why would ANA appear and disappear? do pressure points do that too?

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Date Joined Jul 2008
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   Posted 7/25/2008 2:18 PM (GMT -6)   
Seeing the doc on Tuesday and thought surely someone here would have an answer so I can ask an intelligent question of her.
Why would Anti Nuclear Antibodies appear in bloodwork one time, then be gone a couple of years later?  Is this customary behavior for ANA? 
Also, are pressure points sensitive all the time?  I have two spots on my neck/collarbone area that send me through the roof if they are touched just right.  A woman in my church said a demon had ahold of me!  I don't take that literally, even though I think she meant it that way . . . but maybe figuratively.  
Other points I don't know how to check (or even if the neck ones are in the right place).  Do pressure points come and go depending upon whether I am having a good day or bad day?  I just don't want her to say something like, your ANA is negative (or) the pressure points are not there so nothing is wrong, when it could just mean nothing is flaring up at the moment.

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Date Joined Apr 2005
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   Posted 7/25/2008 6:12 PM (GMT -6)   
Hey, Sue!  If the woman in your church was right, that means we are all, on this forum, demon possessed!  devil    I know some think I am!  tongue
My pressure points have come and gone.  If I'm in a flare they are worse.  They seem to move around, depending where my pain is that day.
I don't really know much about the ANA testing so I can't help you there.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

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Date Joined Jun 2008
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   Posted 7/25/2008 8:57 PM (GMT -6)   
Last time I went to the doctor's I just about hit the roof everytime he hit a pressure point. Yesterday, I was only sensitive to 3 out of the 12 I had. I juts asked that very same question, adn Sherrine came to my rescue! Good luck at your appointment, let us know how it goes :)
in the land of Limbo, taking OTC meds only.
Don't know what's wrong, can't fix it, doctors are so sloooow!!!

Veteran Member

Date Joined Dec 2007
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   Posted 7/25/2008 9:04 PM (GMT -6)   
Yeah, preasure points definetly move around and/or, are more sensitive some days than other. ANA definetly changes with time. I can't explain why but it does.

Veteran Member

Date Joined Feb 2003
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   Posted 7/25/2008 9:18 PM (GMT -6)   
Yep, Sj is right about the ANA thing.  Mine was positive at 1:1280 when i was diagnosed with lupus.  Then 4 years later it was negative, now it's positive again.  All depends on if those antibodies are active and present.  I don't really have an explanation either, LOL.... Autoimmune function is wacko-bizzaro. confused
My tender points are always there, but I have pain elsewhere that moves around.  But my pressure points have never gone away. I guess it's a bit different for every person.
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

Veteran Member

Date Joined Jul 2008
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   Posted 7/25/2008 9:46 PM (GMT -6)   
Hmm, that answers my question, I think. It is quite confusing, isn't it?!

Regular Member

Date Joined Jun 2008
Total Posts : 79
   Posted 7/26/2008 12:29 AM (GMT -6)   
my rhuemy suspected that i had scleroderma and lupus because of some tale-tell rashes....i had the ANA test and it was 'inconclusive"???? what the heck? i might have lupus and i might not....then i did some research....the anitinuclear antibody test is only 50% correct most of the time....that would mean that you can have lupus or RA and the test wouldn't show it half the time...so, why wouldn't it be plausible that it would show that you do not have it half the time, even when you do? i think it is the only halfway viable testing strategy they have, so they use it for diagnostics....

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Date Joined Apr 2005
Total Posts : 17059
   Posted 7/26/2008 10:39 AM (GMT -6)   
Yes, fibro is confusing.  That's why it takes so long for a diagnosis!  You want to rule out other things first.
Forum Moderator/ Fibromyalgia
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Veteran Member

Date Joined Aug 2007
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   Posted 7/26/2008 11:32 AM (GMT -6)   
My head is spinning around and I'm spewing split pea soup. devil For the most part my tenderpoints stay sore, sadly. But there are a lot of symptoms that I've never had, like stiffness. The list of symptoms is what people have experienced but it doesn't mean everyone has them all.
It seems lupus can be confusing also. My oldest son was telling me about a friend of their's that was dxd with lupus, even had some kind of biopsy that showed lupus. She went to a specialist and all the test came back negative for lupus. I have met this lady and she is such a sweetheart and will keep up with what they find with her. I'm curious to see if she is dxd with fibro actually.
The human body, what a puzzle.
luv and hugs
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getting by
Forum Moderator

Date Joined Sep 2007
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   Posted 7/26/2008 3:03 PM (GMT -6)   
I had never heard of anti nuclear antibodies. And what would be a nuclear antibody? Nuclear sounds like a bomb.

Now my head is spinning, there is so much that I am still learning about this DD. I quit getting my fibromyalgia network newsletter. I think that I will re sign up for it. I am getting out of the loop. I did order the fibromyalgia for dummies though. Maybe that will catch me up.LOL..

hugs, Karen
  Moderator-Depression and fibromyalgia
fibromyalgia, Chronic fatigue, depression,allergies

New Member

Date Joined Oct 2014
Total Posts : 18
   Posted 11/28/2014 1:08 PM (GMT -6)   
My ANA was positive so my PCP sent me to a specialist. I was diagnosed with lupus and fibro. I ignored everything for three years than my PCP decided I needed to see a specialist cause my ANA was positive a lot more. He did lab work,it was neg so he told me I don't have lupus. This is the same doctor that told me he can't do anything more for me than What my PCP. So I stopped seeing him again and ignore the fact that he said I don't have lupus lol.

Forum Moderator

Date Joined May 2005
Total Posts : 6942
   Posted 11/28/2014 7:08 PM (GMT -6)   
Lupus CANNOT be diagnosed by lab work!!! I don't know where these Drs come from who think you can do that.

A positive ANA indicates you might have some sort of auto-immune disease, and you need to be fully examined by a Lupus-aware Rheumatologist. One way to find one in your area is to check with www.lupus.org, locate your local chapter, then contact them and ask which local Drs are active on their advisory board. These will be the Drs you want to see if you suspect any kind of auto-immune disease such as Lupus. These are the ONLY guys fully qualified to diagnose and treat Lupus!!!

Lupus is diagnosed by having 4 of 11 possible symptoms. You may or may not have a positive ANA, it is NOT a deciding factor.

Best wishes.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2002
"Life is far too important to be taken seriously." - Oscar Wilde

Nana Monster
Veteran Member

Date Joined Jul 2009
Total Posts : 949
   Posted 12/1/2014 3:27 AM (GMT -6)   
Lynnwood, there is a new test for Lupus called a double strand DNA test and the high end is a 9
unfortunately I'm a 13 so it's a definite I have it. Have no idea how long it's been out but it was done
on me last year and was a positive result.

I like to use massage for my trigger points in my spine and back. I can't afford a real one so I have
3 great grandkids who do it for me. I'm teaching them about the trigger points and how to dig into
them to disperse the pain....hurts when it's done but I feel much better afterwards.
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