Might have temporal lobe epilepsy

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Kobbler
New Member


Date Joined Jun 2007
Total Posts : 2
   Posted 6/1/2007 4:39 AM (GMT -7)   
Hi
I went to a neurologist yesterday and was told that I might have temporal lobe epilepsy. I had an EEG and I am getting an MRI. I'm still waiting on the results of the EEG but I just want to ask question.

My symptoms are feeling distant from reality, blurry memory, having a strange feeling in the outer parts of my brain(all day every day) and finger/leg tapping.
I was just wondering if anybody else has had these symptoms, especially the feelings in the outer parts of the brain.
Thanks,
Kev

djdaz_1985
Veteran Member


Date Joined Jan 2006
Total Posts : 2408
   Posted 6/2/2007 2:24 AM (GMT -7)   
Hi there Kobbler and welcome to HealingWell
 
There are LOADS of people on here with Temporal Lobe Epilepsy so you should get a good response. I certainly get these symptoms as a result of a seizure (not so much the finger tapping though) but I certainly dont get any of them on a 24-7 basis. I assume from your writing that your MRI came back clear? Or are they waiting for the EEG results so they can give you both together? This may sound like a stupid question but you havnt mentioned seizures at all. Do you have seizures? (Please forgive me if I am being stupid here! lol) The EEG results should be able to tell you much more.
 
Let us know how you get on
 
Best Wishes
 
Darren
Everyone has a guardian angel. They help pick you up when you fall, comfort you through your times of need and help you appreciate the times when things are going well.
 
Moderator - Epilepsy Forum
 
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Kobbler
New Member


Date Joined Jun 2007
Total Posts : 2
   Posted 6/2/2007 2:53 AM (GMT -7)   
Hi Darren. Thanks for replying.
I don't really have seizures. My symptoms have been constant for 4 years. Recently however I have been feeling quite distant. It usually starts about 2 hours after I get up.

I was convinced I had brain damage but I was told by the neurologist that it is not possible to feel the damage in your brain. Could you please tell me what the feelings in your brain are like? Are they all over your brain or just in the outer regions? Is the feeling the same on both sides? Do the feelings change depending on what you are doing?

I have had an EEG and I am waiting for an MRI this Wednesday. I haven't got the results to the EEG but they should be ready soon, hopefully Monday.

The neurologist said the cause of my symptoms is probably a scar in my temporal lobe from a head injury I received when I was 11. Apparently this can cause short circuits which can cause feeling throughout the entire brain. I'm really hoping this is the cause because I'm convinced that I have brain damage. Though the neurologist seemed to dismiss this completely.

Kev

Post Edited (Kobbler) : 6/2/2007 6:10:12 AM (GMT-6)


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 6/3/2007 3:32 PM (GMT -7)   
Hey Kev,
 
My temporal lobe symptoms are a bad smell, followed by a sense of deja-vu.  Then I get a buzzing feeling in my brain and this all lasts for about a minute then goes away.  You'd never know I was having a seizure unless I told you.  I maintain complete awareness and consiousness throughout the entire seizure.  It's super annoying and distracting.
 
According to my hubby, I also get really quiet, and I often put my hand over my mouth, or look up at the ceiling.  Weird stuff!
 
Hope this helps,
Ginny
I can do anything through Jesus Christ who strengthens me.  I have learned in whatever state I am in, to be content.  Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(stroke),Sjogren's, Raynaud's, seizure disorder, libman sach's endocarditis, vasculitis, sacroiliitis, Neutropenia, thrombocytopenia, possible early menopause - do diagnosis yet. Prednisone, Imuran, Coumidin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


1mother2
New Member


Date Joined Jun 2007
Total Posts : 7
   Posted 6/10/2007 8:12 PM (GMT -7)   
Hello Ginny,

I have a question to ask you. I'll keep it short, but I want you to know that I have some of the same (multiple) dx's that you have.
Do you mind explaining the buzzing feeling in your brain? I get something that may be the same thing. Maybe I just describe it differently.
I'm a new member, and I would really like some help with my issues.
Thank you,
Edee

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 6/13/2007 3:22 PM (GMT -7)   
Hi Edee,
 
I'm more than happy to help you as much as I can.  You can ask me anything!
 
The buzzing feeling is almost like a static kind of buzz. It's mild, but very noticeable.  Does that make sense?  I don't know how else to describe it. 
 
It's very different from the "buzz" I get when my lupus is flaring up.  That is a constant vibration feeling.
 
Do you mind me asking what other diagnosises you have?  I hope this helps!
 
Ginny
I can do anything through Jesus Christ who strengthens me.  I have learned in whatever state I am in, to be content.  Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(stroke),Sjogren's, Raynaud's, seizure disorder, libman sach's endocarditis, vasculitis, sacroiliitis, Neutropenia, thrombocytopenia, possible early menopause - do diagnosis yet. Prednisone, Imuran, Coumidin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Twisted-Fairy
New Member


Date Joined May 2010
Total Posts : 1
   Posted 5/8/2010 6:09 AM (GMT -7)   
Hi All,

I was hoping someone could help me. I'm 23 year old female and have been suffering from these 'funny head things' since i was about 7. As a child me and my mum both managed to get used to it, so i didnt go to a doctor until i was 15 when we decided we really needed to know what was causing it. The doctor referred to me to the hospital where I had a brain scan and an eeg, both came back fine. I cant remember hardly anything about my visits to the hospital, but according to my mum they didnt know what it was so sent me away saying it was anxiety.
At the time of my hospital visits I really struggled to explain what it was going on in my head and apparently the doctors got a bit fed up of me not knowing what was going on in my head. However now, after researching LOADS on the internet, so many people have the same symptoms as me. Its made me so happy to know other people have it. So after reading it on the internet i find it easier to expalin whats going on with me. I'm just gonna give a brief description of what goes on, (this is usually just before I go to sleep):
Everything feels unreal, for example if i look at the TV it doesnt look like a TV anymore, and this frightens me. I get a strange taste and sensation in my mouth, almost like theres a big metal spoon in there that wont come out. I get a little bit dizzy but its not a bad kinda dizzy, i dont feel sick or anything. If people are talking around me i can join in in the conversation but i feel like im talking jibberish, even though im not. Their voices will sound far away and they might look far away or suddenly really close to me.
I used to get it A LOT when i was little but as iv got older, its calmed down and iv learned to handle it. usually when it happens i sing to myself, walk around a bit and it dissapears. Its just started bothering me again now though because i had a really frightening one the other night and i was in the house on my own, i felt like a child all over again wanting to run into my mums bedroom.

What do people think? Should I go back to the doctor? I also hate the thought of people thinking im crazy or stupid or attention seeking, because Im really not!

Sorry for rambling!

Fairy xxxx
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