!3 Year Old Son newly DZ with JME

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Betajet
New Member


Date Joined May 2007
Total Posts : 1
   Posted 5/5/2007 6:57 PM (GMT -7)   
My son is newly diagnosed with JME.  His father's family has history of Petit mal Seizures.  He was just started on Depakote and is 13 years old.  He started having what looked to be petit mal seizures which then seemed to be getting worse, mostly though when he was tired or maybe stressed.  I am wondering if everyone who is dz with petit mal Seizures actually is medicated?  He did have a positive EEG x2 as well.  Since he has begun the depakote he seems to be more moody and lethargic too.  Does this get better?  We are only up to 5oo mg now and are to go up to 750 mg's in another week.  I am new to this and we are both frustrated for sure...... 

djdaz_1985
Veteran Member


Date Joined Jan 2006
Total Posts : 2408
   Posted 5/6/2007 2:41 AM (GMT -7)   
Hi there and welcome to HealingWell,
 
I was only a little older that your son when I was diagnosed (I was 15). I was started on carbamazipine and have been until the present day (I am 22 now). The issues with the meds could be the body getting used to it (So it would get better) or it could be that the meds dont 'suit' your son and you will always have the side effects. This is something that is easily discussed with your doctor. Learning to cope with epilepsy was hard for me and my family as well. We spent a lot of time researching epilepsy so that we really understood what was going on. This is a link to the resource centre here at healingwell that you might find useful: http://www.healingwell.com/pages/Epilepsy/ and http://www.healingwell.com/epilepsy/ My advice would be not to underestimate how hard your son is finding it as well and don't treat it as a taboo subject in the house. Be open and honest with each other about how you are all feeling. There is loads of support here at HealingWell as well if you have any questions or you just need a bit of support.
 
Wishing you all the best
 
Darren
 


Everyone has a guardian angel. They help pick you up when you fall, comfort you through your times of need and help you appreciate the times when things are going well.
 
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Post Edited (djdaz_1985) : 5/6/2007 3:40:31 AM (GMT-6)

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