Very frustrated---no epileptiform waves seen yet--just some 'slowing'--I need support

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tanyanubin
New Member


Date Joined Sep 2007
Total Posts : 4
   Posted 10/11/2007 4:19 AM (GMT -7)   
My daughter has been in the hospital since Monday--this is her 4th day, and her second of sleep deprivation. We were so hoping that something would show to explain her odd symptoms, which include 'spells' of seeing things larger or smaller, sudden intense 'realizations' when things seem hyper-real and she gets butterflies and feels fear, odd physical sensations of numbness or altered touch perception, occasional headaches that are a spot of nausea in the middle of her forehead....  Most medications bring it on...antihistamines, alcohol, some antibiotics, any ADHD medications. So far all the neuro has seen is a slowing of the brain waves. They are slower than they should be for her age. Today is her MRI. The neuro won't say anything definate for at least 2 weeks so she can go over all of the testing. Does this sound familiar to anyone? What happens if they don't see anything? My daughter has these 'spells' at least 10 times per day and it is affecting her life--school work, social life, emotional well-being. Thank you all so much for any support or information you can give.

djdaz_1985
Veteran Member


Date Joined Jan 2006
Total Posts : 2408
   Posted 10/12/2007 3:57 AM (GMT -7)   
Hi there Tanya,

It is possible that no epileptiform waves will show, although if you know what triggers it you should be able to induce it so that is some good news for you. As for the MRI, they are a good scanning technique with a good reputation, but the down side is that they can take a while to "read" as you need to know how to do it. Please remember that we are all here for you as much as we can be and I hope you get the answer that you are looking for from the neuro when he has read the MRI

Best Wishes

Darren
Everyone has a guardian angel. They help pick you up when you fall, comfort you through your times of need and help you appreciate the times when things are going well.
 
Moderator - Epilepsy Forum
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