I Just seen a doctor today, who sent me in to get some bloodwork. Also I will be getting an MRI in the upcoming days. I think what I have is simple partial or complex partial. Ive read about some people getting misdiagnosed, or docs gettin the problems confused with anxiety. Has any experienced anything like this. And any adivce in the up and comin days, while Im being reviewed by some doctors, or about getting my mri... If there is any common experiences, input or advice, I would love to hear it.. Thanks
Glad to hear that you got an MRI date so quickly. I hope everything goes well and that it can give you some answers. I would carry on thinking to see if there is a monthly event though... If its something you take for granted that it happens, it doesnt alwys come to mind straight away.
Good luck for Monday
hello everyone, Thanks again for your support and interest. I have just finished my mri yesterday. I will be going over it with my doc on thursday morning. I post the results soon as i get a chance.
You dont have to have a seizure in the conventional sense. After they have attached the wires to your head, they perform different tasks (Such as a flashing light at different frequencies) which cause the brain to produce electrical impulses in the same manner as a seizure. (Thats the very simple version of an EEG anyway) This is whats recorded on the paper.
I hope this answers your question
EEG's are known to be pretty good in terms of reliablity etc... Even if you are feeling fine, they should be able to find something. (They always seem to manage when I have one!) I hope all goes well and you get the dx you want.
All the best
Just returned from the specialist... HE diagnosed me as having complex partial seizures. The eeg said I had abnormal results in the temporal region. I may haave some leisions in that area, or a tumour, or maybe scar tissue, or it could be shrinking. The neurologist wants to see my mri, and the gp i seen could have looked at it wrongly...I will be seeing an epilepsy specialist asap, and we will try to find out the cause of my seizures. Also my drivers licence was taken away.
I was given CARBAMAZEPINE to take. Anyone know about this drug?
Im glad to hear that you have got your dx. Hopefully this can be the start of a successful treatment plan for you. I have taken Carbamazipine for 8 years or so. (Since I was dx). Are you taking the standard version (Often called Tegretol) or the slow release version (Often called Tegretol Retard)? I used to take the standard version but I found it didnt work after a while (Puberty may have been an issue here!) and the doc put me on Retard. (Lovely name dont you think!?). I have have very few problems since. (The only problem I had was solved by increasing the dose). That said, it doesnt suit everyone so it is important you look out for any contra-indications.
I hope this helps. If you need any more information, let me know.
It really does sound like you are having complex partial temporal lobe seizures. When you smack your lips and repeat a phrase, those are called automatisms. This is the time when you have lost consciencesness. In fact, those are the same automatisms I do, as well as moving my left leg.
I also take tegretol, and get fairly good control. 200mg twice daily is a good starting dose. You want to start out slow, because there is a chance it might cause some liver problems. Also, it may cause some significant side effects in some people.
You may want to ask the doctor if the mri was ordered as an epilepsy protocol mri. They will do smaller slices through you temporal region to see if there is a abnormality.
I hope you are able to obtain good control,