Having an awful time tapering off of Frisium (clobazam) I need help!

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 1/9/2007 11:34 AM (GMT -7)   
HAs anyone tried tapering down their doseage or tapering off of a benzodiazapine before?
 
I'm having wicked, wicked withdrawal symptoms, and they're getting worse, not better.  I haven't gone down on the dose for 2 weeks now, and I'm feeling worse not better. I'm supposed to taper off 5mg a week.  But it's way too fast.  So I'm slowing it down. I've been on Fisium for almost 5 years now.  EEK.
 
Any help or advice would be so much appreciated.  I'm very emotional with this too.  It's just a nightmare...
 
Thanks a bunch,
 
Ginny

If you have experience with any type of benzodiazipine drug please help me.  Thank you....


"Thank you God for the storms that blow me right into your arms!"

Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(stroke),Sjogren's, Raynaud's, seizure disorder, libman sach's endocarditis, vasculitis, sacroiliitis, Neutropenia, thrombocytopenia, food allergies
Prednisone, Imuran, Coumidin, Clobazam, Amitriptyline, micronor, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Acidophilus

Post Edited (ginny) : 1/9/2007 6:46:54 PM (GMT-7)


Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 1/9/2007 7:27 PM (GMT -7)   
Hey Ginny.. have you talked to your Neuro about this? Did s/he mention any of the side effects of tapering down? If you have been on it for 5 years, why are you getting off of it now? Hang in there and let us know how you are doing..
Moderator of Arthritis/Epilepsy Forums
Temp Moderator of Bi-Polar Forum
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 1/9/2007 10:09 PM (GMT -7)   
Hey Ducky, thank you for responding.
 
Yes, my neuro is aware of this, however, he never called me back to talk to me today.  So I'm stuck taking this med tonight and feeling terrible again tomorrow.  I wasn't told of the side effects.  Just given a schedule to follow.  I found out the side effects on the internet and well, by experience!!  But I'm having withdrawal symptoms that don't show up on any lists.  That is what concerns me so much.  I'm not supposed to have depression.  I have major depression. I'm just plain scared now...... 
 
I do have an appointment to see my family doctor tomorrow afternoon.  Thank goodness!  So she will have some great advice for me.  She's amazing!
 
I'm coming off the Frisium because my body has become tolerant to it.  It no longer stops my seizures. So they want to see how frequent my seizures actually are and do an EEG and video of my seizures.  There is a strong possibility that my seizures are actually something else mimicking a seizure.  I have so much going on with my lupus that it could be a lupus problem I have and not a seizure disorder.  It's complex!  I don't even fully understand it.
 
I'm down to 30mg a day from my original 40mg.  I'm into week 3 of the taper.  I can't go any faster.  I'm crippled by the dizziness, drowsiness and depression.  It's just really weird.
 
Thanks Ducky, I will keep you posted and I'll probably have more questions for everyone.
 
Ginny 
"Thank you God for the storms that blow me right into your arms!"

Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(stroke),Sjogren's, Raynaud's, seizure disorder, libman sach's endocarditis, vasculitis, sacroiliitis, Neutropenia, thrombocytopenia, food allergies
Prednisone, Imuran, Coumidin, Clobazam, Amitriptyline, micronor, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Acidophilus

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 09, 2016 6:09 PM (GMT -7)
There are a total of 2,735,595 posts in 301,318 threads.
View Active Threads


Who's Online
This forum has 151422 registered members. Please welcome our newest member, Gabor88.
259 Guest(s), 10 Registered Member(s) are currently online.  Details
Nana 2, Bololidat, Rikky1, Girlie, Dyna1, U B Tough, blksteeda, exqualls, Noni9, multifacetedme


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer