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Another Day
Veteran Member


Date Joined Mar 2007
Total Posts : 1055
   Posted 5/10/2007 5:24 PM (GMT -7)   
I'm back at square one again.  I had gotten up to 53 days seizure free.  I had started feeling like a normal person again. I started having myoclonic seizures again several days ago.  My neurologist increased my Kepra from 1500 mg. to 2000 mg per day so I am having to deal with that adjustment also.  I'm feeling really tired.  I had been feeling so well that I started over doing it though.  I was helping a friend on his campaign for governor here in KY and I just let myself get too emotionally involved.   I had also been working on the committee to get an clean indoor air ordinance passed for our city, which I am also passionate about because of my asthma.  I guess I just got too carried away with trying to be the "old me" again.  O.K., no more whining!
 
Carla

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 5/10/2007 6:56 PM (GMT -7)   
Hi Carla,
 
Sorry to hear you had a relapse.  That is never a nice thing to go through.  Don't over do it okay.  Take good care of yourself and get extra rest if you need it.
 
Blessings,
Ginny
I can do anything through Jesus Christ who strengthens me.  I have learned in whatever state I am in, to be content.  Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(stroke),Sjogren's, Raynaud's, seizure disorder, libman sach's endocarditis, vasculitis, sacroiliitis, Neutropenia, thrombocytopenia, possible early menopause - do diagnosis yet. Prednisone, Imuran, Coumidin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


djdaz_1985
Veteran Member


Date Joined Jan 2006
Total Posts : 2408
   Posted 5/11/2007 5:55 AM (GMT -7)   

Hi Carla,

Im sorry to hear that your epilepsy has flared up again. Hopefully the increase in the Kepra will sort you out. It sounds like you need a bit of time out as well. If you make sure you take the rest you need to get your self back on track, you will soon be back to 53 days!

Best Wishes

Darren


Everyone has a guardian angel. They help pick you up when you fall, comfort you through your times of need and help you appreciate the times when things are going well.
 
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Another Day
Veteran Member


Date Joined Mar 2007
Total Posts : 1055
   Posted 5/13/2007 1:22 PM (GMT -7)   
I am having trouble adjusting to the 2000 mg. of Kepra per day.  I'm still pretty tired.  Thanks for the support!

djdaz_1985
Veteran Member


Date Joined Jan 2006
Total Posts : 2408
   Posted 5/14/2007 8:26 AM (GMT -7)   
Hopefully given a few weeks you will adjust to the 2000mg. The alternative is that you get an add-on med. But that could be hard to adjust to as well. Only time will tell
Everyone has a guardian angel. They help pick you up when you fall, comfort you through your times of need and help you appreciate the times when things are going well.
 
Moderator - Epilepsy Forum
 
Help support the forums so we can support you:  http://www.healingwell.com/donate
 


sparkelz
Regular Member


Date Joined Nov 2005
Total Posts : 33
   Posted 5/14/2007 3:02 PM (GMT -7)   

hello another day!

I have myoclonic seizures as well AND asthma, so I can definitely relate to you. I am 17 years old, so i have juvenile myoclonic epilepsy but I take Lamictal and it is amazing. Ask your doctor about it. I feel fine... no side effects... siezure free! Maybe see if you can try it.. i hope i was a help! hope evereything works out for u


Another Day
Veteran Member


Date Joined Mar 2007
Total Posts : 1055
   Posted 5/15/2007 5:47 PM (GMT -7)   

Hi Sparklez,

I tried Lamictal.  I just could not tolerate it.  It made me nauseous and dizzy as well.  You know how we all react differently to the medications.  I guess you can relate to me if you have myoclonic seizures and asthma, the big difference being that I am 56.  I'm really doing well with the asthma right now, thank goodness. I got all this junk late in life. You guys are great on this board!  I am feeling a little better today.  My daughter, Tracie and granddaughter, Jillian picked me up this afternoon.  Tracie could see some improvement in me since Sunday.  I am on my way back up! I am planning to have the three grandkids, Jackson, Jillian and Morgan over to watch movies Friday afternoon.  I will be better by Friday.

Thanks again to all of you!

Carla


djdaz_1985
Veteran Member


Date Joined Jan 2006
Total Posts : 2408
   Posted 5/18/2007 3:54 AM (GMT -7)   

Hi Carla,

Im glad to hear that things are improving. It sounds like a day of movies with the grand-children is just what the doctor ordered. a nice 'relaxing' day. It must feel great to be on the up. I remember how I felt when I completed my first month without a sz after I crashed the car. I have done 6 months now and it feels like the next 6 months are going to take for ever! Cest la vie!

Darren


Everyone has a guardian angel. They help pick you up when you fall, comfort you through your times of need and help you appreciate the times when things are going well.
 
Moderator - Epilepsy Forum
 
Help support the forums so we can support you:  http://www.healingwell.com/donate
 


Another Day
Veteran Member


Date Joined Mar 2007
Total Posts : 1055
   Posted 5/18/2007 11:16 AM (GMT -7)   
Hey Darren,
 
I have been feeling a little better every day.  As we all know, seizures and seizure medication are just not very pleasant.  I am on the other side of it again now.
 
Were you hurt when you crashed your car?  Was a seizure the cause of the accident?
 
This board has been great!
 
Carla

djdaz_1985
Veteran Member


Date Joined Jan 2006
Total Posts : 2408
   Posted 5/18/2007 1:56 PM (GMT -7)   
Hi Carla,
 
The seizure was the cause of the accident and sometimes I find it difficult to talk about. sad I was helping a friend move house and I has him and many of his belongings in the car with me. He was not hurt at all and none of the belongings were broken. When people ask me whether I was hurt in the accident, I am always a little unsure how to respond. I was not hurt physically, but mentally I took a big hit. As well as having to give up my car (Which was written off / totalled) and licence, I spent a long time thinking about what could have happened. It was my grandads car and I had bought it from him only about a 18 months prior. In that 18 months he died  sad ,  so I felt very attached to the car anyway. I often look at the photos of the car and think about what could have been. We crashed near some scaffolding and if we had swerved the opposite direction, my friend could have got a scaffolding pole through the chest and died. I still find it difficult even though it has been 11 months since the accident. I dont know how I will feel when I get my licence back. Thats one of my many stories and I shall stop now before I go on all night!
 
Glad to hear things are looking up for you though! :-)
 
Darren
Everyone has a guardian angel. They help pick you up when you fall, comfort you through your times of need and help you appreciate the times when things are going well.
 
Moderator - Epilepsy Forum
 
Help support the forums so we can support you:  http://www.healingwell.com/donate
 


Another Day
Veteran Member


Date Joined Mar 2007
Total Posts : 1055
   Posted 5/18/2007 11:25 PM (GMT -7)   
Darren,
 
I really appreciate you taking the time to share that with me.  I don't know about other people, but it is helpful for me to hear stories like this.  I have to admit that I do get frustrated and get in the car and drive every now and then.  I know I shouldn't do it.  You just reinforced that for me.
 
It sounds like you might have been able to handle physical pain easier than what you had to go through, especially since it was your grandfather's car.  That's a lot to deal with.  For such a young person, you have a great deal of wisdom.
 
I am still feeling better every day.  Jackson, Jillian and Morgan came over today.  I will have to share pictures of them with you all.
 
Take care!
 
Carla

djdaz_1985
Veteran Member


Date Joined Jan 2006
Total Posts : 2408
   Posted 5/19/2007 4:12 AM (GMT -7)   
Hi Carla,
 
I would certainly have preferred physical pain to emotional. Emotional pain takes much longer to heal as I am finding now. I am glad that you find my story helpful. I am probably wise beyond my years because of the experiences I have had to face in the last 10 years or so.
 
Darren
Everyone has a guardian angel. They help pick you up when you fall, comfort you through your times of need and help you appreciate the times when things are going well.
 
Moderator - Epilepsy Forum
 
Help support the forums so we can support you:  http://www.healingwell.com/donate
 


DrAnnMaria
New Member


Date Joined May 2007
Total Posts : 1
   Posted 6/8/2007 10:49 PM (GMT -7)   
My daughter had gone six months without a seizure, passed drivers ed and had a seizure the DAY before she was supposed to take her driving test! She was really upset and even suggested she could just lie on the application and not tell her neurologist about the seizure. Usually, she is such a great, easy-going kid and the fights we had over this were (in my opinion) the worst time in all the years we lived at home. Thank God there is a good community college within walking distance of our house, and she found a job she could walk to as well.

There is a happy ending to this story - with all the walking, she lost about 40 pounds and by the time she transferred for her junior year she was drop dead gorgeous. The city she chose for college (San Francisco) happens to have a great mass transit system, so that is working out as well, and she graduates from college in six months.

Still, I know when she is home it bothers her that her sisters can drive and she can't. It doesn't bother her so much if my husband and I or her older sister give her a ride but she refuses to have her younger sister drive her anywhere. Even though my daughter is bright, well-educated and mature in a hundred ways, that unfairness that her little sister can drive and she can't sets her teeth on edge.

Any suggestions? Or should I just count my blessings because she is so great in so many other ways?

AnnMaria

brain3
New Member


Date Joined Jun 2007
Total Posts : 2
   Posted 6/9/2007 11:42 AM (GMT -7)   
AnnMaria

This story remains of when i was younger and i did the same pass dr.ed then when i was suppose to take the driving test i had a bad seizure i had to wait for about 3yrs but i got it. (at that time i was sad but i got over it) I can understand how she feel but it will get better. It good that you live in a big city that has a transit system cause i live in a very small town growing up they didn't have any thing like that. But when i got my DL I went to school and became a medical asstiant/phlebotomist but lately I have not gotten to work over the past 6 yrs cause my seizures has gotten worse, there going to surgury in june or july, then after all of my recovery ( 1-2yrs) I'm going to college for RN. Best luck to your daughter and I pray that everything works out for you all.

brain3

djdaz_1985
Veteran Member


Date Joined Jan 2006
Total Posts : 2408
   Posted 6/9/2007 11:58 PM (GMT -7)   
Hi AnnMArie,
 
It is a real shame that your daughter had the seizure 1 day before the exam. But it could have been worse. She could have taken the test, bought a car and then had a sz. In that sense, I would count my blessings. I can also understand how hard it is to watch a sibling drive. My sister is learning at the moment and im sure it wont be long before she is on the road. I am unsure of US law but in the UK, you can start driving again after 1 year sz free. If this is the case where you are, it is not something that her sister can do that she CANT, but something she can do if she WAITS a bit longer. Besides, look at all the good that has come out of this: Her college course, her weight loss etc... If the pictures I have seen on the TV of SanF are anything to go by, there should be no issues getting transport! lol
 
I hope things start to work out.
 
Darren 
Everyone has a guardian angel. They help pick you up when you fall, comfort you through your times of need and help you appreciate the times when things are going well.
 
Moderator - Epilepsy Forum
 
Help support the forums so we can support you:  http://www.healingwell.com/donate
 

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