i know something is wrong

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AnonymousMe
Regular Member


Date Joined Oct 2006
Total Posts : 20
   Posted 7/17/2007 8:38 PM (GMT -7)   
hey peeps, i got a problem. i know something is wrong with me. i used to be on keppra for two years before i was taken off in march this year (ive been seizure free for two years now) but now i get these weird feelings. whenever i go to the bathroom to urinate i start.. twitching or shaking like im going to have a seizure but it passes. it happens almost everytime i go to the bathroom. i also start twitching when i dont get enough sleep. i go to school sometimes and while laying my head down my whole arm just jerks(i guess i should probably get more sleep then). but still i feel really weird right now. i feel like any part of my body could just jump. does anyone know whats going on? i know somethings going on.

Another Day
Veteran Member


Date Joined Mar 2007
Total Posts : 1055
   Posted 7/18/2007 9:42 PM (GMT -7)   
Were your seizures myoclonic seizures? I am fairly new to this. I am 56 years old and was just diagnosed last August with myoclonic seizures. We now know that I am having other types of seizures. I'm sure you know that seizure patients definitely need to get enough sleep. I'm sorry I can't help you any more. But, it sounds like you are describing myoclonic seizures to me. Look them up and see what you think.

Take care!

Carla

djdaz_1985
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Date Joined Jan 2006
Total Posts : 2408
   Posted 7/19/2007 1:57 PM (GMT -7)   

Hi There,

A lack of sleep is one of the more common triggers for seizures along with flashing lights, stress etc... so that wont be helping you. I get twitches occasionally but nothing particularly exciting so im not sure I can help on that front. My seizures are grand-mal so this may make a difference.

Darren


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kman78
Regular Member


Date Joined Jul 2006
Total Posts : 74
   Posted 7/19/2007 5:55 PM (GMT -7)   
HI Anon,
I would talk to your doctor about these feelings. It may be that you are having some simple seizures. As darren said sleep deprivation is often a trigger for seizures. So I would talk to your doc, as it might be a good idea to go back on the keppra.

Best wishes,
kurt

AnonymousMe
Regular Member


Date Joined Oct 2006
Total Posts : 20
   Posted 7/21/2007 12:40 AM (GMT -7)   
hi again all, i looked it up and it does sound like im getting myoclonic seizures. i used to get simple partial seizures every day with the occasional complex seizure every couple months. i dont get any anymore except for what i described (the twitching and the arm/leg jerks). it could be the lack of sleep and the stress im getting but should this really be happening? im done taking my meds so this shouldnt be happening, right? i dont want to go to talk to my doc about it because he will just put me back on the keppra and i dont want to take anymore pills.

djdaz_1985
Veteran Member


Date Joined Jan 2006
Total Posts : 2408
   Posted 7/21/2007 1:42 PM (GMT -7)   
Hi there,
 
I can appreciate that you dont want to take any more tablets. I get sick to death of taking mine sometimes and the thought of being able to stop but then have that taken away from me is really unfair. But if you need the tablets for a stable lifestyle then surely that is better than going back to having the seizures? Kman makes a good point in encouraging you to see the doctor. In your position I would (Although I wouldnt be happy about it). Epilepsy is never "cured". It can be dormant for years and can come in and out of remission during your lifetime. It is best to get treatment now before it gets any worse.
 
Keep us posted
 
Darren
Everyone has a guardian angel. They help pick you up when you fall, comfort you through your times of need and help you appreciate the times when things are going well.
 
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Co-Moderator - Depression Forum
 
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Another Day
Veteran Member


Date Joined Mar 2007
Total Posts : 1055
   Posted 7/21/2007 9:09 PM (GMT -7)   
Anonymous Me,
 
I thought you were describing myoclonic seizures.  Yes, you do need to get in touch with your doctor.  I think I mentioned to you before that I was just diagnosed last August at the age of 55  by doing the four day EEG.  Before that, I did not realize that I was closing my eyes when I was having these seizures.  You have to think about the fact of having one when you are driving and a little child runs out in front of your car, would you be able to stop?  I know the monoclonic seizures are very brief, but you have to have them under control to drive just like all the other seizures.  When I was still trying to work last year before I was diagnosed, I was sitting at my desk having myoclonic seizures all day long, the worst part was that they were affecting my speech which was very difficult for me.  My mouth would start twitching and seem to get stuck when I was trying to communicate with others at work.  So, another point is that they can get much worse than they are now.  I strongly urge you to see your physician.  I know you don't want to.  I don't want to go back in for another four day EEG and some other tests,  but I'm going.  Epilepsy isn't a lot of fun, but it could be something worse.  So, you call your doctor and I'll go be wired, videoed and monitored next month.  Deal?
 
Take care!
 
Carla

kman78
Regular Member


Date Joined Jul 2006
Total Posts : 74
   Posted 7/22/2007 6:05 PM (GMT -7)   
HI ANON,
It is very understandable not to want to have to take more pills. However, those funny twitches, it they are seizures, could turn into something more serious where you actually lose conscienceness. I really would try to talk to your doc, and tell him whats been happening.

Best wishes,
kurt
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