Ketogenic Diet

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TexasJen
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Date Joined Dec 2006
Total Posts : 649
   Posted 3/10/2007 9:50 AM (GMT -7)   
Hi.  I'm usually over in the chronic pain forum, but started reading here because my nephew, who just turned 3, began having seizures back in November.  He was having up to 20 a day and spent considerable time in Texas Children's Hospital being pumped full of drugs.  This once-healthy, very active child was just... gone.  The anti-convulsion meds did nothing.  He couldn't feed himself, or drink, or walk or even talk much.
 
Long, sad story short, the doctors started him on the ketogenic diet about a six weeks ago, and the results have been nothing short of spectacular.  In that time, he has had only 2 myoclonic jerks, and where even one hard jerk would send him into the ozone for 2 or 3 hours, he now recovers in minutes.  Other than those episodes, the child is back to normal.  I am wondering if anyone else here has even heard of this diet (or been told about it) and what kind of results were achieved.  We are all hoping and praying that this diet is the answer for the long-term.  The docs are now talking about weaning him off the rest of his meds as long as he has no more seizures in the coming weeks. 
 
I'm the web-surfer of the family, so I'm just trying to find any information about epilepsy, and the ketogenic diet in particular, that may help.  Thanks!  :-)
 
http://www.epilepsy.org.uk/info/ketogenic.html
Living in the Republic of Texas minus a gallbladder, a couple of cervical discs, appendix, uterus, and 18" of colon; but living with my wonderful husband, 2 dogs, 1 cockatiel, and 2 gold fish. 


TexasJen
Veteran Member


Date Joined Dec 2006
Total Posts : 649
   Posted 3/11/2007 2:35 PM (GMT -7)   
*bump* I guess nobody has tried this? Or even heard of it? I'm not spamming some quack remedy, although I understand some docs still think that way about this diet. Check out the movie "First Do No Harm" with Meryl Streep. That is my nephew's story in a nutshell.
Living in the Republic of Texas minus a gallbladder, a couple of cervical discs, appendix, uterus, and 18" of colon; but living with my wonderful husband, 2 dogs, 1 cockatiel, and 2 gold fish. 


seizures101
New Member


Date Joined Jan 2007
Total Posts : 17
   Posted 3/13/2007 1:46 AM (GMT -7)   

  TexasJen I have heard of the ketogenic diet.I've had seizures all my life and that diet was an option for me about 10 years ago and I did alot of research,I bought a tape about it and figured out that the diet was meant for young kids.Since you have to monitor what they eat how much they eat and so on,I figured someone of my age at the time that I couldn't do that.I'm really glad to hear that he's doing so much better.I wish him well in the future.

                                                                      Michael


 


TexasJen
Veteran Member


Date Joined Dec 2006
Total Posts : 649
   Posted 3/13/2007 12:13 PM (GMT -7)   
Thanks so much for responding Michael. Yes, it does appear the diet is geared toward, but not exclusively for, children, but I was so hoping somebody - anybody - here had at least tried it. But then, if one is no longer experiencing seizures, one wouldn't be here?

I'll grant you the ketogenic diet is a royal pain having to measure everything and it takes a great deal of discipline and blood monitoring for ketones, but the results in my nephew are truly miraculous. I was stunned to learn that the connection between this diet and seizures has been documented since around the 1900's, but with the advent of anti-convulsive meds mid-century, it fell into obscurity until Johns Hopkins got going on it again decades ago. Many thanks again for responding. :-)
Living in the Republic of Texas minus a gallbladder, a couple of cervical discs, appendix, uterus, and 18" of colon; but living with my wonderful husband, 2 dogs, 1 cockatiel, and 2 gold fish. 


Island_Fever
New Member


Date Joined Mar 2007
Total Posts : 2
   Posted 3/26/2007 5:13 PM (GMT -7)   
I saw info about it on PBS. The person involved was a child and it worked great for him.
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