Hello, Im new here.

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gina94stang
New Member


Date Joined Feb 2007
Total Posts : 2
   Posted 2/1/2007 11:27 PM (GMT -7)   
Im new to this site. I was officially diagnosed with epilepsy back on jan 5th 2007. But Ive been dealing with this since august of 2006. Ive been mis diaganosed with everything from vertigo to a cancerious brain tumor on the back side of my brain! So in a way I was glad I finally got a REAL answer to my problems!! The only bad thing now is, is that my nuero cant seem to control my seizures. I know its still in the early stages of it, but im so frustrated with it already!!  I have two beautiful baby boys, ages 2 and 1/2 and 4 and 1/2, and I cant take care of them!  Im their MOM and this stupid disease is stopping me from being there for them they way I should be! Im constantly depressed about EVERYTHING in my life! I lost my drivers license on jan 5th... the day I found out I had epilepsy. Thats also the day I lost my job I LOVED!!! I got fired because I lost my license! (Im trying to track down a lawyer that will take my case on that BTW! LOL!)  Heres a list of the meds im currently on....
 
topamax 200mgs~2xs a day
keppra 1000mgs ~2xs a day
folic acid 1mg~1x a day 
Xanax 5mg~2xs a day
floricet tab ~50mgs every 4 hours
Maxalt-MLT~10mgs as needed 
 
I go back to my neuro this monday so im sure its liable to change. Im still having a seizures here and there. I was perfectly healthy up until last August and then boom....now here I sit. They dont know how it happened. I didnt have any kind of head injury or anything like that. I havent even been told what type of seizures I have yet. about 2-3 weeks ago they started getting really bad though. Ive started going completely unconscious and having convulsions, drooling, jerking, the whole nine yards. And they usually last anywhere from 3-5 minutes to 20 minutes and seem to get worse every time I have one. Ive had 2 EEGs and they have both been very abnormal. I just wanted to introduce myself and say that Im sooooo glad that I found this site!! I spent like 4 hours reading forums last night and decided to register! LOL! BTW... My name is Gina, Im 25 years old, Im married to a wonderful man ( he has to be, to be able to put up with my crap! haha!), We are from Kentucky, And Im looking forward to getting through this as soon as possible so I can get my life back to the way it was before!  Well, thanks for listening to me rant and rave about my problems!! 
 
-Gina

Ducky
Veteran Member


Date Joined Mar 2005
Total Posts : 3199
   Posted 2/2/2007 6:00 AM (GMT -7)   
Hey Gina -

First off, welcome to Healing Well, we're so happy to have you! What has your neuro said about any of this? Does he know that your seizures have changed lately?

Where in Kentucky are you from? My husband is from there and he stil has family there, is such a beautiful state! Hang in there, and keep posting.. we'll be here for ya!

Duck
Moderator of Arthritis/Epilepsy Forums
Confirmed Diagnosis of - Psoriatic Arthritis/Spondylitis/Graves Disease/GERD/Scoliosis/Hiatal Hernia/Graves Disease of the Eyes/Chronic UTIs
Current Meds -  Enbrel/Prevacid/Synthroid/Nitrofurantoin
Past Meds - Inderal/PTU/Prednisone/Voltaren/Feldene/Mobic/Cortisone and Steroid Shots
Additional Supplements - Multi-Vitamin/Bromelian/Acidophilus/Green Tea
 


browneyed girl
New Member


Date Joined Jan 2007
Total Posts : 6
   Posted 2/3/2007 1:15 PM (GMT -7)   
Gina94stang
 Sorry that this is happening to you. Please know that it does get better. i know it is so hard not to be able to drive. I feel the same way about not being the mom I would like to be for my kids. Kids should not have to have a sick mom. I have learned that it has built character in my boys like nothing else could, People comment alot about how compassionate my kids are. They ask what I did to instill it in them. I respond "I got really sick" . Your kids will react differently now to others who are ill or not able to do as much as everyone else. They will be more willing to help out.  Good will come of this! Look for all the good. try not to waste energy on what you can't do but what you can. I can hardly believe I'm giving this advice because it took a long time for me to live that way. It was a whole new freedom when I did. Praying for your healing and all the answers you need.
Browneyed girl

gina94stang
New Member


Date Joined Feb 2007
Total Posts : 2
   Posted 2/3/2007 10:52 PM (GMT -7)   

Thanks for the welcome!  I have a neuro appointment this monday at 10am. He does know about all the new seizures ive been having and how severe they've been. Between me and my husband, we keep him well posted on everything. But at my appointment on monday im going to go over EVERYTHING with him. I want him to know about all the side effects ive been having on the meds, about every tiny detail that happens before, during and after my seizures, and so on and so on. The last phone conversation I had with him with, which was about a week ago, he mentioned something about swithcing my meds around. Im kinda scared to do that though. I hate having seizures and I dont want to provoke them in any way, but then again, maybe switching my meds might actually help. Im just so lost and confused on everything. I feel like a big baby!  I know you (browneyed girl) mentioned that it gets better...and Im sure that it does because everything usually works out. Its just the waiting period thats soooo hard to deal with... and at this point I just dont feel like I have the will power or the "umph" to look ahead. Im sure its just from my meds, but im just so depressed about everything. Which this is also another thing that im bringing up monday at my appointment.  I might feel a little better if I knew exactly what "type" of seizures/epilepsy I have. I just so new to this all of this and its so overwhelming and I just dont know where to begin with anything. Thanks again for replying to my post!

Oh and Duck Im actually from louisville ky. I live about 20 minutes south of there now. What part is your husband from?  

 

-Gina


browneyed girl
New Member


Date Joined Jan 2007
Total Posts : 6
   Posted 2/4/2007 9:44 AM (GMT -7)   

Gina,

I'm so glad to hear you are going to tell the doc everything. Sounds like you have a good man(your husband) keeping an eye on you. Remember it is tough on him too. At times I took my frustration out on my man when I couldn't make sense of it all. Later the guilt of that always made everything else worse too. Try to see all the ways he is helping and that he wants a answer too. Try to look at your time of not driving as extra time given to you to spend with your boys. Take naps with them too. I did discover that watching TV made me feel worse, headaches and nausea. Live each moment to the fullest. I know it sounds just like words but it does help if you look outside yourself and not inside. Check if there are any women Bible studies in your area. I'm sure they would be glad to pick you up and they probably have daycare for the boys. One more thing please be sure to tell your doc you are feeling depressed.

There are some great medicines that help. I know. Write down everything you want to tell the doc. Just give him the list. It gets pretty depressing just having to tell it all over and over again. Good luck at your appointment tomorrow! 


CAMELIA
New Member


Date Joined Feb 2007
Total Posts : 2
   Posted 2/6/2007 9:33 AM (GMT -7)   
GINA, I TOO AM NEW TO THIS SITE BUT FOR A DIFFRENT REASON. MY 5 YEAR OLD SON (THE BABY OF 6), WAS DIANOSED IN JAN AS WELL. HE TOO WAS THE PICTURE OF PERFECT HEALTH UNTIL NOV. WE DON'T KNOW WHAT KIND OF SEZIURES YET EITHER, AND THAT IS FRUSTRATING SINCE IT'S THE FIRST THING EVERYONE WANTS TO KNOW. I AM FRUSTRATED BECAUSE AS A MOTHER OF 6, I AM A LAID BACK, HAPPY GO LUCKY, KIND OF MOTHER, UNTIL NOW. I AM ALWAYS NERVOUS,WORRIED THAT HE WILL HAVE ANOTHER SEZIURE. I AM CONSTANTLY CHECKING HIM IN THE NIGHT, I FIND MYSELF BEING VERY OVERPROTECTIVE, AND THAT IS NOT MY PARENTING STYLE AT ALL. HE I CURRENTLY TAKING TRILEPTAL 3 TIMES A DAY, AND HAS ONLY HAD A FEW LITTLE SEIZURES SINCE. HE HAS A FOLLOW UP THURSDAY, AND A MRI SCEDULED FOR LATER IN THE MONTH. AS A MOTHER I UNDERSTAND YOU FRUSTRATION about NOT BEING WITH YOUR CHILDREN THE WAY YOU WANT TO BE, BUT ITS NOT EASY BEING HEALTHY AND SEEING THEM SUFFER INSTEAD. I WOULD TRADE WITH HIM IN MINUTE JUST TO KNOW HE NEVER HAD TO DEAL WITH THIS AGAIN. HOPE ALL WENT WELL WITH THE DOCTOR YESTERDAY. LET ME KNOW, I WILL KEEP YOU IN MY PRAYERS. TELL THE HUBBY HOW ENCOURAGING IT IS TO HEAR about A GOOD HUSBAND, AND A FATHER ONCE IN WHILE, SINCE NORMALLY THEY GET THE CRAPPY END OF THE DEAL. I AM FROM SC, AND HAVEN'T MET ANYONE HERE YET WITH A SIMALAR SITUATION, SO IT'S GREAT TO MEET YOU.
BUSYMOM

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