Trouble with medication

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CathyA
Veteran Member


Date Joined Mar 2005
Total Posts : 1431
   Posted 8/1/2008 6:27 AM (GMT -7)   
Hi everyone,
I haven't been here in a long time.
My anxiety/panic/depression has gotten so bad that I've finally cried "Uncle!" and agreed to go on Zoloft.

The reason I've avoided antidepressants for so long is because I am soooooo sensitive to everything. I've had so many weird, scary sensations my entire life, I just didn't want any more.

I knew that there is an adjustment period with antidepressants. I finally took 1/4 of the dose yesterday. Last night I woke up with a weird taste in my mouth and weird smells. I was very nauseous. I felt like my tongue was big, and it felt like every cell in my body was shaking. Of course, this brought on a panic attack, which I've sort of had ever since last night.

I have an Rx for xanax, but I try to take it only once a day, and only .25mg.

I'm sort of freaking out here. How can I possibly get through several weeks of feeling this way??? Its just sort of strange that the drug for anxiety is actually causing me to have even more of it.

Fibromyalgia and a horrible 10 years through perimenopause has left me with no physical or emotional reserves.

Plus, part of me is afraid to even be on antidepressants, since I'm not sure they're being used properly these days.

My panic got to the point that I just had to do something about it. But gee.........now I feel worse!
I'm scared to death to to take my second dose today.
Does anyone have any good experiences to tell me about? Any hope for me?

My entire body is so sensitive to everything. That's probably a big factor in the fibromyalgia too. But it definitely makes taking meds like this almost impossible.
Do I have reason to hope that this will pass soon and that the medicine will actually help me to ever be happy again??
Help!

Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 8/1/2008 6:38 AM (GMT -7)   
Hi Cathy A it has been a long time. Is it really the zoloft or is it all panic from the fear of taking the zoloft. I hate taking new meds which has held me back on trying some of the new ones. If I have been on zoloft I can't remember it. But there are some on here that are on it so maybe they can be more helpful.
 
I gotta run for now and take granddaughter home so will catch you later.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


getting by
Forum Moderator


Date Joined Sep 2007
Total Posts : 40590
   Posted 8/1/2008 6:41 AM (GMT -7)   
Hi Cathy,

I would definately talk to the doctor about this. Is it the xanax that caused this? Maybe a half of a dose would work, but I am not a professional so my best recommendation would be to talk to your doctor. There are many different anti depressants and anti anxiety meds out there. Maybe you could try something else.

The best thing that I can advise is to try to relax, maybe try some meditation. And breathe. In through the nose and out through the mouth. We call it smellilng the roses and blowing out the candles. Using pursed lipped breathing on the out breath helps slow down your heart rate.

I really wish you luck, living with anxiety on top of everything else is difficult, I know. Stay with us and we will help you the best that we can.

Best wishes,
hugs, Karen
  Moderator-Depression and fibromyalgia
 
fibromyalgia, Chronic fatigue, depression,allergies


CathyA
Veteran Member


Date Joined Mar 2005
Total Posts : 1431
   Posted 8/1/2008 6:52 AM (GMT -7)   
Thanks Marlee and Karen,

I truly have a strange body and have had all sorts of weird sensations my whole life. I think my mother and brother do too, so its probably genetic. I'm sure part of the problem is just my fear of being on the med, but I also truly believe my body goes haywire at the littlest things. I think my nervous system is screwy. My mother drank during her pregnancy, so who knows.
DH has been through this and is trying to help me differentiate the difference between the symptom and the fear that it means certain death (which it doesn't..........but my brain doesn't believe that!). Its like I have this immediate response to strange sensations........it immediately connects up with my "panic button". I'm sure some people have these symptoms and don't even pay attention to it.........but not me.

I'm going to try to save my xanax for after I take the Zoloft. What's weird is I didn't feel anything until 14 hours after I took the first dose.
And I swore I wouldn't look up all the possible side-effects for it on the internet! I haven't really done that, but I'm trying to find some hope that this might be normal and it will pass soon.
DH reminded me that my brain is doing some rearranging with it, and I'm bound to get some strange feelings.
I'll try to deep breath and relax, if I can quit screaming and running first. ;)

kelly71
Veteran Member


Date Joined Jun 2008
Total Posts : 726
   Posted 8/1/2008 9:33 AM (GMT -7)   
CathyA,
 
Hello and welcome back!  I've only been around about 2 months, but I already think of this place as my safe haven. :-)
 
Anyway, I have been on Zoloft for almost 5 years now (actually, I've been on and off antidepressants since I was 15-I'm 36 now), and I've never really had a problem with it (the Zoloft).  My GP just upped my dosage to 150mg a day, and as much as I hate to admit it, I think it has helped.  I haven't had any real freak outs and I don't feel so desperate all the time.
 
I agree with Karen (geting by).  BTW-Karen, have you noticed that we tend to agree on a lot of things?  OK, totally random, I know. :-)   Anyway, there are a lot of different meds you can try besides Zoloft.  I also have anxiety-never had it until last year, and it sucks-so I take Klonopin twice a day.  My anxiety has been better-most of the time, anyway.  But, it really helps me to come here and talk to people who understand what I am going through.  I live alone, and my family just doesn't get, or seem to want to get, how I feel. eyes
 
Anyway, your anxiety might be getting in the way of things.  Believe me, I understand that horrible, panicky, desperate feeling.  I'm not trying to dx anything, I'm just sharing what I've gone through.  If I've learned anything, I've learned that everyone with fibro is different, and we react to meds differently.  Some of us can get by with Tylenol, and some of us need morphine.  Really, I think fibro is just a crap shoot, sometimes.
 
OK, I realize that this post makes absolutely no sense.  I'm sorry about that.  I'm in a thick fog, today. sad    However, if you take anything from this post (besides me being crazy tongue ), please know that we are all here for you. :-)

FINALLY dxd on 06/13/08
Vicodin, Neurontin, Ibuprofen for pain-which doesn't help, BTW
Zoloft & methadone (NOT for pain) for sanity-which doesn't help, BTW
Klonopin for anxiety (Guess what?  Doesn't help!)
 
"I'll take the Chivas instead"
-Kelly Clarkson


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 8/1/2008 10:14 AM (GMT -7)   
I'm back, last grandchild of the summer returned back home safely. Hmmm, I never thought about mothers drinking back in the old days having an affect on our nervous systems or taking meds that doctors would come unglued over now. That's a new twist. My mother is deceased so no way of knowing now.
 
Anxiety can make us feel some really weird things Cathy. Then when you have a phobia about taking meds it makes it all worse. I have two doctors wanting me to try cymbalta but since it is in capsules and your not suppose to break the capsules open to take just a little I can't bring myself to take it. Of course when I read how hard it is to get off of that makes me not want to take it too. I can't get off the amitriptyline I've been on for 10 yrs. I've been on and off of it since my late 20s before I had a med phobia.
 
Like you I had some bad reactions to meds and that is what started the med phobia.
 
I'm so glad your DH is there for you and understands it. My DH has a few phobias himself so it does make it easier. Of course the time I was suppose to take Tylenol 3 for pain and he said, "for heaven sakes just take the stuff" and I did and he had to rush me to the hospital a half hour later cause my stomach was hurting so bad I was about to pass out from the pain kinda made him a believer in why I hate to take meds.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


Sue2z
Regular Member


Date Joined Jul 2008
Total Posts : 368
   Posted 8/1/2008 10:48 PM (GMT -7)   

to Cathy, I fought having antidepressants for the three years I have had fibro,  they always made my pain worse which made my doc think I was a hypocondriac.  Finally I went to see a phyc to see if there was anything for me and I was pput on a mood stabiliser which works diff to normal antidepressants and my pain levels eased dramatically plus it helped me sleep.  Here I was telling the doc an antidepressant wouldnt work and for once he was right.    Does anyone else have probs with taking meds, my symptoms become tenfold with every antideppressant I tried , plus other meds for arthritis and colinitus have all cause immediate flares which is making my doc getting sick of me.  by the way the drug I tried was zyprexa.   I was shocking before it. Fear more than pain took over my life.It was the first pill I was able to take without a  prob.  I would love to tell me doc that others have probs with meds bringing on symptoms of fibro so let me know.  p.s xanax and alepam both good for anxiety but my body adjusted to them very quickly.


Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 8/2/2008 1:42 AM (GMT -7)   
A little background and info on the pharmacology of these meds might help you understand and appreciate their use. Although the meds prescribed for fibro have been classed as antidepressants the correct term for them is Selective Serotonin Reuptake Inhibitors or SSRI's. Because we burn through serotonin at a much faster rate than normals we need this type of med to help us hang on to all the serotonin we make.

Serononin is a nervous system chemical that our brains utilize for a variety of functions including mood, circadian rhythms (sleep cycles), pain perception and tolerance and others. Fibros will often self medicate for years to try to produce more serotonin by eating "comfort foods" i.e. carbs because starchy foods help increase serotonin levels. When my doc first diagnosed me with fibro she asked me if I just wanted to have a bowl of macaroni and cheese and take a long nap... ! Man, was she on target!

Some of the newer Fibro meds, Lyrica and Cymbalta are combination meds that work on serotonin and epinephrine as well as norepinephrine. Because we all have a different variety of symptoms doctors try a variety of meds to help us. Sometimes if you understand how the med works you can get through the early noticeable side effects until they subside. The quality of life that I have now since starting on SSRI's is a complete turnaround from the way I felt before. You can feel better also, by eating lots of starches or taking the SSRI meds prescribed for you. I have diabetes, probably from trying to build up my serotonin levels for all those years, and now my starches are severely limited. Prozac, Zoloft and some other SSRI's have all worked for me. I now take a generic that only costs me $4.00 a month. That much pain relief from such a little cost, whew! I'm very grateful for it.
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


Sue2z
Regular Member


Date Joined Jul 2008
Total Posts : 368
   Posted 8/2/2008 2:56 AM (GMT -7)   
To Jeannie, thanks for the reply.  With the starches im half way there.  I have written down the name cymbalta as I do with all the meds mentioned now.  I will annoy my doctor to death but i have found that searching for oneself is only way.I am in Australia so some of the meds arent available. but I will mention.    thanks.    sue2z 

Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 8/2/2008 6:10 AM (GMT -7)   
Besides the med phobia I'm already on 100 mg amitriptyline and 40 mg of celexa a day so adding the cymbalta seems like way too much anti-depressant to be taking. Yep, I pretty much live on carbs.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


hhh
Regular Member


Date Joined Jul 2008
Total Posts : 64
   Posted 8/2/2008 6:33 AM (GMT -7)   
Sue2z said...
To Jeannie, thanks for the reply.  With the starches im half way there.  I have written down the name cymbalta as I do with all the meds mentioned now.  I will annoy my doctor to death but i have found that searching for oneself is only way.I am in Australia so some of the meds arent available. but I will mention.    thanks.    sue2z 

Sue2z, hello.  I'm a new member as well and finding all kinds of helpful answers here as well as some understanding support--always a good thing.  :-) I do think you have to do the research yourself.  It's not like a common cold with a pretty standard course of treatment that everyone pretty much agrees on.  It's hard to find doctors who know much about it and a lot of us doctor shop for this reason.  There is an on-line course physicians can take for free and get credits for and it would be great for us if more of them were more educated on fibro.  For now though, annoy the doc, every day if you have to.  it's your health.  Also, some medications are available on the internet.  I don't know how to do that but I know provigil is incredibly expensive in the US but comes in the generic in Canada and some people get it on canadameds.com that might not be the right website but I have it written down somewhere if you are interested.  The past few weeks I have come down with a severe case of CRC.  anyone else have this?  CRC--Can't Remember Crap! cool  

Good luck and have a super day if possible yeah (My son is bored with me doing this and is chosing emoticons for me to post--this one is mine eyes eyes )

Holly


Meggie
Regular Member


Date Joined Jul 2008
Total Posts : 408
   Posted 8/2/2008 7:05 AM (GMT -7)   

Good Morning Everyone!

I was reading all of the posts on this thread this morning and I must say Jeannie, you have helped me understand why my doctor insists on me taking prozac and pamelor (generics, can remember the names this morning).  I knew it had something to do with serotonin levels but I didn't understand it.  I have been taking low doses because I can't handle the weight gain with it but maybe I should consider a higher dose.  I also didn't know why I crave carbs so much.  I have cut out most refinded sugar and flours, yet all I seem to want to eat are pancakes, I have a gluten free pancake mix (its really good).  Knowing that we need to eat carbs, what do you do?  Do you stick to healthy carbs, when I eat those I find I want the unhealthy ones more.  I'm confused (no suprise I'm having a very bad day with the fog).  Ok, I started out wanting to thank you Jeannie, so thank you for the information.  It has been very helpful but now I need to do some thinking (maybe later though, I'm to foggy).

Cathy, I understand the sensitivities; mine are not as bad as yours but I never know what is going to happen when I take a new drug. If you can handle it, try to get through the first few days, sometimes just the routine of taking it may help ease the anxiety.  I will be thinking of you!
 
Meggie

CathyA
Veteran Member


Date Joined Mar 2005
Total Posts : 1431
   Posted 8/2/2008 5:36 PM (GMT -7)   
Oh yes.......carbs are my middle name! (Actually its "Chocolate", but carbs will do). hahaha

Sue2z
Regular Member


Date Joined Jul 2008
Total Posts : 368
   Posted 8/2/2008 5:59 PM (GMT -7)   
Hi to Holly, and everyone.  As I am new member its good to meet others.  My daughter says she says something to me and then mentions it again 5 mins and ive forgotten.  When I read I read same paragraph over and over after only reading a few pages, its so annoying as reading is pretty much all I have, which is why Im glad Im now on this site.  My daughter arranged it for me as I am not what you would call computer literate.  i will have to get her to show me how to use the faces. 
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