Going back to the hospital

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Another Day
Veteran Member


Date Joined Mar 2007
Total Posts : 1055
   Posted 8/15/2007 10:06 PM (GMT -7)   
I am going back into the hospital on Friday for about five days for another go around of the EEG since my seizures are still not under control.  They are also going to add loud music and bright lights since I have a real problem with both of those to the point that I can't even go to church and there are very few restaurants I can go into. I'm afraid I am just going to come unglued when they add the music and lights.  I did ask my neurologist if anyone was going to beat me if I started pulling my wires out when this happened, he laughed and told me they woudn't.  I am a bit frightened though because my neurologist is concerned that there is something going on besides the seizures.  I am taking a laptop and a DVD player so I won't be so bored this time.
 
Please send some prayers my way.
 
 
Thanks!
 
Carla

Epilepsy, severe adult onset asthma, allergies, GERD, depression, hypothyroidism


djdaz_1985
Veteran Member


Date Joined Jan 2006
Total Posts : 2408
   Posted 8/16/2007 1:59 AM (GMT -7)   
Hi Carla,
 
I hope things go well for you. Hopefully this is going to help bring your seizures under control. Have fun and dont worry. (And dont pull the wires off! nono   lol)
 
You have my prayers
 
Darren
Everyone has a guardian angel. They help pick you up when you fall, comfort you through your times of need and help you appreciate the times when things are going well.
 
Moderator - Epilepsy Forum
Co-Moderator - Depression Forum
 
Help support the forums so we can support you:  http://www.healingwell.com/donate
 


CQ:)
New Member


Date Joined Mar 2007
Total Posts : 13
   Posted 8/17/2007 7:22 PM (GMT -7)   
Hi Carla
 
I hope everything goes well with your stay in hospital & they are able to find something to control your seizures.
 
CQ:)  
"I'm not confused, I'm just well mixed"


stkitt
Forum Moderator


Date Joined Apr 2007
Total Posts : 32602
   Posted 8/18/2007 8:29 AM (GMT -7)   

Good Morning Disco Woman.......How is it going?  I will try to call you today.

I hope if they are going to play loud music it is something you can dance to with all your wires.  That will surely bring the nurses running.

Did you get some good DVDs?   I am right here thinking of you so hang on and I am praying for a good outcome.

Love ya kiddo yeah


Respectfully
Kitt
Moderator Anxiety ~ Panic Disorders
*~* Not a mental health professional at all *~*
Dx: Anxiety/Panic, Depression 
******www.healingwell.com/donate******
_____________________________________________________
"If you doubt you can accomplish something, then you can’t accomplish it. You have to have confidence in your ability, and then be tough enough to follow through.” 
~Rosalyn Carter

 


Duke47
New Member


Date Joined Aug 2007
Total Posts : 1
   Posted 8/18/2007 11:05 AM (GMT -7)   

Hi Carla,

 Hope things go well and you get good results,

smart move with the laptop and DVD player.

Best wishes,  Duke


Another Day
Veteran Member


Date Joined Mar 2007
Total Posts : 1055
   Posted 8/19/2007 8:23 PM (GMT -7)   

Well Guys, I'm back home from the hospital.  I only had to stay one night, but I don't really know anything more than when I went in other than that they don't think that my problem with the bright lights and loud music is going to bring on a seizure.  I don't actually see my neurologist when I'm in for tests.  I did not like the two neurologists who saw me this time at all.  The first guy who saw me, I can't remember his name, so I'll call him Dr. Curry because he had curry oozing out of his pores.  He tried to make me believe that I was having migraines without pain.  I have had migraines triggered by allergies for 20 years and I know what they feel like.  As a matter of fact, since I've been on Topamax, I've had very few migraines.  He was trying to tell me that the past five years they had discovered that people were having migraines related to loud music and bright lights, but had no pain.  He could tell I was not buying into that.

Then later Friday afternoon, Dr. LaGrange comes in and tries to convince me that he knows all my history and starts talking about my juvenile myoclonic seizures and I can't seem to convince him that I just started having myoclonic seizures last summer.

So I'm all wired up and they do the test with the bright lights and loud heavy metal music.  The technician was very good.  I remembered her from my stay last year.  I told her to give me the most God awful music she could find because that was what I was there for.  She was going to let me use a headset and I told her that wouldn't work because I would just pull it off, that she would need to play it where I had no control.  I had a lot of jerking all over my body, but Dr. LaGrange said this was not seizure activity.  He said he thought I was just experiencing anxiety about having seizures out in public.  He may be right about that.

He didn't really give me any answers on how to deal with it other than to see a psychiatrist.

When I told him that I was also there to find out why my seizures were still not under control, he told he I would need to talk to Dr. Arain.

When I talked on the phone to my friend, Marilyn and she found out they were dismissing me after one day, she made me promise to call her when the doctor was there so she could talk to him.  She really is my best advocate and she wanted to make sure I didn't get frustrated and forget anything.  She didn't like the answers she got from him either.  I think she may have been asking questions that were over his head.

I am not scheduled to see Dr. Arain until Oct. 1, but I am going to call and get an appointment much sooner when Marilyn can take me down to Nashville.  My daughters can and will take me, but Marilyn really wants to and has a better understanding of epilepsy.  Her 20 year old son has had epilepsy since he was a baby and had been seizure free for many years until just recently, so she has done a lot of research on epilepsy.  She is also a professor in public health and is a very good friend.

Please say a prayer for Marilyn as she goes down to Vanderbilt herself tomorrow for her second round of plasmapharesis for myasthenia gravis.  She is pretty sick herself, but always looking out for me on her good days.  I need to get better so I can help take care of her as her disease get worse.

Thanks for all your thoughts and prayers from this site and others!

Carla

 

 


Epilepsy, severe adult onset asthma, allergies, GERD, depression, hypothyroidism


djdaz_1985
Veteran Member


Date Joined Jan 2006
Total Posts : 2408
   Posted 8/20/2007 2:37 PM (GMT -7)   

Im glad you made it back from the hospital in one piece Carla!

It sounds like you are being fobbed off if i am honest. None of the doctors seem to know what they are talking about and they are basically (If I understand this right) saying that you have sz because of your anxiety and this is going to be helped by seeing a psychiatrist. hmmmmm... Something doesnt smell right to me. But I might be being too skeptical!

Glad your back

Darren


Everyone has a guardian angel. They help pick you up when you fall, comfort you through your times of need and help you appreciate the times when things are going well.
 
Moderator - Epilepsy Forum
Co-Moderator - Depression Forum
 
Help support the forums so we can support you:  http://www.healingwell.com/donate
 


Another Day
Veteran Member


Date Joined Mar 2007
Total Posts : 1055
   Posted 8/20/2007 6:51 PM (GMT -7)   
Darren,
 
You can see why I am frustrated.  I did call today and got an appointment with my real neurologist in a couple of weeks.  I could have gotten in next Monday, but I was concerned about getting a ride.  Of course, according to this guy this weekend, I can drive.  I should have had him put that in writing.  No way do I feel like I can drive myself on interstate in the busy Nashville, TN traffic.  It will be interesting to hear what Dr. Arain has to say about that since I'm still having seizures.  I'll keep you posted.
 
Take care!
 
Carla

Epilepsy, severe adult onset asthma, allergies, GERD, depression, hypothyroidism

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 10, 2016 11:32 AM (GMT -7)
There are a total of 2,735,959 posts in 301,341 threads.
View Active Threads


Who's Online
This forum has 151440 registered members. Please welcome our newest member, Ian88.
252 Guest(s), 12 Registered Member(s) are currently online.  Details
scottishlymielady, PeteZa, blueberrymuffin, Milenita, Tick41, pmm73, Ariel Smith, poohcheez, Traveler, Jozuck12, Tim Tam, Tall Allen


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer