hi everyone. i have epilepsy, i've had to go through it all by myself. i took keppra for two years and im off it now. the neuro says that i shouldnt have any seizures anymore so thats great then, i guess. i read an article on this site a while ago that talked about the needs of people with epilepsy. i completely agreed with it and i realized my needs arent being fulfilled. i didnt have anyone telling me they love me or that they are there for me. everyone thinks i feel ok when im actually a real mess inside. i dont know why im posting this all of this, i dont think anyone will care but i am going to anyways because its killing me.
for my birthday i was promised a ''perfect'' day. that it would be a great day. it really wasnt. no one remembered. i was upset and angry. the day after i was really upset and ended up punching myself a couple times, leaving myself a couple bruises. should i forgive and forget? what do you people think? it really got me upset and made me feel drained.
parents.. if your child has epilepsy, know that their needs are a little bit more different than a normal childs. let them know you love them and that you are there for them. talk to them, ask them if they feel ok, tell them you care. dont let them feel lonely. its hard living like that. i dont know if i can keep going on like this.
if you read all of this, thanks for listening. i know its not directly related to epilepsy but i just needed to get this off my chest. if you reply, please be nice. thanks. bye