Any of you tired & sleepy most of the time?

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

gmaA
Regular Member


Date Joined May 2007
Total Posts : 117
   Posted 7/19/2008 11:38 PM (GMT -7)   
  I am just wondering; I know fatigue is part of fibro, but I am like this an awful lot.  All my life pretty much I have gotten tierd easily even when I was very active.  I did have mono when I was 13 y/o.  I was diagnosed with fibro last year, but I was really tierd before that.  I also have really, really bad ibs and every since I got this stuff in 2004 it seems like I am tierd all the time.  I got a little better for awhile  in 2006, but then started getting worse again beginning of 2007.  Some days I have more energy than others and can actually get right much done in my house or go somewhere for awhile and do pretty good.  For a long while now, I stay tierd and am very easily exerted.  I rest a lot and I sleep quite a bit.  I try to stay awake and not be so fatigued, but I am still just worn out feeling.  I thought fibro comes in flare-ups, but I seem to be in a flare 9 times out of 10.  I have so many things I want to do, but some days I can't do anything hardly.  I just wonder how many of you feel this way, or if this might be coming from something elese.  I do have depression and I know that can cause it as well, but even when I am not depressed feeling, I still feel like this a lot.   Just curious about your energy level and if this is somewhat normal for fibromyalgia and what ya'll do or take to help this?  Thanks for any advice.

Have a wonderful pain free day, Anne.

IBS, fibromyalgia,arthritis, depression, anxiety, PTSD, GERD, migraines, past endometriosis, ovarian cysts, polyps in uterus = hysterectomy, gallbladder removal; liver resection

cymbalta, amitza, vivelle patch, fentanyl patch, oxycodone, levisyn, restoril, xanax, phenergan, mobic, fioracett, skelaxin


Mrsppmrxky
Regular Member


Date Joined Jul 2006
Total Posts : 380
   Posted 7/20/2008 3:49 AM (GMT -7)   
Floss, I tire very easily and many times I will have days where I need to sleep, sleep and more sleep.
 
One of the problems that 'we' seem to be guilty of that adds to the tiredness is that on a good day, we push and push to get as much done as we possibly can and then we pay for it for about another week in pain and or in bed.
 
I am just as guilty as the next person!  Yesterday I had to get out of the house.  My youngest DD and I went to do errands and were gone about 5 hours.  I came home and sat downstairs before going up to my room and within those few minutes, I became so still I could barely move.  When i stood up, I was all bent over and could have cried at the pain in my feet and legs.
 
I noticed that the list of medications you take could be adding to the tiredness and the many hours of sleep.  I do not know how often you take the oxycodone or the phenegran, but if I were to take those, I would have to kiss the day or night goodbye.  My oldest DD takes skelaxin for back injuries from wrecks she has been in and when she takes those, some days she will be okay and others, she will sleep the day away.
 
Have you had a sleep study done?  I have noticed a pattern among many of the people with fibro.  Many of us seem to need CPAPS for apnea.

Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 7/20/2008 7:36 AM (GMT -7)   
Fatigue is my biggest complaint too Floss. That was my first symptom before the pain ever started. It has gotten worse over the past 10 years. I had my six year old granddaughter for a couple of days and by the time she went home I was so fatigued I felt like it was an effert to breath I was so tired. I have energy a few hours a day and when it is gone it's gone, there is no pushing.
 
I tried cutting back on the amitriptyline this spring to see if that had anything to do with it and ended up in the worse flare ever so went back up to 100 mg. I'm not on any narcotics so that is not my problem. I think with fibro some have more pain and some have more fatigue, I got more fatigue.
 
It is very frustrating cause I can work through the pain most days but not the fatigue. I have been on co q10, super B complex, extra B12 and a multi vit for the past few months and they seem to be helping a little but not that much. I'm going to ask doc tomorrow if there is any other vit that may help. Mine is not sleepiness, it's just bone tiredness. I tried provigil and adderall. I'm also starting water therapy to see if that may help build me up.
 
I hope we find something for this part of this DD.
 
luv and hugs
Marlee
 
 
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 7/20/2008 8:25 AM (GMT -7)   
Hi Anne-
  I just got fibro 3-4 months ago and BAD! I also got depression with it and the fatigue was crippling. My Dr. started me on Zoloft and after 2 weeks I began to notice a difference. The severe fatigue has lifted and I do have some fatigue yet but I'm starting to function.
 
I don't take naps unless its to put my head back on the couch and rest for 20 minutes. I go to bed and get up around the same time everday.
 
I only take Tylenol Extra Strength 4,000 mg. for pain and Darvocet if it gets real bad. I can take Lyrica thats prescribed but have not started that yet. Can you ask your Dr. about maybe switching meds around a little bit? Maybe one of them could be causing the sleepiness?
I think I am going to be one of them that has more pain and less fatigue. I don't know which is worse. GamJill


 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck
 
Zoloft, Tylenol 4000 mg., Zanaflex

Post Edited (GamJill) : 7/20/2008 9:52:57 AM (GMT-6)


entee
Regular Member


Date Joined Jul 2008
Total Posts : 33
   Posted 7/20/2008 9:20 AM (GMT -7)   
Hi Anne,
I'm right there with you in being frustrated with fatigue. I just retired from teaching a year ago and I was so looking forward to doing so many things and completing so many projects. Now I just sit here and think about them and look at things that need to be done, but I don't have the energy most of the time to get up out of my chair. I agree with Mrsppmrxky about pushing hard when we feel a little better and then paying for it big time. It's really a frustrating way to live!
My dr. just increased my dosage of Elavil and I'm now taking 100 mg. before bedtime. I've slept much better the last couple of nights so I'm hoping that will take away some of my fatigue. The fatigue is much more of a problem for me than the pain. I can pretty much keep the pain under control with Vicodin (3-4 per day), but I've tried many supplements, too, and none of them seem to make a difference. I keep looking for the "magic" solution, but so far I haven't found it.
I agree with some of the others in this post, though, that you might want to check with your dr. about all the meds you are taking. Some of those are really potent and I know they'd knock me out completely!

Hugs, Nancy
 
fibromyalgia, arthritis, mitral valve prolapse
 
Fix your thoughts on what is true, and honorable, and right, and pure, and lovely, and admirable.  Think about things that are excellent and worthy of praise.  Phil. 4:8
 


gmaA
Regular Member


Date Joined May 2007
Total Posts : 117
   Posted 7/21/2008 4:24 AM (GMT -7)   
I am sorry to hear that we all seem to have this fatigue to some degree. I do push myself when I feel well, and sometimes won't sleep at all that day or that night - it is like I feel so good and I am just wired. I have tried to pace myself and I admitt sometimes I do pretty good and other times I just blow it. As far as the pain meds, I have built up a tolerance to that as far as the sleepiness I have been on narcotics so long. The phenergan I don't take everyday, but I have been on it for over 4 years regularly, so that doesn't put me to sleep either. My doctor is quite aware of these problems and says it is just part of my chronic conditions and feels very bad that I have to go through this, especially being so young. He has also seen me in some of my very worst times and has had to send me to the ER numerous times and I always had dilaudid, phenergan, toredol among other things; the last time I was there I had to have 6 mg of dilaudid, before it even touched my pain for ibs. Anyway, I have been on heavy doses of narcotics for long periods of time when I was hospitalized numerous times in short periods.
The thing is, even if I don't take the oxycodone and the phenergan, I may still do this and I may not get sleepy, like I said and just be wired.
I just hate having these chronic conditions, I just absolutely hate it. At times I feel like I have a pretty good handle on it emotionally and have accepted it and other times I feel so worthless, like dead weight around my own house.
Basically, I just wondered if I were alone in the amount of fatigue I have. Thanks for your replies.

Have a wonderful pain free day, Anne.

IBS, fibromyalgia,arthritis, depression, anxiety, PTSD, GERD, migraines, past endometriosis, ovarian cysts, polyps in uterus = hysterectomy, gallbladder removal; liver resection

cymbalta, amitza, vivelle patch, fentanyl patch, oxycodone, levisyn, restoril, xanax, phenergan, mobic, fioracett, skelaxin


Tootiebug58
Regular Member


Date Joined Feb 2008
Total Posts : 378
   Posted 7/21/2008 4:53 AM (GMT -7)   
Hi Floss
Sorry you are feeling this way, but I sure can relate with this tiredness and feeling sleepy. I get up early and by 10:00 I am ready to sleep again. It takes all my energy to run errands in the morning and then the afternoon I am just whacked out.
Dinnertime is the hardest for me. Sometimes I can hardly stand in the kitchen and cook. By 8 p.m. I am on the couch, half asleep and in bed by 10:30. I hate this feeling, just hate it. I use to be on the go all the time and I am lucky if I can go to
three different stores in one day. Alls we can do is take one day at a time, but it sure is frustrating. You are not alone in this. Have a great day

Hugs
Tootie
-------------------------------------------
anxiety/panic attacks...osteoporosis....Fibro
 xanax


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40581
   Posted 7/21/2008 6:55 AM (GMT -7)   
Fatigue is my main problem too. I can handle the pain. I take adderall for the fatigue and it is a Godsend. It keeps me awake and gives me energy. I honestly think that everybody with fibromyalgia should be able to take it.

Talk to your doctor about something for energy. There are others besides like adderall as Marlee mentioned, there is provigil. Also ritalin helps. There is no sense of being so fatigued all the time, so see what your doctor says.

Best wishes and good luck,
Hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 7/21/2008 7:33 AM (GMT -7)   
The problem I had with the adderall Karen was trying to find a dose that gives energy without causing anxiety. It might work better for those that don't have anxiety problems.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40581
   Posted 7/21/2008 7:56 AM (GMT -7)   
Try taking a xanax with it Marlee, or have you already tried that? I know that you want energy so bad. Have you ever tried Ginseng? Or Bee pollen, actually the Royal Jelly is even stronger than the bee pollen. That is a couple natural energy producers that I know of.

I wish that you could find somehting to help you.

Luv and hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


gmaA
Regular Member


Date Joined May 2007
Total Posts : 117
   Posted 7/29/2008 1:34 AM (GMT -7)   
I think I will ask my doctor about something to help with the fatigue, because I hate not having so little energy. Some days I do pretty good, but most days I am just wiped out, I do a little something and I have to stop, because I don't have the stamina to go on any longer. Plus, if I push myself then I get sick and my back really acts up. It just seems like there is not a good balance.... I just can't seem to get it right. I do have anxiety, so adderall may make me anxious, but I am going to talk to him about it next visit.

 

Severe post-infectious IBS, fibromyalgia, arthritis, depression, anxiety, PTSD, GERD, migraines, past endometriosis, ovarian cysts, polyps in uterus = hysterectomy, gallbladder removal; liver resection due to adenoma.

Anne


Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 7/29/2008 11:03 AM (GMT -7)   
Ann and All,
Have your doctor run a TSH (thyroid stimulating hormone) test. Low TSH levels are common with Fibro and most of us are low on thyroid and need to supplement. I still have fatigue as a fibro factor, but I no longer feel like I'm dragging my feet through wet cement.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


Southernlady
Veteran Member


Date Joined Jun 2008
Total Posts : 844
   Posted 7/29/2008 12:42 PM (GMT -7)   
I have more problems with fatigue than I do pain.  I handle the pain with 50 mg. Lyrica, but so far it isn't helping my energy level.  I start back to school Thursday and I get so tired walking up and down the halls. Today I have been canning tomato juice and sauce and I have to sit down between batches and rest.  So far I'm not hurting any more than usual but I'm so tired I can hardly make myself get up when I get through typing.  I shouldn't have any trouble sleeping tonight. 
 
When I go shopping I'm so tired after 2 or 3 stores that I have to come home and rest the whole evening.  I don't dare try clothes on anymore. That wears me out too.  I end up having to take things back a lot but it's better than wearing myself out trying on things.
 
Jeannie, you descibed my feeling so well.  Dragging my feet through wet concrete is exactly how I feel.  I'm going to use that term again if it is all right with you.  My dh is really understanding about my Fibro, but he is really hyper and he just can't imagine when I tell him I can't go another step.  I'm going to have him read this thread and show him it's not just me.
 
God Bless!
Shannon
Of all the things that I have lost, I miss my mind the most!!!!


2tmoose
New Member


Date Joined Jul 2008
Total Posts : 15
   Posted 7/30/2008 3:19 AM (GMT -7)   
Hi Floss,

I was told by my sleep specialist that people with FMS have weird sleep patterns. They have alpha and delta waves when they sleep. The delta waves are only supposed to be there when you are awake. Therefore, when you sleep, you feel like you are awake, and when you do awake you feel like you have not slept. You have to decrease the amount of delta waves when you sleep to feel less fatigued when you are awake. Different people have success with different sleep meds, or unlike myself, have found nothing that helps me sleep as far as meds. I have to use things like very warm showers before bed or making sure I do not have a list of things that need to be done to think about. The Lyrica that some people have had success with sleeping does not help me. You may have to try the hit a miss with meds until you find one that works, or find your own sleep routine to help you sleep. My sleep dr told me that I just had to do what my body wanted, which meant sleep when it wanted and be awake when it wanted. I have managed to go from that to some sort of routine that goes along with my husbands, but not always. Best of luck finding a solution. There is one out there somewhere.

2tmoose
Tomorrow is another day......and it might be better!


Tapestryloom
Regular Member


Date Joined May 2008
Total Posts : 169
   Posted 7/30/2008 6:14 AM (GMT -7)   
Hi!
The fatigue is so common with fibro. If I wasn't sure I had fibro before.. now I do because of the terrible fatigue! I can so relate to being so sleepy around super time.

Here are a few things I have tried. Be sure to discuss it with your Dr. first though.
The L-Tyrosine is an amino acid and harmless.

Greentea extract with ginsing
Vitamin B12 (this only worked for a week for me)
St. John's wart or 5-HTP these are natural antidepressants and will lift your energy. The St. johns should not be taken with zoloft or similar antidipressants.
exersize?

I hope this helps. I just started on 25 mg. of Zoloft for depression. This is the first time I have had to take an antidepressant. I am starting very low because I am afraid of the side effects

Good luck everyone
Carolyn
I am a mother to 4 children; James 7 mo.'s, Davey 2 yrs, Dana 4 yrs, and Anne 9 yrs.  I am currently studying to become a natural childbirth educator.... and just trying to figure out where my priorities are right now.


Ingenua
Regular Member


Date Joined Jul 2008
Total Posts : 82
   Posted 8/2/2008 8:04 PM (GMT -7)   
Fatigue is definitely my main problem too. The pain isn't constant. and when i get it it's usually pretty mild. the flare ups don't happen often.. (thank God!) *knock on wood* hehe


but yes.. i'm tired almost always.. and i'm a hyper person.. so, i find myself tiring easily because i use up my energy quickly.

plus.. my job is very physically demanding and it consumes me. i know my job isn't probably the best for someone with FMS.. but i couldn't imagine not being there. i like being there. and i like being active.

broomhilda
Veteran Member


Date Joined May 2007
Total Posts : 1488
   Posted 8/2/2008 9:11 PM (GMT -7)   
Floss, you pretty much have described me to a T. Do you see a Gastro for the IBS? What sort of tests have you had run to diagnose IBS? I am asking because I am a Crohn's patient and all too often both go misdiagnosed. All contribute to the fatigue. Where is your stomach pain?
Dx'd Jan'06, 1st Resection 7/06, Humira, Imuran, B12 injections, Nexium, Lexapro, Glucosamine, Multi-Vitamin, Ultracet Secondary conditions: Psorasis, Osteoarthritis, Fibromyalgia, Lactose Intolerant, gallstones, peri-menopausal.


Sue2z
Regular Member


Date Joined Jul 2008
Total Posts : 368
   Posted 8/3/2008 7:07 PM (GMT -7)   

Just wanted to say I can have days in a row where every 5 mins my head drops to my chest and I doze for 5 mins and it repeats all day and for several days then it goes for a few days and it doesnt depend on my nightly sleep so I think its a combination of the meds we all take plus it is a symptom of fibro as well. I was forced to buy neck brace because my head kept dropping and hitting chest.to all out there who doze while sitting in couch   get a neck brace  its fabulous,  you gt to doze without hurting your neck.


MT Lady
Veteran Member


Date Joined Jul 2008
Total Posts : 955
   Posted 8/3/2008 8:14 PM (GMT -7)   
Hi everyone! I certainly can relate to the fatigue issue. Wondering if anyone has tried eliminating foods? Especially with IBS. I am finding a correlation of FM flares and for me, foods like gluten, cane sugar and coffee. I know it sounds strange, but there really does seem to be some tie-in. Also a low carb diet can help fight fatigue. Most of this information can be found reading natural approaches to wellness. Believe me, I still depend on my prescription medications, but I have seen a difference in how I feel, both pain and fatigue yeah

Tapestryloom
Regular Member


Date Joined May 2008
Total Posts : 169
   Posted 8/4/2008 6:14 AM (GMT -7)   
What about Adderal and Zoloft? I heard that the adderal is great for energy too.
The Zoloft kills your drive and maybe the adderal would help curb that?
Carolyn
I am a mother to 4 children; James 7 mo.'s, Davey 2 yrs, Dana 4 yrs, and Anne 9 yrs.  I am currently studying to become a natural childbirth educator.... and just trying to figure out where my priorities are right now.


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 8/4/2008 6:46 AM (GMT -7)   
Sue2 where did you get your neck brace??? I have a trip coming up and riding in the car with the starting and stopping is hard on my neck.
 
I'm going to work on cutting the sugar out of my diet. It's going to be really hard for me but I know from past experiences that sugar does drag you down.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin

New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, December 06, 2016 11:00 AM (GMT -7)
There are a total of 2,733,555 posts in 301,133 threads.
View Active Threads


Who's Online
This forum has 151270 registered members. Please welcome our newest member, marciac12.
340 Guest(s), 15 Registered Member(s) are currently online.  Details
marciac12, Scaredy Cat, mpost, Mad Martha, jabele, KatieBwithUC, pmm73, WORLD HEALING, Bobby Mac, ks1905, NCOBJIM, peanut307, Traveler, Blu's Mama, straydog


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer