OK this is going to be a long story!
Years ago I started to have problems with flashing lights.
I'd jump back as if shocked if I saw flashing lights. Then I'd get this weird pressure / pain in the top of my head. It felt like my head was going to implode, not explode though!
I coped with it by just screwing my eyes up tight if I saw flashing lights.
That got me through for a while.
Then, a few years ago I had a period where I was having blackouts.
Not from flashing lights, I was just getting the same pressure / pain in the top of my head and then blacking out.
But I could kind of hear people after it... I think I'd be out for a little time, and then people thought I was out, but I could kind of hear them, but I couldn't move, but I'd be shaking a bit, and it was like listening to people in another room, like they were really far off or something and I'd tense up and shake a bit.
(Being vaguely awake actually got me insulted by a paramedic - she said I wasn't being helpful or trying to talk to her, but I could only kind of see and hear her and I just needed to curl up into a ball!)
I ended up in hospital after one of these blackouts and they did a CT scan of my brain and said it was all normal. They thought it might be a gland in the top of my head, but the scan showed it was clear.
I started to get problems with 'flashing' sounds as well.
I'll try to describe what happens with the lights and the sounds.
It feels like my brain suddenly tries to keep up with the on and the off. So when the sound / light is on, it lurches forwards, and then the sound / light goes off and it lurches back again. And it just can't cope with going backwards and forwards.
That sounds so weird, but that's the way it is!
It only happens at certain frequencies though; if the sound / light gets too fast, my brain just ignores it. Like something being too close to your eyes, you just give up trying to focus.
It's so much worse with two independent sources though, and frequencies aren't as easy on me then.
Say if there's two different sources of flashing lights at different frequencies, my brain just goes nuts, straight into the pain/pressure thing and I seize up and twitch a bit.
I have to close my eyes really tightly.
Same if there's a 'flashing' sound and a flashing light, or two 'flashing' sounds.
I have fibromyalgia and dyspraxia, and I have major sensory issues as a result, so at first I just thought it was that.
However... I'm bipolar, and I've been on Epilim for nearly a year, and it all went away.
I could look at flashing lights without a problem, and watched loads of anime with loads of flashing lights and was really happy at not having to look away for some scenes.
But... my psychiatrist and I have decided to change the Epilim for Seroquel because I'm physically disabled and can't exercise much, and the Epilim has caused me to gain a lot of weight.
And now I'm off it, I'm so much worse than before!
It's not even flashing lights - just something being on screen and off again regularly (like in anime / cartoons because they just reuse the frames to 'flash' things). It sets me off horribly!
And a game I play online called Eve Online is a game where you pilot a space ship, and going into warp is setting me off and that's not flashy, it's just got a warp effect coming at you so it changes too frequently for me.
I'm really worried that I was on an epilepsy anti-convulsant and it stopped my problems, and now I'm off it again, I'm really, really bad.
Does this mean I have epilepsy?
I'm going to see my GP on Monday about
it, but I've had an MRI scan of my brain earlier this year and they said nothing was wrong.
Does what I've described sound like epilepsy?
It's so difficult to describe what's happening... people say your brain can't feel things, but it really feels like my brain's going nuts and I feel like I'm going to pass out or that my whole body is going to get out of control and the twitches will get worse and everywhere.
Thoracic Outlet Syndrome
Post Edited (Djonma) : 7/27/2007 12:32:14 PM (GMT-6)