breathing and it slowly dissapates and I feel like I am relieved, like the feeling after a good workout...


I will alawys have a minute's notice before the episodes occur, which is the deja vu phase. The actual seizures usually last 45-60 seconds and most I feel I can "control" quite easily and let it run their course whereas on rarer occasions, some are very tough to endure and it's a struggle to keep consiousness it seems... Knock on wood, for 12 years now, I've always been able to "shake them off"...


I've been to several doctors trying to figure out if it was a physical thing or perhaps psychological. None were able to diagnose it either way, even with EEG and MRI tests... I was recommended to start anti-epilepsie meds but refused without a clear diagnosis. Moreover, reading this I now know that there are two kinds of seizures, the Simple Partial variety which I can really relate to. Perhaps the diagnositc mystery is solved... What next I wonder?

All the best to everyone

nslady1
New Member


Date Joined Aug 2013
Total Posts : 4
   Posted 8/19/2013 2:00 PM (GMT -6)   
Hi Ginny if you're still there
my mom has what the GP thinks are seizures.  From my research they sound like simple partial seizures.  She's 80.  We're french speaking people.  We speak french at all times.  So, we're there talking to each other fine and all of a sudden she puts her hand up to her nose and goes "oh my god"  She changes to English and tries to tell me something.  She doesn't realize what she said afterwards.  It makes absolutely no sense. And she doesn't recall it afterwards.  She says she has this sense of deja vu and she feels like the people on the tv are telling her something.  Or if the radio is on it's the radio.  She's been having them for 2 years now sometimes 2 or 3 times a day.  Last winter they stopped for the whole winter.  It's all over withing 10 or 20 seconds.  It leaves her feeling very tired and weak.  At first she got an awful fear that came with it.  The doctor put her on some form of diazapam.  It's Clonazapam I think.  They just make her groggy.  They don't stop these episodes.  So I've been reading up on CBD which is derived from cannabis.  We'll be trying this before we go see a neurologist and he tries all kinds of potent drugs on her.  She otherwise physically healthy and independent.  It's very painful to watch her lose her independence this way and not be able to help.  She drives but is too groggy these days to take a chance. I will let you know how the CBD works

SunnySkyJan
Regular Member


Date Joined Aug 2013
Total Posts : 38
   Posted 8/20/2013 6:32 AM (GMT -6)   
Hi nslady1---Has she had any MRI's or CT Scans? I have epilepsy that never started till I was 31 and I'm now 65. I have to go back to my neurologist next Tues to see if it has grown back...oops...I forgot to tell you, Brain Tumors...if another one...this will be #4!

nslady1
New Member


Date Joined Aug 2013
Total Posts : 4
   Posted 8/20/2013 7:10 AM (GMT -6)   
Hi SunnySkyJan, thanks for replying.  Yes, she's had an MRI and CT scan.  Both came back ok.   I was a little scared of that too.  You'd think something would have shown up in at least one of those tests.  He couldn't give her the dye for the MRI because of her kidneys. 
nslady1
 

nslady1
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Date Joined Aug 2013
Total Posts : 4
   Posted 8/20/2013 7:15 AM (GMT -6)   
hello again SunnySkyJan,  I'm sorry for being so self-absorbed.  I hope everything turns out well for you. 
nslady1

SunnySkyJan
Regular Member


Date Joined Aug 2013
Total Posts : 38
   Posted 8/20/2013 10:06 AM (GMT -6)   
hi again...lady! Never feel self-absorbed. We all have our crosses to bear! I am one of those that can handle anything, and I appreciate it with those that do post!

angilar
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Date Joined Mar 2014
Total Posts : 4
   Posted 3/17/2014 9:13 AM (GMT -6)   
Hi there, I have simple partial seizures and have had them for years it's so weird trying to explain them or even to accept you're having a "real" seizure.. so my seizure are sense of deja vu or jamis vu (I may have spelled that wrong, I just started keppra last night and I'm not quite right with my memory) I get a very chemical taste/smell then I have a series of memories that I can't place and never make sense and they are sometime the most ridiculous things.. It all happens in seconds but there is so much going on in my head it feels like an hr. I never lose awareness and aside from my confusion no one can tell I'm having a seizure. This affects my memory greatly too. I remember the seizures and what's going on around me but I lose entire chunks of time and vacations and people I've met things I've done just disappear from my memory usually stuff within the last 15 years or so but nothing recent aside from the normal scatter brained stuff that happens.. I know I sound insane. Another thing that happens aside from memory trouble is I forget words a few hours before the seizures and for a few hours after. I often have to stop what I'm saying and change what I wanted to say because even if I remember the word I can no say it. It will not come out of my mouth.. I don't know if this was any help to you at all I know everyone's seizure are different but feel free to email me w any questions okangi@yahoo.com
--Angie :)

*Shawn*
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Date Joined Mar 2014
Total Posts : 1
   Posted 3/31/2014 11:15 PM (GMT -6)   
Can anyone relate to me? I would like to describe my seizures and see if anyone has had similar episodes. If you do please share, thanks in advance.

I am a 40 year old, male, healthy otherwise. Starting about 14 years ago I had times of confusion, not able to find words when speaking, problems reading and writing that lasted for 10 seconds up to a minute. I dismissed this for years until things got worse.

The episodes would be more intense and more frequent. By then the events would cluster into having seizures lasting 10 seconds up a minute sometime for 5 minutes coming and going for few times a day. These clusters would come and go for 2 or 3 days and may not happen again for weeks even months.

As things got worse I would experience nausea where I would want to vomit, this was the onset of not being able to understand someone speaking to me, or able to find words when talking to someone, not being able find words to write or read. I would simply walk away from a conversation or try my best just to end it. I could hide it very well. After the seizure I would become extremely tired and still do. This occurred for a few years until I had a seizure that put me in the hospital. That was the only major seizure I ever had. At that time is when I was put on Keppra. I still experienced seizures.

In the time since I have taken 4 other medications with Vimpat being the most successful. I have seen 4 different neurologists. Have had 4 EEG's, 3 MRI's. I still experience these seizures but they are not any better, they are more intense and frequent. The only positive thing I can say is that the sensation of wanting to vomit has decreased, but still occur. My memory has decreased to the point my wife notices it and have problems remembering planned dates. I have to write things down constantly so I don't forget appointments. I sometimes, not often, have problems remembering conversations that occurred a few weeks or months back.

People don't seem to think I have a seizure issue because I am good at hiding it. My motor skills are not affected, they seem to think if I am having a seizure I should be laying on the ground or something obviously wrong. No one seems to understand. I look normal, act normal, motor skills are as good as any 40 year old can be, even during a seizure.

I want to make them obvious so people will understand when I am having a seizure. By this I mean saying to them "Give me a few minutes, I am having a seizure", But then I am afraid they will want to call 911 or come running, or calling for help, When I Don't need it but just a few minutes to recover.

I have an appointment with a surgeon in two months, but I don't think the risk is worth the reward. I function well physically, can read fine, my writing is okay (has never been real good), my memory has gotten worse, but not sure with aging a bit. I do want to get rid of the seizures, but I am having a hard time worrying with the surgery.

They have located the area of the brain that is affected. It's been there since birth. It's just a 2 small pea sized "gray matter" parts of the brain that are relatively deep in the frontal lob. My neurologist says I am a perfect candidate for surgery because medications have not worked well. He says there is about a 70% chance for me to be seizure free. I am afraid of memory loss, losing motor skills, making things worse then they are

Can anyone relate to me?
Shawn

angilar
New Member


Date Joined Mar 2014
Total Posts : 4
   Posted 4/8/2014 10:00 AM (GMT -6)   
Hi Shawn.. I can completely relate. This is very similar to what I experience with my seizures I described them in the post right before yours. It is such an odd feeling and the keppra seems to be helping, Is the only drug that has offered any relief at all, I've tried several medications and some side effects of the others were horrible, namely Dilantin. I also feel like people don't seem to think I have an issue with seizures and while these seizures seem to be far less physically damaging than a grant mal seizure, the mental assault that happens during a seizure is horrible, I keep losing more and more memories and words and have started to stutter some days all day long then I'm fine again, I feel like a lunatic, but I too am super good at hiding it and quickly ending conversations so I can get away so some people really think there is no problem at all or maybe I'm exaggerating and making things up, thankfully my Dr.s have been great and understand this specific seizure so I don't feel as crazy explaining it the them. Good luck Shawn.I sooo can understand what you are going through.

angilar
New Member


Date Joined Mar 2014
Total Posts : 4
   Posted 4/8/2014 10:20 AM (GMT -6)   
Also Shawn.. I was talking to my Dr.s about surgery but I decided that I would not do it because of the risk with them open I g up my head, however yours being right there in he grey matter area maybe it would be worth it, they know exactly where they are going and exactly what to remove. It May be worth a shot depending on how extensive the surgery would be?? What are your thoughts on it? And how invasive will it be?

DH47
New Member


Date Joined Apr 2014
Total Posts : 6
   Posted 4/18/2014 12:33 PM (GMT -6)   
Have been taking 300 mg of Dilantin. No problem other then several side effects until last week then 2 either partial or absence seizures. I remember nothing, now Dr. Wants to up to 400. Daily. I told him I tried that before and the result was stumbling around slurring words. Anyone had similar effects from Dilantin?

angilar
New Member


Date Joined Mar 2014
Total Posts : 4
   Posted 4/21/2014 8:00 AM (GMT -6)   
DH47... I was on emulating for years and was fine but the levels wouldn't stay stable in my blood so they upped my dose over and over again until I was a zombie.. then I had to just go off of it incessant even able to live, every month higher and higher.. it was awful. I'm on keppra now and it's great. Tegratol wasn't too bad but dilation was awful
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