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MountainLady
New Member


Date Joined Jan 2008
Total Posts : 13
   Posted 7/31/2008 9:56 AM (GMT -7)   
 Does any have any ideas on how to regain my energy I use to be so active and now so tired and weight gain and so unhappy

Gamma
Regular Member


Date Joined Feb 2008
Total Posts : 233
   Posted 7/31/2008 10:24 AM (GMT -7)   

Hi Mountain Lady,

I don't believe I have welcomed you to our little family.  I hear ya about the weight gain, being tired and unhappy.  All these things can quickly lead to depression.  First thing that you have to do, and the hardest, is change you outlook.  I know, this is not easy, you see no rainbow in you rainy sky, but it will make all the difference.  Believe it or not, you can regain some of that energy by exercising.  Walking, yoga, pilates, swimming, gentle stretching just to name a few.  Who knows, maybe it will help with the weight gain  as well.  Start out slow and gradually build up your endurance.  Take a multi vitamin and rest when you need too.  Your body will tell you what to do, you just have to listen.  Things will get better if you care to follow this simple advice, I'm sure others will have some good suggestions too.


Gentle hugs,
 
Gamma
 
Fibro, Osteoporosis, OA, RA, DDD, IBS, Vertigo, Tinnitus, Carpel Tunnel, Epilepsy, TMJ,  Hypothyroidism, Familial Tremors, Spasms, Neuropathy, Trigeminal neuralgia, heel spurs
 
 


anstar
Regular Member


Date Joined Jan 2005
Total Posts : 249
   Posted 7/31/2008 10:30 AM (GMT -7)   
I'm dealing with this too. The unrelenting fatigue is worse than anything else I deal with. It's not 'tired' per se. It's just a complete lack of energy. It takes everything I've got to get out of bed, or off the couch. The least little exertion has me struggling for days. :( I haven't found a way around it either. I've tried the vitamin route and noticed no difference after several months. I don't have any answers; just wanted to let you know I know what you mean.

getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40591
   Posted 7/31/2008 10:56 AM (GMT -7)   
I got help with a prescription medication called adderall. It is a dextroamphetamine (sp). It really helps me. Not all of us want to go the medication route, but I swear this helps me to be able to do things during the day. Otherwise I would be sleeping.

I hope that this helps some.

hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


Meggie
Regular Member


Date Joined Jul 2008
Total Posts : 408
   Posted 7/31/2008 3:56 PM (GMT -7)   

Welcome Mountain Lady,

I understand!  Fatigue is a big part of my fibro.  Today is my oldest daughters 15th birthday and all I have wanted to do is crawl into bed.  I have managed to get through most of the day by looking into her smiling face.  I can't disappoint her.  I don't no what causes me to be so tired all the time but I have noticed that refined sugar is a trigger.  A piece of cake and I am dragging for days.  I have tried to cut out refined sugar (and I love sugar), I do feel better but definitely still having bad days. It was recommended to me that I keep a journal.  Maybe I would notice a pattern.  I wish I had the energy to do it, maybe that would be a good idea for you.

I must add that I to have gained weight and it really depresses me.  I want to exercise but some days it is just to hard.  Weight gain causes more fatigue so what do you do?  I think the first thing is to not be so hard on ourselves.  We also need to push ourselves a little to move.  Even a short walk will help. Take one day at a time.

Know that you are not alone, so many of us have the same problem and just talking about it can bring relief.

Ok, I'm going to eat a piece of cake with a big pink flower on it.  Well, I can't disappoint my daughter on her birthday tongue .  If I'm on the forum tomorrow, I probably won't be making much sense so I apologize now (the sugar really does go straight to my head, I'm a bumbling idiot after I eat it).

Meggie


tyno3
Veteran Member


Date Joined May 2008
Total Posts : 1081
   Posted 7/31/2008 4:25 PM (GMT -7)   
It's a double whammy. A challenge to even get up. I try to push through it, Fibromyalgia lays me so low some days. Then, by the time the pain relents, the body has atrophried and has to be brought up to a reasonable level. Then, by stretching and straining and trying to lead a "normal" life, I end up back in bed, barely able to move. I think I need an attitude adjustment.

solar powered
Veteran Member


Date Joined Nov 2007
Total Posts : 538
   Posted 7/31/2008 4:30 PM (GMT -7)   
Hi there Mountain Lady,
How is your sleep? Many of us have sleep problems and I strongly believe that alot of our energy problems stem from not getting all the proper stages of sleep. It just makes sense. I know that I feel alot better myself after getting on a medication that encourages me to get all the stages of sleep, especially deep delta sleep which is when the body works on healing itself. Maybe something to investigate? Lisa

MountainLady
New Member


Date Joined Jan 2008
Total Posts : 13
   Posted 7/31/2008 6:51 PM (GMT -7)   
Thanks geckogirl

I seem to sleep well, But there are so many times during the day that I just want to sleep I could nap all the time and still go to bed at night and sleep most of the night. My work is suffering from being tired all the time, I don't know how much longer they will keep me.

entee
Regular Member


Date Joined Jul 2008
Total Posts : 33
   Posted 7/31/2008 7:01 PM (GMT -7)   
Welcome, Mountain Lady! I am pretty new to the forum, too, and one of the best things about this forum is that you find out you're not alone. I think all of us, at one point, have felt like no one could understand how we were feeling. Now I know that it's not just me. My main symptom of fibro is fatigue just like you. Most days I feel like something just sucked all the energy out of my body. It feels like the flu, but it doesn't go away. I'm sleeping much better than I used to because of taking 100 mg. of Elavil at night, but I still wake up tired and feel sleepy all day. It's so hard to look around at the house and think of all the things I should be doing (and want to do) but not have the energy to get up and do anything. I feel SO lazy and then I feel guilty, too, because I'm not being productive. I'm learning to pace myself, but it's a hard process. It's very easy to get depressed about it, but that is another thing that the Elavil has helped me with. Have you asked your dr. about giving you something that might help you?


Happy Birthday to your daughter!

Love, Nancy
 
fibromyalgia, arthritis, mitral valve prolapse
 
Fix your thoughts on what is true, and honorable, and right, and pure, and lovely, and admirable.  Think about things that are excellent and worthy of praise.  Phil. 4:8
 


Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 7/31/2008 10:58 PM (GMT -7)   
Well, I can offer something to all of you that you can try and it will work for some and not for others. When I was dx with fibro I researched the heck out of it and found something that works for many of us. I take malic acid and extra magnesium. You can read about the process in some past posts.

Malic Acid and Energy

Works for me and I talked Sherrine into it as well. We both swear by the stuff. I get it at Puritan.com and I'm glad I saw your post because it reminded me I'm almost out of it and need to reorder.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 8/1/2008 6:29 AM (GMT -7)   
I'm a member of the fatigue club too. I can't sleep during the day, mine is the energy has just been sucked out of me feeling. Sadly, I can't take the malic acid. But I do know one thing, you have to move. A year ago when I joined this great forum I was very depressed, hadn't really moved for months and was in pain. These silly people kept telling me I had to move, had to move. I thought they can't have the same thing I have or they wouldn't want to be moving. However, I listened to them and started moving and doing more and by the end of Nov I got a break from the pain and fatigue. When I say break I mean I was able to go to the city to do Christmas shopping and some days could handle going to three stores before I had to quit.
 
I have found one thing, I do better if I'm doing something I enjoy instead of spending the energy on cleaning and doing chores. So you might want to find a fun activity to build up the energy so then you will have more energy to do the things you have to.
 
I did some research on fibro and they all say the samething start out slow and build yourself up. I didn't find one article that said lay on couch and eat bon-bons all day, darn.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40591
   Posted 8/1/2008 6:50 AM (GMT -7)   
I think I saw that somewhere Marlee, unless I dreamed it. They said kick back on the couch and eat bonbons all day long. LOL>.......

I also take the malic acid and am finding that I can do a lot more than I could before. It isn't perfect by all means, but it is a lot better than it was before. So you might want to give that a try. As Marlee said, not all of us can take it. And it doesn't work for everybody, but it does work for some. The magnesium also makes your muscles feel somewhat normal and that is a plus.

Good luck,
hugs, Karen...
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


MT Lady
Veteran Member


Date Joined Jul 2008
Total Posts : 955
   Posted 8/1/2008 8:25 AM (GMT -7)   

Hi everyone! I am a newbie, although not new to fibro...diagnosed 20 years ago and have been struggling with it ever since, but I am too darn stubborn to allow it to get the best of me, well, there are those days that I have to give in to it.

I too take Malic/Magnesium and it has helped, especially the muscle cramps in my legs. It really does help restore energy. Also, as others have said, what is key is sleep and at least 8 hours of quality sleep. That is the time that your body is trying to repair your muscles.

I'm not sure if I'm allowed to mention the name of a book or the author's name??? I have been reading this book (I have NO affiliation to author or company) and it gives such good advice on natural approaches to healing along with prescription medications...he lists both, so you have a choice. about a year ago, I went to see an MD that also practices chinese medicine and she told me I need to completely eliminate cane sugar, coffee, decaf coffee and GLUTEN!!! She also gave me a book on living gluten free. As far as I know, I do not have Celiac disease, at least I didn't think so, but since I have been eliminating these foods, my quality of life is so much better!! No, I am not cured, but I am not as tired during the day and the fibro fog has definitely gotten better. Since then, I have been reading up on yeast problems in women (candida) and how they may correlate with Fibromyalgia. Also hypothyroidism, which I have and is finally normalized.

There is a product that was recommended in the book I am referring to, D-Ribose, that you might want to do some research on. It does wonders for your energy.

I am able to take a walk on most days...yes, I still have bad days, but not as many and I am able to work. I do medical transcription from home, which is difficult, because of all the sitting I do, but I now make time for stretching and take frequent breaks.

Anyway, hopefully, some of this will help someone.

take care,


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 8/1/2008 8:53 AM (GMT -7)   
Hi Mountainlady and welcome-
  I am newly diagnosed and along with fibro came depression and severe fatigue. I started on Zoloft and I do not have the severe fatigue anymore. Mine is more pain. I don't have tons of energy by no means but am able to do things again. I used to only be able to putter in the house and now I can go to the stores (not Cub, too big), slowly building up a walking routine, stretching, some gardening, visiting with friends. Will start aquatic therapy soon. I know I feel better if I keep moving! I also drink coffee in the morning. :) GamJill
 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck
 
Zoloft, Tylenol 4000 mg., Zanaflex


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 8/1/2008 9:45 AM (GMT -7)   
Hi Mt Lady and welcome to our family. Thanks for all the input. You can tell us what book you are talking about unless your the one that wrote it and you want to have a book signing party on here. tongue   I looked at our library the other day for  "Fibromyalgia for Dummies" but they didn't have it.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


MT Lady
Veteran Member


Date Joined Jul 2008
Total Posts : 955
   Posted 8/1/2008 12:03 PM (GMT -7)   

Thanks for responding, Marlee. No, I am not the author, although I wish I was...from reading the jacket of the book, he lives in Hawaii!! In any case, the name of the book is "From Fatigue to Fantastic" and it is by Jacob Teitelbaum, MD.  For years, I have been subscribing to a fibro newsletter and his name is always mentioned in there, so some of you may be very familiar with his name. He too was diagnosed with FMS/CFS many years ago, when he was in medical school. He has spent is medical career looking for ways to fight the fatigue and pain of fibromyalgia and has come up with a SHIN protocol (of course right now, I can't think of what that means!!). I read the book, and began ordering the supplements he has recommended. By the way, you can order from a company he recommends but he states that any profits made from the company he donates...he gets no money from the supplements. I prefer to order from www.iherb.com because I find their supplements to be really good, all of the are gluten free, etc, and their prices simply can't be beat. He has recommendations for supplements, prescripted medications, exercise, sleep, probably more, can't think right now. I can honestly say that I do think his protocol is helping me. Book wasn't terribly expensive...I ordered it from www.amazon.com. He also has a website where he has loads of information.

Take care,

Miriam


entee
Regular Member


Date Joined Jul 2008
Total Posts : 33
   Posted 8/1/2008 1:53 PM (GMT -7)   
Welcome, MT lady! I'm also a newbie to the forum and also a newbie to fibro. My biggest problem, like you, is the fatigue. I just ordered malic acid from Puritan.com today and I'm hoping it will help me as it's helped some others on the forum. I'll keep everyone updated after I've tried it for a while. I also recently went to the library and got the book that you're talking about. It does have some helpful info in it. I'm thinking about trying some of the D-ribose that he recommends, too. I'm starting to feel like a real "pill-popper", though, even though most of the pills are supplements. :-)

Love, Nancy
 
fibromyalgia, arthritis, mitral valve prolapse
 
Fix your thoughts on what is true, and honorable, and right, and pure, and lovely, and admirable.  Think about things that are excellent and worthy of praise.  Phil. 4:8
 

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