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CAMELIA
New Member


Date Joined Feb 2007
Total Posts : 2
   Posted 2/6/2007 11:24 AM (GMT -7)   
I AM HAPPY TO BE PART OF WHAT SEEMS TO BE ONE BIG LOVING FAMILY, WHO CAN ALL RELATE IN SOME WAY TO ONE ANOTHER.  MY 5 YEAR OLD SON WAS DIANOSED IN JAN WITH EPILEPSY.  HE WAS PERFECTLY HEALTHY UNTIL NOV, WHEN HE SUFFERED HIS FIRST SEZIURE(AND ALMOST PUT ME INTO CARDIAC ARREST).  AS A MOTHER OF 6, HIM BEING THE BABY I COULD HAVE SWORN I HAD SEEN IT ALL,...WRONG!  HE IS CURRENTLY TAKING TRILEPTAL 3 TIMES A DAY, AND SEEMS TO BE DOING WELL.  ONLY A FEW LITTLE ONES SINCE.  WE DO NOT YET KNOW THE TYPE OF SEIZURES SO FOR LACK OF A CORRECT WORD I SAY LITTLE ONES.  I AM A LAID BACK, GIVE MY KIDS FREEDOM TO BE KIDS, KIND OF MOM.  SINCE NOV I FIND MYSELF BEING OVERPROTECTIVE, UPTIGHT, AND SLEEP DEPRIVED.  ANY ADVICE?  DOES THE FEAR EVER GO AWAY, OR AT LEAST GET BETTER?  HE IS THE MOST LOVING, INDEPENDENT,  CURIOUS, TYPICAL BOY, I EVER MET.  I ONLY WANT HIS LIFE TO BE AS NORMAL AS POSSIBLE.  I WANT HIS PERSONALITY, AND ACHIEVMENTS TO DEFINE HIM, NOT THIS DISEASE.  AM I BEING UNREALISTIC BY FEELING THIS WAY?  I FEAR THAT I AM SO CONCENTRATED ON HIM RIGHT NOW THAT I AM DEPRIVING MY OTHER 5 OF WHAT THEY NEED, AND DESERVE FROM ME.  IT'S HARD ENOUGH TO KEEP UP WITH ALL OF THOSE NEEDS WITHOUT ADDING FEAR, AND WORRY TO THE GAME.  THANKS FOR READING, AND I LOOK FORWARD TO HEARING FROM ALL OF YOU SOON.

BUSYMOM


shauni31ca
New Member


Date Joined Feb 2007
Total Posts : 17
   Posted 2/26/2007 3:00 PM (GMT -7)   
Hi. Believe me I know the feeling. I have epilepsy, and my 10 year old daughter was recently diagnosed. I feel incredibly guilty because apparantly she inherited it from me. See, when I was diagnosed they figured it was because I was born 3 months premature. My ex husband is furious at me and blames me. It's normal I think to be worried and overprotective. I don't know how serious his epilepsy is, but I can say from my experience, that when I am on meds, I live a very normal, uneventful life. In school I was always on the honor roll, looking at me you would have never known. My parents, though concerned, never made a big deal of it so I never gave it much thought (though it is different now that I know my daughter is, I can be a bit of a freak) Good luck to you and your son, you sound like a wonderful mother (and very busy with six?! children) and hopefully as the meds continue to work it will help put your mind at ease.Make sure to try to take care of yourself and most of all don't be hard on yourself. It sounds like your doing a wonderful job!  Shawna
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