Where is your pain?

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tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 8/1/2008 6:43 PM (GMT -6)   
My doctor blows me off when I ask for something stronger. He gives me two tylenol3's four times a day. it takes three just to take the edge off. I used to take Vicodin and it worked, one 10 mg. tab five times a day. I take 100 mg. amyltriptilene at night. I don't understand it at all. I've run out of pain medication and have to suffer for a week to get more. My pain is in my left shoulder blade and up to my neck. all down the left side of my body. In my left hip and down the thigh muscle, into my left ankle. Also, sometimes my right lower back is involved. The most devastating pain is spinal pain. It's like I fell and hurt my tailbone but I didn't fall. I get pretty bummed out about it sometimes.It feels like I went ten rounds in a boxing match each morning. When I see my doc, and he refuses to up my meds, like give me something more effective or refer me to a pain clinic. He scoffs. What can they do for you thet I can't do, and besides, it'll take at least two years. So, I expect to still be miserable in two years, so let's get at it. Then he'll tell me the tylenol three doesn't work for Fibro, well doc, I don't know how to break it to you but, yes, it makes it possible for me to get out of bed in the AM and get about the business of life. As opposed to trying to sleep the flare-up away by taking amyltriptilene during the day, which puts me in LaLa land where I can't talk, walk or even think straight. I'm venting, sorry, it just seemed appropriate when so many other of you are right where I'm at, right now. In pain and wondering which move to make (maybe a new doctor who'll listen and take me seriously). I haven't tried Lyrica, but as I've been on every wonder drug that came down the pike, with usually, disasterous results, and I already carry twenty pounds I shouldn't due to inability to "get moving" while in pain, I'm scared to try any new wonder drugs. Thanks guys. 

Sue2z
Regular Member


Date Joined Jul 2008
Total Posts : 368
   Posted 8/1/2008 7:55 PM (GMT -6)   

nanno, that is what I find hard, is it the joint or muscle and ligaments.  My rheumatologist wants me on these cell alterating meds but I dont think that its arthritus as such,  though apparently fibro can lead to arthritus.  The ligaments feel like someone has tried to pull them from the bone and the burning is so deep down only another fibro person could relate to.  Either way I find antiflammatory drugs do help.


Sue2z
Regular Member


Date Joined Jul 2008
Total Posts : 368
   Posted 8/1/2008 8:00 PM (GMT -6)   

tyno3,  I was so bad that I was suicidal, it felt like I was on fire and no one could understand, then I saw a pain specialist I was initially fogged off but he took pity on me and put me on a drug called  "norspan patch" all the pain lifted.  A doc can prescribe so can pain or rheumatogist.  It really saved my life, they are meds its just such a battle to get them.


Sue2z
Regular Member


Date Joined Jul 2008
Total Posts : 368
   Posted 8/1/2008 9:17 PM (GMT -6)   

try the lyrica, I have 150 in the morn and the same at night, it really does help with burning sensation and is a mild relaxant.That and the norspan patch have reduced my pain by 70% right  when i thought there was no hope I finally got the help I needed by a rheumatolgist is important, he was the one who gave me the patch which is an opioid drug and he sort of understood the pain I hate my doctor as I really feel he holds me life in his hands and I feel he knows it...    its taken over two years for my doc to come to terms with it and it is barely.  I take my husband in sometimes so he can verify what I say.


Sue2z
Regular Member


Date Joined Jul 2008
Total Posts : 368
   Posted 8/1/2008 9:26 PM (GMT -6)   
to Sherrine, cant thankyou enough for your lovely welcome, for the first time I feel like I am a part of something, I cant explain how much better even mentally I now feel, It is like the lid taken off an bottle. Thankyou for your support. Sue2z

Lindaloo
Veteran Member


Date Joined Sep 2006
Total Posts : 1713
   Posted 8/2/2008 6:15 AM (GMT -6)   
Hello, when I was first diagnosed with fibro I would have it for about a month and then it would go away for several months and then I would have a "flare" again. This went on for about the first 20 years of fibro. Then all of a sudden, I was in pain all day everyday. My pain is mostly in my legs and feet. My feet feel like the bones are broken and they just hurt all the time, well, not so much now with the lyrica thank goodness. Sometimes, I have pain in my upper extremeties as well, especially in my outer upper arms. I also have it in my lower back and hips. Wow! when the doctor does her exam I go through the roof and she knows to touch me very gently, but I am still so very sensitive!

Well that's me in a nutshell and what a perfecdt place for me, seeing as I am a nut.

I hope you all have a better pain day and that you find something that helps. The lyrica and the percocet are controlling my pain for now.

Thanks for letting me share.

Gentle hugs,

Lindaloo
Moderator Chronic Pain
 
Believe in yourself.  Be kind to fellow humans and animals.  Take time to smell the flowers and the coffee.
And by all means, when you are down, ask me for help.  I will be there.
 
Linda

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