My story mixed with a bunch of questions.

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Sheilamadrie
New Member


Date Joined Aug 2007
Total Posts : 2
   Posted 8/28/2007 3:34 AM (GMT -7)   
I initially believed I was having pre symptoms to a severe migraine. A month later I was diagnosed with Epilepsy. I've had six seizures in two months and I've been fortunate enough that someone was always with me when I had them. My husband thinks I've had seven. He believes I had one while asleep. I don't know. I had a horrible stuttering and speech problem for about an hour after I woke up and I had the shakes real bad. Has anyone else had this happen? Also which is the better position to have a seizure in: on your back or on your side? I don't know any one else who has Epilepsy and I have a gazillion questions. I've tried researching it, but there's so much stuff and I don't know where to start. My doctor isn't sure what caused them, he's thinking maybe a car accident four years ago that I had. (I rolled my truck three times and had a concusion from it) But if that's the case could something of triggered them now? Is it possible that my seizures are triggered by stress? We moved four times in four months (my husband had to go to Afghanistan and we were living in Arizona. I wanted to move back home with my family) We moved a few times while I was looking for a home, because my husband had left before I could find one. We have three kids. Lol a six year old, a three year old with bilateral hearing loss and our baby is only ten months and two weeks younger then our three year old. On top of it when I finaly did find a house it was basically falling apart, and I had no other choices (since I'm a stay at home mom and my husband is the one bringing in the income and couldn't sign the lease) I remodled a four bedroom house in a month (new flooring paint the works) all while having our kids in tow. Well then a friend of mine (who I hadn't really seen in eight years since I moved away) was in a jam and asked for help. I let her stay with me...she caused me all kinds of grief to say the least until my husband threw her out via email. Things finaly got normal and bam. The seizures started...but at first I wasn't sure what they were since I don't have grandmal it never occured to me that it was seizures. I started seeing a doctor for my "migraines" and I also got a full time job. Last month I had a "severe migraine" at work and my best friend (thankfully we worked together) told our boss that she was taking me to the emergency room. Since I was to embaressed to let her call an ambulance. I got admited for a few days and was diagnosed then. Two days later my husband came home from Afghanistan I had two seizures for sure while he was home, and he thinks a third in my sleep. He just left to go back to Afghanistan for nine more months. I'm really lucky that I have a lot of friends that care so much about me that they run errands for me and help me out. I feel so guilty though because they help me so much. I've been trying to not get depressed...but it's really hard not to when I start thinking about not driving for a year, being alone with my kids and still having to do things just like I did before this crap started happening. I know this is wayyyy long, but I haven't had anyone to tell the whole situation too. I'm freaking terrified I'm going to have a seizure when it's just me and my babies at home. I had to quit my job because I no longer had transportation to work (my friend lived in the oposite direction) I have horrible anxiety of dogs. But someone told me that they read if you're close to a dog it can empathize with you and possibly warn you when the on set of a seizure occurs. So I bought a puppy. I'm not scared of it, but I'm not really feeling connected to it other then picking up it's poop off of my carpet. Sorry one more thing and I'm done. Promise. I have never had high blood pressure and my doctor put me on meds for that too. Can the two be related? Sorry again for this long mess and if anyone actually reads all of this. Thank you.

Post Edited (Sheilamadrie) : 8/28/2007 4:38:23 AM (GMT-6)


djdaz_1985
Veteran Member


Date Joined Jan 2006
Total Posts : 2408
   Posted 8/28/2007 5:52 AM (GMT -7)   
Hi there,
 
Being diagnosed with any condition when you do not understand it or know anyone else with it is very scary. Seizures can be triggered by any number of things... Stress, Particular light patterns, Loud Music and head injuries. For me, my epilepsy is stress triggered. I have had epilepsy for 7 years now and there are still things that I am learning today.
 
After a seizure, it is quite common for you to feel very tired, have trouble co-ordinating movement & speech, have a headache etc... so what you describe sounds fairly normal to me and it is something that I have suffered from a number of times. Are you taking anti-convulsant meds? If you are, then mixing them with BP meds can cause an interaction, but your doctor should know about any common interactions.
 
As for the dog... hmmmmmm. What you are being told is true. There are a number of people who have dogs that have picked up on the start of a seizure. I have lived with the same dog for at least 10 years and she has never picked up on one yet. Shes good during the seizure... She sits and makes a lot of noise! lol But she doesnt pick up on it prior to it happening. A puppy is a great friend though! I hope you are very happy together!
 
If you are looking to learn about epilepsy, then you might want to look at the resource centre here at healingwell (http://www.healingwell.com/pages/Epilepsy/). You can always email me if you want.
 
Best Wishes

Darren 
Everyone has a guardian angel. They help pick you up when you fall, comfort you through your times of need and help you appreciate the times when things are going well.
 
Moderator - Epilepsy Forum
Co-Moderator - Depression Forum
 
Help support the forums so we can support you:  http://www.healingwell.com/donate
 


RanMan
Veteran Member


Date Joined Feb 2003
Total Posts : 665
   Posted 8/28/2007 1:01 PM (GMT -7)   

Sheila,

Has your Doctor mentioned anything to you about possible Sleep Apnea ~ could be causing night time seizures that you might not even know about.
The "sleep study or 24/48hour EEG" will be able to tell you if you have it.

If so ~ just getting more oxygen to the brain while you sleep MAY be all you need.

From my own experience.

Randy
__________________
Diagnosed with epilepsy and ulcerative colitis in 1979,
Been on meds ever since.

275mg-dilantin/day
120mg-pheonobarb/day
3,000mg-Mesasol/day

Diagnosed with Epilepsy & Ulcerative Colitis.
Current Medications: Diantin 275mg, Pheonobarb 150mg, Asocol 3,000 mg.


Another Day
Veteran Member


Date Joined Mar 2007
Total Posts : 1055
   Posted 8/28/2007 8:02 PM (GMT -7)   
Sheila,
 
I'm not a pro at this yet since I was just diagnosed a year ago at the age of 55.  When you were in the hospital did they do the EEG for 24 or 48 hours?  This would have been where they had you wired, videoed and monitored around the clock?  I think the initial diagnosis of epilepsy is frightening and frustrating for everyone.  I know it was for me, even though I had a hand full of seizures between the ages of 12 -13. 
 
I know it has to frighten you to be alone with the three small children while your husband is away.  And of course, now you can't drive, which is really a pain, but it sounds like you have a great support system.  You mentioned that you had started a new full-time job.  I'm wondering if you need the money or if you could just not return to work right now considering the circumstances.  I think most everyone on the forum will tell you that stress will definitely cause seizures.  You know yourself and your limits, is this going to be putting too much on you considering that you will have to not only get a ride back and forth to work, but work out rides for where the kids go while you are at work.  You also don't want to push yourself too hard.  I'm just trying to toss some things out there for you to consider.
 
You are much younger, but I know last year when I first started dealing with all of this, I found it so frustrating to just need a few things from the grocery or want to go to the dry cleaners and have to get out of my list of people to call and see who was available.  I am not telling you any of this to discourage you, but if you do feel this way, please know that you are not alone.  I was so glad when I found this forum.  It has been a lifesaver for me as far as asking questions and just getting support in general.
 
We are glad you are here.  Please keep us posted as to how you are doing.
 
Hugs!
 
Carla

 Epilepsy, asthma, GERD, depression, hypothyroidism


Sheilamadrie
New Member


Date Joined Aug 2007
Total Posts : 2
   Posted 9/4/2007 8:11 PM (GMT -7)   
Thanks everyone for the quick responses to my questions. I have a few more...I've been getting more and more depressed everyday and I'm lashing out at the people close to me. My husband is back in Afghanistan and teh kids are stressing me out. I'm feeling sorry for myself (I'm usually a strong person and the one that pushes other people to keep going) But lately I feel like giving up. I'm thinking about calling my in laws and sending my kids to live with them while he's deployed. I don't know why I'm feeling the way I do. My friends are always around and if they're not they're constantly calling me. But I feel so alone in this whole thing. And when I get frustrated I feel like none of them understand. My husband is trying to come home and he needed a letter from me. I had to write how in capable I am of taking care of myself or our kids at this time. I hated wrighting it because it makes me feel disabled. And I don't believe I am. But at the same time I feel like I am. I can't drive or do a lot of things..and now I'm scared to go anywhere. My medication is not working at all. My seizures are getting worse and more frequent. I drooled the last two seizures. Is it possible for the seizures to continue to get worse??? Does any one have any ideas on why they're doing it? My family care doctor said I shouldn't be able to tell what's going on with the seizures...but I KNOW when I start getting that "feeling" (I have no idea how to explain it) I'm also aware of my body tensing up. My friends keep telling me to not feel embaressed..I can't control any of it and they make me feel defective for feeling the way I do. I don't know what to do. I have no one to talk to about this stuff and I'm so miserable right now. I read that depression is common for Epileptics. I'm bipolar too so I get the whole being depressed thing. I just don't know how to get over this. I feel like my life has been taken from me already. I don't like feeling like a drama queen, but if i try to talk to anyone about this i get the feeling that they think I'm exagerating it. If I didn't have kids I wouldn't of gotten out of bed today.

I'd quit my job the day I was diagnosed because my job was thirty minutes from my babysitter which was fifteen minutes from my house...to much driving and not a way to do it.

I'm on dilantin for the seizures

Another Day
Veteran Member


Date Joined Mar 2007
Total Posts : 1055
   Posted 9/4/2007 9:10 PM (GMT -7)   
Sheila,
 
You need to write the letter and don't feel embarrassed.  If at all possible, you need your husband to come home.  On the short term, you are somewhat disabled and having him home could make all the difference in the world by taking the stress off your shoulders.  Please don't think this is going to be a permanent thing for you.  You just need some help getting your seizures under control and your stress level is high. 
 
This time last year I was doing well to feed my cats, change their litter box and take out the trash.  Suddenly, when you can't drive and you aren't used to having seizures; your life is not the same.  I don't know about your medication, I haven't taken it, but I have trouble adjusting to all the seizure medications.  I had to depend on my daughters and friends to take me every where I needed to go.  I do have someone to clean my house.  I can't imagine trying to adjust to all of this and trying to take care of small children. 
 
Sheila, you have been a strong person and you still are.  It takes a strong person to admit that they need help.  I'm one of those people too.  You just need a little help and you will get your life back in order.
 
Hugs!
 
Carla

 Epilepsy, asthma, GERD, depression, hypothyroidism

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, December 05, 2016 5:43 AM (GMT -7)
There are a total of 2,732,900 posts in 301,070 threads.
View Active Threads


Who's Online
This forum has 151224 registered members. Please welcome our newest member, teacher2many.
229 Guest(s), 8 Registered Member(s) are currently online.  Details
don826, teacher2many, PeterK, dacarte3, Sherrine, fibrocushie, JaxCalvin, Traveler


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer