tracking seizures

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Loreskald
New Member


Date Joined Feb 2007
Total Posts : 4
   Posted 2/23/2007 11:24 AM (GMT -7)   
Has anyone heard of this software? EpiTrax? www.neomedsoft.com.

Is it good? Does it work? I've had CP seizures for over 20 years and have had no luck tracking my seizures.

Twig2K7
New Member


Date Joined Apr 2007
Total Posts : 3
   Posted 4/12/2007 8:02 PM (GMT -7)   
A quick review from a beta user.

I gave the EPITRAX beta a good try.  While I found it to be an improvement over some of the calendar based tools, at the end of the day it's it seems to be a glorified electronic calendar with charts.   Unfortunately, it leaves a lot of the interpretation up to the patient.  The charts are cool, in that they show you what events happened around your seizures.  However, they don't analyze what components of your activities might have caused the seizures.    So basicallly, I was able to see the same proximity of events from my manual calendar log.

On a more positive note, my brother in-law is a doctor at U of M in Ann Arbor Michigan.  He just returned from a conference where he saw a sneak peek of a product called Trigger Point, that he thought was very promising.

From what he was told, it was being developed by a team of doctors, patients and nutritionists and apparently analyizes everything about your activities included the potential chemical triggers in the food you eat.   It's not just for Epilepsy, appartently they have modules for Diabetes, IBS and other chronic medical conditions.   Apparently this even has voice interaction and sounds like a human.....god help us!  :)

It is apparently pretty hush hush right now, but they indicated that it would launched within the next couple of months.   He said he would keep me posted and I will do the same for all of you.

Regards,

Robert

djdaz_1985
Veteran Member


Date Joined Jan 2006
Total Posts : 2408
   Posted 4/13/2007 1:40 PM (GMT -7)   

hmmmm... It sounds like a computer is doing something that I already do! The only difference is, that I dont crash! tongue

I dont see the value in a piece of s/w that simply tracks events on a calendar. If there was some part of it that could analyse potential triggers based on surrounding events I would be more interested. But even then I would approach it with some skeptisism because I would do that too (With a little effort... And since im going to the effort of using the s/w I might as well do it myself and save the money!)

In short... It doesnt sound like my kinna thing


Everyone has a guardian angel. They help pick you up when you fall, comfort you through your times of need and help you appreciate the times when things are going well.


Loreskald
New Member


Date Joined Feb 2007
Total Posts : 4
   Posted 4/17/2007 8:36 PM (GMT -7)   
Hi all:

I actually beta tested the software and ended up buying it. The information it tracks on my seizures is pretty detailed. Plus, it allows me to keep track of the info that I think is useful. For someone trying out new meds, it would be ideal cuz it keeps track of seizure activity as it relates to your meds. It may not be for everyone, but Epitrax impressed me enough to buy it.

-L

Twig2K7
New Member


Date Joined Apr 2007
Total Posts : 3
   Posted 4/18/2007 3:48 AM (GMT -7)   

Greetings Neowolf,

So let me clarify my feeling about your software.  It is a good tool for entering and tracking life events.  You put a lot of thought into it and the charts are nice.   The price is very fair.  I do find the ease of use and screens to be a bit clunky and confusing, which I would be happy to send you more specific details on.  

I think the only negative point for the lack of a better term, I made was that the software only shows proximity of events surrounding your seizures.   Therefore, the patient is left to interpret what it is about those events that may be actual triggers.   By the way, this is the same shortcoming that a manual calendar or log has as well, so I'm not suggesting a better alternative.  After I have a Grand Mal seizure, it takes me days to get my wits back about me.  I find it difficult to focus on anything, let alone have the mental ability to dig into event data and try to analyze triggers.   

I don't see any other products besides Epitrax on your website, are there others?  I was interested specifically in something for IBS, which my sister suffers from terribly.

Thank you and again please understand my intent was to give an honest review which is certainly only my humble opinion. There was one other forum that I posted my opinion in and I would be happy to post this clarification there as well.

Robert

Reason for edit: Discussion regarding the pro's and cons's is fine but if there are personal issues to be dealt with it would be best to do this outside of the forum, such as by email.

Post Edited By Moderator (djdaz_1985) : 4/19/2007 12:28:59 AM (GMT-6)


djdaz_1985
Veteran Member


Date Joined Jan 2006
Total Posts : 2408
   Posted 4/18/2007 11:36 PM (GMT -7)   

Neowolf & Twig2K7,

This should be a thread regarding the pro's and con's of the Epitrax software. We welcome everyones opinions regarding the software since there may be epileptics out there who are considering using it and want to intergrate it into their daily lives. However, the forum is not a place for personal discussions regarding the validity of another persons argument. This is why your post has been deleted Neowolf. If you have a personal issue you wish to take up with another user, might I suggest that email would be a better option next time.

If you are unsure of the Forum Guidelines, here is a link: http://www.healingwell.com/community/default.aspx?f=46&m=106997

Thank you for your support

Darren



Moderator - Epilepsy Forum
 
Everyone has a guardian angel. They help pick you up when you fall, comfort you through your times of need and help you appreciate the times when things are going well.


Twig2K7
New Member


Date Joined Apr 2007
Total Posts : 3
   Posted 4/19/2007 4:33 AM (GMT -7)   

Darren,

Fair enough...please accept my apologies.

Best regards,

Twig


djdaz_1985
Veteran Member


Date Joined Jan 2006
Total Posts : 2408
   Posted 4/19/2007 10:18 AM (GMT -7)   

Appology accepted. As far as im concerned this is the end of the matter.

Regards

Darren


Moderator - Epilepsy Forum
 
Everyone has a guardian angel. They help pick you up when you fall, comfort you through your times of need and help you appreciate the times when things are going well.

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