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fibrofriend
New Member


Date Joined Jul 2008
Total Posts : 1
   Posted 7/15/2008 2:35 AM (GMT -7)   
 
Hi I new to this forum but not new to fibro and chronic fatigue. I suffered for years before I was diagnosed 5 years ago. Some days I'm sitting on the pity pot, and others I'm ready to fight for my health .  But staying strong when you in pain and fatigued can be exuhsting in it self.  I often feel like suicide but my thought stop immeditatly when I think about what I would be doing to my son. My mother and father are both decesed and at a youg age to not have parents can be devastating. I've been on every narcotic they make and find norco (hydrocodone) the highest strenght is what works the best. I also take a muscle relaxant at night., due to the fact that sleeping pills cause me to walk and drive in my sleep. I have sleep apnea, IBS, chemical senstivities, migraines, bipolar, with major depressive, Ostearthritis, and I am 44 yrs old , fell like 90 some days. Thats my medical problems in a nutshell. I looked at a lot of forums and liked this one. Not alot of critical people. and there is something healing about knowing your not alone.  and you can shre compassion and stories you know will be understanding, which is very hard for people who don't suffer from FM. I hope to develope some online friends who share my problems
Thank you for listening.
 
                                                               Fibr friend in MI
 
I'm locking this post because it's sooo old...Debbie

Post Edited By Moderator (Acheybody) : 7/4/2014 12:04:07 AM (GMT-6)


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40593
   Posted 7/15/2008 5:20 AM (GMT -7)   
Hi Fibrofriend,

Yes you have come to a good forum. Everybody here is good at sharing their experiences and offering advice. I think you will enjoy it here.

You sound like us with the ups and downs. You can never tell with this DD. It is a guessing game.

Feel free to read other posts. there are some good informative ones such as fibro 101 and Who's who in the land of fibrofog. So look around and read as you feel comfortable. We aer all here to support and offer some advice for different things. You know how fibro is.

I hope that you have a wonderful day
hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Tootiebug58
Regular Member


Date Joined Feb 2008
Total Posts : 378
   Posted 7/15/2008 5:49 AM (GMT -7)   
Hi Fibrofriend
I am also from Michigan, so welcome!!! Sorry to hear you are suffering so much.
This forum is absolutely wonderful and you will find many new friends. We all suffer together and we also rejoice together. Its nice to know you can come to a place
where people "believe" how we feel and this is the right place. Post often and
hope you feel better and have less pain free days

Hugs
Tootie
-------------------------------------------
anxiety/panic attacks...osteoporosis....Fibro
 xanax


Southernlady
Veteran Member


Date Joined Jun 2008
Total Posts : 844
   Posted 7/15/2008 6:44 AM (GMT -7)   
Welcome to our family.  You've come to a caring, sharing place. 
You will find this is a good place to come and vent or share a story.  We're all here to listen.
 
God Bless!
Shannon 
Of all the things that I have lost, I miss my mind the most!!!!


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 7/15/2008 7:17 AM (GMT -7)   
Hi Fibrfriend and welcome to our family. I hope your being treated for the depression and bi-polar. I'm glad you see how devastating it would be for your son if you weren't here. So please don't let your mind go there.
 
We will do our best to pick you up when it all gets you down. Read as much as you can on here starting with the fibro 101, second post on first page. Ask questions and vent when you need to. Sometimes just getting everything out makes us feel better.
 
We do understand how hard fibro is but we also know that you can live a full life with fibro, just have to tweak our lives and get our priorities in order. Stress is our enemy.
 
We are always here for you.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


asusan949
New Member


Date Joined Jul 2008
Total Posts : 12
   Posted 7/15/2008 8:03 AM (GMT -7)   

Hi, I am new here too, and everyone seems so nice. There is a lot of good information in the other posts you can read (which I am still going through) that may help you feel better. Have you ever tried a pain patch? I use Fentanyl Pain Patch, and it does a great job with the pain. I have oxycodone for 'break-thru' pain, but have not had to use the pain pills for a long time now. I am also trying a new treatment plan that I talk about in another post titled 'Fibro and Fatigue Centers'.

The new treatment plan involves supplements, IV therapy, and hormones. Ultimately, I would like to come off all the prescription meds I have been on because I have been taking them for so long. Unfortunately, my insurance does not cover supplements, IV therapy, and natural hormone replacement therapy. It seems crazy that my insurance will cover treating my symptoms forever with narcotics that make me sicker (and no cure), but won't cover supplements that make me feel better (and a possible 'cure').

 


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17101
   Posted 7/15/2008 1:25 PM (GMT -7)   
Welcome, fibrofriend!  I'm so glad that you joined us!  We have a great group of people here with some very good ideas and advice to help you live a full and enjoyable life with fibro.  It can be done!
 
Try to keep moving.  That is so important with fibro.  If you don't, you will be stiff as a board.  Walking is a very good exercise for fibro.  In the Fibro 101 thread there is a link to Great Stretching Exercises and they really do work and feel good, too!  They can be done sitting down, so that nice.
 
Hot showers and baths, rice bags, light massage therapy all help, too.  You will get plenty of ideas when reading the threads.
 
I take ibuprofen and Tylenol and malic acid/magnesium supplements for my pain.  I just started the supplements last December and they have helped me a lot.  They don't help everyone but they aren't really expensive so it would be worth a shot.  There is a thread all about it.  I'll bump it up for you to read and think about.
 
We do have wonderful bipolar and depression forums on HealingWell, too.  Look at the top of the page and you will see "Forum Quick Jump".  Scroll down and you can find links to both of those forums.  They will be able to help you too.
 
So, you have come to a very good place.  We all work to help one another.  I do hope to hear more from you soon!
 
Sherrine 
 
 
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40593
   Posted 7/15/2008 2:14 PM (GMT -7)   
Hi Fibrofriend,

I just wanted to say that there is a great group of members on the depression forum also if you ever need to talk.

Hugs to you
Karen...
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Meggie
Regular Member


Date Joined Jul 2008
Total Posts : 408
   Posted 7/15/2008 2:52 PM (GMT -7)   
I am new also and can feel your pain. I to have lost both of my parents (I'm 41) and I would give anything to talk to my mother again. What is it with wanting your mom when you don't feel well. I know that you will get a lot of support from this group. I have cried and laughed while reading some of the threads (keep tissues handy). Also, remember how much everyone here cares about you when you are thinking the unthinkable. I don't know you (yet) but I sincerely care.

I hope you find some good advice with our new friends.

Meggie (also from Michigan)

Chutz
Veteran Member


Date Joined Jan 2005
Total Posts : 9090
   Posted 7/15/2008 9:23 PM (GMT -7)   
Hi and Welcome from Washington State!!

As you're seeing we have a lot of folks from you area here...but also from around the globe. I agree that just knowing that others are out there who understand and care really does help when the going gets too tough.

Keep in touch,
Chutzie
Co-Mod Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.
***************

The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)


Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 7/15/2008 10:33 PM (GMT -7)   
Hello Fibrofriend, Asusan and Meggie, It is wonderful to have all of you here. So welcome to Healing Well and I hope you post often. You have found a wonderful new home here in my humble opinion. Everyone has a healing heart and wants the best for each other.

We are all here to support one another and to lend a helping hand.

God's blessings to all of you.

Gentle Hugs,

Lindaloo
Moderator Chronic Pain
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 7/16/2008 9:01 AM (GMT -7)   
Welcome Fibrofriend, Asusan & Meggie!
This is a great group to belong to for support. Everyone knows what your going through and are such caring people! I was just diagnosed four months ago and I can say I was "blessed" to have found them.
Keep posting and join us on our daily check-ins, we cover a different topic everyday and have a lot of fun. You never know what "Chutz" is going to come up with. She keeps us on our toes! GamJill
 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck
 
Zoloft, Tylenol 4000 mg., Zanaflex


Banyan
New Member


Date Joined Jul 2014
Total Posts : 3
   Posted 7/3/2014 6:02 PM (GMT -7)   
Good evening from Michigan,

I am brand new and still trying to absorb the fact that I have fibromyalgia. When my doctor told me last year I chose to ignore it. Well as you might guess that isn't working out for me.

I am a 24/7 caregiver and although she is in fairly stable health I also care for my mom who is 90. A husband disabled by stroke and a mom who is almost blind, mostly deaf and slightly disabled...the idea of fibro for me was a really, really bad joke.

I sense from reading other posts that I am less sick than many. My pain is mostly limited to terrible terrible tension headaches that last all day and seem now to be controlled by Flexeril. I also have a script for Tramadol, but my worst pains seem to be controlled with the relaxant.

What is deadly for me is the fatigue. I have just come off a rotten cold so my fatigue is probably worse than usual, but last evening I thought if my husband asked for one more thing...I was truly on my last nerve. Exhausted, but I must respond. I can't help but wonder if in the last three years that I have been caring for him, the fact that I am forced t get up, the fact that I have never been able to allow myself the time to be really fed up, because he was always more urgent than myself may have helped me. Left on my own, I can't imagine leaving my couch. I couldn't. That was not an option.

Still for all that I hope so much for a better answer. I am seeing my doctor next week and I will ask for either Provigil or adder all. I have seen you folks discussing the pros and cons for years; Karen, in years past you were clearly a strong adder all proponent. And now?

3 years ago just after my husbands stroke I gave up an art gallery and a group of people that mattered to me where I was well respected to stay home. I thought I could not do it. Instead of going completely crazy ( I am more than a bit crazy) I started learning to meditate. Friends, it saved my life. If you think you can't do it, trust me, I am type A all the way and have either fibro fog or some major ADHD and yes, I quit smoking and learned to sit still. It is the best thing I do and anyone I know who also has learned says the same.

And so, I introduce myself with a request for information and a hope that my experience might help another. This is a hard disease to accept. I have to tell you, for someone with my personality it feels like some sort of personal defeat. I always subscribed to the idea if it doesn't kill ya it makes ya stronger. Apparently, there is another possibility...if it doesn't kill ya...it can give you fibro. Ratz.
That will be as negative as I care to get publicly, I really have a much better live than many would imagine. Good luck to you all.
Banyan
May I be filled with loving kindness
May I be well
May I be peaceful
May I be happy.

Kvigil59
New Member


Date Joined Jun 2014
Total Posts : 5
   Posted 7/3/2014 8:08 PM (GMT -7)   
Hi Fibro friend in MI, I am also new to the group as of last week, I am Fibro friend in CA. It's nice to meet you. I have many of the same symptoms you have, I am 55 and started with this about 10-15 years ago not knowing what was going on until 2007 one morning could not get out of bed sue to the pain. Since then living on Duragesic Fentanyl pain patches and Oxycodone to see me through tougher days. Other things I take for sleep, anxiety, depression, etc.
I am so glad you're here for support and friendship and I'm glad to be her too. I hope we become good friends and get through this together until a cure can be found ;-)
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