New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

kota
Regular Member


Date Joined Oct 2007
Total Posts : 121
   Posted 10/15/2007 4:06 PM (GMT -7)   
Hello...I have had epilepsy since I was about 9yrs old....luckily mine are absent(petit mal)seizures...I had spinal meningitis as a baby and quit breathing. Doc said I would have some brain damage...ended up w/ epilepsy. I also suffer from depression which has been most of my life. My life was fairly normal...ok not so normal...til I was 28. I was pregnant and at the end of my nine months, delivered a boy c-section emergency style as I was bleeding. two days after I was home, ended up w/ blood clot in my lung(later tested w/ factor V leiden mutation). Blood clotting disorder. Five years later...pregnant again...had another emergencey C-section as a virus made me sick(as well as oldest son)had 4 units of blood as hemoglobin down to 2. Basically having an anemic crisis. Ended up in hospital a week w/ antibiotics. One year later had spleen and gall bladder out(this anemic disorder has to do w/ spleen and goes bad). A year later began getting ill...so diagnosed w/ Fibromyalgia/Chronic Fatigue...the virus didn't go away but went into bone marrow...uff'da. Had IVIG therapy as a result of low white counts...Recently having migraines, hormonal imbalances, can't remember anything. Went to doc and he thinks I could have endometriosis. Well sums up my med probs til now. Any feedback would be great. Am glad to be here. Kota

Post Edited (kota) : 10/16/2007 4:12:10 PM (GMT-6)


Another Day
Veteran Member


Date Joined Mar 2007
Total Posts : 1055
   Posted 10/15/2007 6:24 PM (GMT -7)   

Welcome to Healingwell Kota.  Darren is our Moderator for epilepsy, he lives in the UK and I live in the U.S.  So, until he has a chance to come on line, I thought I would try to answer a few of your questions.  I was only diagnosed with epilepsy a little over a year ago, although I did have a few seizures between the ages of 12 - 13, so I'm sure you know more about epilepsy than I do.  Darren is very well educated when it comes to epilepsy.  I keep asking him how did he get so smart at such an early age.

Gosh, it does sound like you have a lot going on.  I think Healingwell will be a good fit for you as we have forums for different illnesses and a lot of us hop around, I do myself.  After awhile you begin to feel like part of a big family here.

I noticed you mentioned fibromyalgia, chronic fatigue syndrome, depression and migraines, all of which we have forums for here on Healingwell.  I hope you will find that helpful.

Please keep coming back!

Carla


 Epilepsy, asthma, GERD, depression, hypothyroidism


djdaz_1985
Veteran Member


Date Joined Jan 2006
Total Posts : 2408
   Posted 10/16/2007 4:08 AM (GMT -7)   

Hi there Kota and Welcome to HealingWell!

*Thank you to Carla for my introduction!*

As Carla has already said, HW is segmented into different illnesses and you will find each of them a useful source of information and experience. (Follow the Resource Link at the top of the specified page). I also Moderate depression so I get a pretty broad spectrum of experiences and from what you have said, you may find some comfort there too as well as the Fibro Forum.

My epilepsy is stress induced and is Grand-Mal. I had to surrender my driving licence following a car accident where I was the driver and had a seizure. That was in June 2006. Then in December 2006 I had a seizure and broke 3 teeth on a kerbstone. So I am able to re-apply for my licence in December 2007. (Not long now!) Well thats a brief history on me and as Carla has said, I seem to know quite a bit (through experience, readings and being a Psychology student!) so if you want to know something about Epilepsy or associated drugs, I should be able to help.

As for the endomitriosis, I do have some experience here. (Obviously not personally! tongue ) My sister has it and your symptoms do fit... HOWEVER, they also fit a lot of other Gynological problems so I would get a second opinion on that one... preferrably by a specialist.

Feel free to ask any questions you want... remember, if you dont know the answer: its not a stupid question.

Darren


Everyone has a guardian angel. They help pick you up when you fall, comfort you through your times of need and help you appreciate the times when things are going well.
 
Moderator - Epilepsy Forum
Co-Moderator - Depression Forum
 
Help support the forums so we can support you:  http://www.healingwell.com/donate
 


kota
Regular Member


Date Joined Oct 2007
Total Posts : 121
   Posted 10/16/2007 3:17 PM (GMT -7)   
Thanks Carla and Darren for the awesome welcome. Sorry for the rambling of all my info but didn't know how to begin so I guess I have a few other boards to visit. Personally or otherwise have not met many w/ epilepsy so this is cool. Our state(north Dakota)joins Minnesota's epilepsy foundation so I find out a lil there. I have always felt secluded w/ my epilepsy cuz have not sought out many for support as I have a lot of other things going on and I guess cuz it is my oldest problem...I forget about it although I take meds for it. Anyway have a goot day. Kota

sugar1110
New Member


Date Joined Oct 2007
Total Posts : 19
   Posted 10/16/2007 7:44 PM (GMT -7)   
I know what you mean, Kota. Hearing from others who have epilepsy normalizes it a bit. I'm not in a place where I can forget about it (holding out hope I will be soon, though). Still, I'm counting my blessings - I do have a lot of them. From one new member to another - welcome! :-)

djdaz_1985
Veteran Member


Date Joined Jan 2006
Total Posts : 2408
   Posted 10/17/2007 1:52 AM (GMT -7)   

There are quite a few people here with and we are all 'normal'. We all support each other and help each other. That way we can all learn what we dont understand and can pick ourselves up when things are hard.

Darren


Everyone has a guardian angel. They help pick you up when you fall, comfort you through your times of need and help you appreciate the times when things are going well.
 
Moderator - Epilepsy Forum
Co-Moderator - Depression Forum
 
Help support the forums so we can support you:  http://www.healingwell.com/donate
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 03, 2016 10:57 AM (GMT -7)
There are a total of 2,732,122 posts in 300,996 threads.
View Active Threads


Who's Online
This forum has 151159 registered members. Please welcome our newest member, webers.
251 Guest(s), 9 Registered Member(s) are currently online.  Details
Wdan, Michael_T, sararectenwald1, ChickNorris, rockyfords, Jingles1234, Kmuth, MollieMae, minnietoty


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer