Walking during a seizure?

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Another Day
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Date Joined Mar 2007
Total Posts : 1055
   Posted 3/10/2007 2:51 AM (GMT -7)   
Have any of you ever walked during a seizure?  I did with the one I had last week with the flashing colored lights and the fog that kept passing before my eyes.   I walked into the kitchen and the numbers on the clock on the stove appeared to be moving. Are there hallucinations associated with some seizures?  Some body please  tell me I'm not crazy. 
 
Carla

shauni31ca
New Member


Date Joined Feb 2007
Total Posts : 17
   Posted 3/10/2007 1:24 PM (GMT -7)   
Carla, Dear you ARE NOT CRAZY!It is very possible to have siezures when you are fully consious, as I've recently learned. And yes I've had the same thing you descibed.See I always thought that in order to be having a siezure you had to be completely down and out shaking and convulsing. I recently discouvered I've been having focal, and simple partial siezures for years and didn't even know.(scary thought, I'm actually glad that I had a Grand mal siezure so that I could get the treatment I needed) I also thought I was going crazy. I wondered if I was having strokes, or if I had a tumer.Or maybe I was bipolar or everything under the sun.Are you taking meds? because since starting up mine again after many many years, I feel ALOT better!And I've had none of those feeling since.Please don't worry(about being cray) Take care

Another Day
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Date Joined Mar 2007
Total Posts : 1055
   Posted 3/10/2007 2:07 PM (GMT -7)   

Yes, I am on Topamax and Lamictal.  I was just diagnosed last summer and we are still trying to find the right medication for me.  I did have a few seizures as a child. I do have a great doctor at Vanderbuilt University Hospital.  His nurse is always available.  She gets with him and gets back to me by the next day if not that day.  So, that helps.

I didn't even tell my daughters that I thought I saw the numbers on the clock moving during that seizure last week.  They would really think I had lost it.  I'm 56 after all!

Thanks for helping me feel a little better!

Carla

 


shauni31ca
New Member


Date Joined Feb 2007
Total Posts : 17
   Posted 3/10/2007 8:41 PM (GMT -7)   
I've been lucky. Tegretol was my wonder drug when I was young and apparently still is now. I really hope you get it figured out.please let me know how you are doing OK?

andrew50
Regular Member


Date Joined Dec 2004
Total Posts : 93
   Posted 3/13/2007 2:21 PM (GMT -7)   

It does sound like you've got a great support team there, Carla. It must help a lot. A lot of people get to see a consultant once every few months and have to cope alone in between. So well done, Vanderbuilt Uni.

Your mention of hallucinations interested me, partly of an odd experience I had this evening. I'd just had a seizure - which in itself is depressingly familiar, especially the last few weeks. And I became convinced that there was someone or something beside me on the bed. (P.S. there wasn't.) It wasn't an actual visual hallucination like yours. I was just certain that there was something there, something very malevolent. I staggered out of the bedroom and it felt like this thing was following me. Fortunately the feeling only lasted about a minute and I was left with the usual, comforting post-seizure experience - not being able to speak properly for an hour.

I guess that when the brain goes haywire, anything can happen to the senses. When I still had grande mals I often 'heard' music just before passing out. Other people imagine strong smells. So you're not alone. The important thing is that they're linked to your condition, not your sanity. And, most importantly, they pass.

Andrew


Another Day
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Date Joined Mar 2007
Total Posts : 1055
   Posted 3/13/2007 7:32 PM (GMT -7)   
Andrew, Thanks for sharing your experience with me.  This forum has been really helpful to me.  At least now I know I'm not crazy.  At least not any more so than before I started having seizures.  I think I would prefer to be walking around with the colored lights and fog than feeling like someone is following me.  I am 56 years old and live alone and wouldn't have it any other day.  But, that episode was pretty frightening.  I could go and stay with either one of my daughters and several friends have offered to stay with me.  But I think pretty much all adult seizures patients want their independence and we don't know when we are going to have seizures.
 
Carla

RanMan
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Date Joined Feb 2003
Total Posts : 653
   Posted 3/13/2007 9:51 PM (GMT -7)   
Carla,
 
This sounds similar to a petitmal seizure that I get sometimes.
This is my own experience only so draw from it what you wish or maybe you can find some similarities.
 
I've had epilepsy since 1979, controlled by meds. I get a form of petit mal seizures that my Dr. calls "speech arrest". It only lasts a few seconds, I am aware of what is going on around me but I can't respond. When I try to talk, my speech is slurred (more than usual). Most people have no problem speaking but I have to concentrate to form every word. (all the time but twice as hard during a speech arrest). Everybody thinks I'm stoned all the time. Boy, I didn't realize that we take our speech for granted so much.
 
 Randy

Another Day
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Date Joined Mar 2007
Total Posts : 1055
   Posted 3/14/2007 3:48 AM (GMT -7)   

Randy,

Before I was diagnosed last summer and was still trying to work under a stressful situation, I started having the speech problem.  My mouth would twitch, my words would get stuck and I would stutter.  I had no idea that I was sitting at my desk and having seizures.  "Speech arrest" certainly fits the description of what was happening to me while I was still trying to work.  It was happening all day long and was very embarrassing.

On top of not knowing what was going an with me neurologically, I could tell they were just waiting to fire me at work even though I had FMLA, or at least they thought they could.  When someone wants to get rid of you they can make your life pretty misserable.  I'm 56 and had the onset of asthma a little over four years ago.  It came on with a veneange.  One injection that I take monthly is $10,000 along with many others.  I was taking my nebulizer to work and doing breathing treatments, but still missed more work that I would have liked to.  I didn't miss anymore than I had sick or vacation time for, though.  They thought I would just say o.k. and walk out the door with no medical insurance. The university is covering my insurance while I'm n working on the disability mess.  I have been turned down.  It is through the KY Educational Retirement Systems, which I thought would be much easier.  I've turned it over to my attorney.  From what I hear, that's a lot faster.

Sorry, I was rambling.  It's the middle of the night and I can't sleep.

Thanks

Carla

 

 


RanMan
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Date Joined Feb 2003
Total Posts : 653
   Posted 3/14/2007 1:41 PM (GMT -7)   

another day,

I'm sorry to hear of your delema, wow, you've been through a lot of crap. I had a similar situation, I was 47 yrs old at the time.

My "Speech arrests" were affecting my job. (dealing with public on the phone) and my employer of 30 years gave me an ultimatum ~ take the medical retirement pakage or train for a different position with-in (I was an Administrative Manager for the Government of Canada ~ but I had a neuro/psyc evaluation and it was determined that due to the long term use of the meds, I did not have the ability to learn a new job) or get laid off and try my luck with another Gov't Department that would pay me at the current rate.

I took the medical retirement.

It is against the law in Canada for an employer not to hire a potential applicant because of a known seizure condition. It is a form of disrimination and violates the "Canadian Human Rights Act"

By law the employer must provide adequate working conditions or supply special needs as/if required to effectively do the job, even if that means restructuring the work area.

However, if a case like that ever went to court, it would be awfully hard for anybody to prove that they were denied a job for THAT reason, therefore cases like that usually go unreported.

Randy
diagnosed with epilepsy and Ulcerative Colitis in 1979
- current meds are:

275mg dilantin/day
120mg pheonobarb/day
3,000mg Mesasol/day


CQ:)
New Member


Date Joined Mar 2007
Total Posts : 13
   Posted 3/19/2007 3:05 PM (GMT -7)   
I don't drive so I walk most places & I am usualy alert when I have a seizure or one of my 'funny turns'.
Quite often I will be walking around town or down the street when I have a funny feeling come into my head which usualy means I'm having a turn, when this happens I stop until the feeling goes away. Once I think the feeling has gone out of my head I continue walking.
The main part of my turn is the funny feeling in my head or a strange dream but it took me a while to realise that I can still be having a turn after the dream or funny feeling goes away. If I have a more serious turn I end up with a headache and am tired, I have never timed my turns but I estimate them to only last a couple of mins.

seizures101
New Member


Date Joined Jan 2007
Total Posts : 17
   Posted 3/21/2007 2:28 AM (GMT -7)   
   Carla,
           Hi,I also walk when I have a seizure.I didn't know that until about 2 years ago when I woke up in my daughters bed with a terrible head ache.I have also walked up to my kitchen and got "sick"in the sink,walked back to my bed and went back to sleep.The scary thing was I had no idea of any of it until I got up the following morning and seen the mess.It still amazes me that someone can have a seizure and maybe walk through a house,or fall off a bed,of even pee in the bed and NOT even remember anything.I'm 34 and have had epilepsy all my life and I still get amazed by "it" sometimes.I've had a temporal lobe surgery done back in 2000,a VNS put in back in 2005 and I am on 4 different meds.19 pills a day and I still and probably will always have break through seizures.Don't get me wrong with my surgerys my seizures are almost nonexisting BUT I still have one from time to time.I wish you well,and good luck to all.
                                                         Michael
 


buddito
New Member


Date Joined Apr 2011
Total Posts : 1
   Posted 4/12/2011 7:13 PM (GMT -7)   
I personally don't have seizures, but my boyfriend has epilepsy. The other night, he walked for the first time during a seizure and ironically had two seizures in the same night, which was a first also. What was also weird was, unlike you Carla, he first fell to the ground, starting jerking, got up and started walking while having the seizure. He says that's never happened before as the two seizures a night. He also got some pretty bad rug burn, cut up his ear, and injured his back, which he says has never happened before too.
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