Rheumy test results (second round) & glutathione/atp injections

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jev
Regular Member


Date Joined Jun 2008
Total Posts : 168
   Posted 8/4/2008 4:20 PM (GMT -7)   
So sorry....this is kinda long
 
:-)  Hi everyone! I promised y'all an update on my second bloodletting results (7 weeks after the first) and the progress, so far, of the glutathione/atp injections. As for the blood test results, my Chronic Epstein-Barr viral count was only slightly elevated after being through the roof on the first results. Gabba globulin was only slightly low after being very low the first time and something called Cyclic Amp, Plasma was still low at 21 and it should be around 30. (It's difficult to decipher what this is but 30 seems to be some sort of magical number for it according to the rheumy.....the internet info on this only further confuses me). It seems that all of the others "numbers" were within min-max range where on the first test several were out of range.
 
I've had a minor flare for the last few days but not real bad compared to how I felt before my first visit. The glutathione/atp injections seem to be working very well, the flare-up notwithstanding. Before the flare, I was feeling the best I've felt in a loooooong time.....much more energy, much less fatigue and pain......even a few virtually pain-free days in there.....but this flare brought back some minor burning sensations in the arms, hands and legs and some shoulder/neck/upper back pain. The only symptom that saw little or no relief was the intense burning pains on the bottoms of my feet. Ibuprofen has worked well on most of the pains so I haven't needed any of my scrip meds.
 
The week and a half of vacation was the best I felt over that whole time (it figures...no stress and plenty of R&R, right). We went to San Antonio, Texas Hyatt Hill Country Resort with a water park onsite and man-made "lazy" river perfect for tubing. We went to Sea World.....I even rode a massive, awesome roller coaster called The Steel Eel with my niece (something I couldn't have done before the glutathione/atp injections) and I felt very little or no fatigue after about 9 hours there. We went to Natural Bridge Caverns on the way home.....a 200 foot descension and ascension in an awesome cave with many, many steps. Maybe my flareup is a delayed reaction to the over-exertion from those two days.....I don't know.
 
So, what is the verdict so far? I firmly believe that the glutathione/atp injections are helping me and I am continuing them for another six weeks until my next bloodletting/testing visit. Remember, too, that I've also been drinking that Monavie acai berry stuff so that also may be contributing to the lessening of symptoms. I don't want to stop either one because, even with this flareup, I'm still feeling much better than I was before my first visit and I don't wish to tempt fate just yet. Anyway, thanks for bearing with me on this long post!!!!
 
Gentlest of hugs,
John
 


*****************
John (53)
*****************
Dx'd June 2008 with Fibromyalgia & CFS  possibly caused by chronic Epstein-Barr virus (many years of ongoing symptoms.....recently worsening)......also, previously dx'd sleep apnea, high blood pressure, hypothyroid, low testosterone, high cholesterol, heart arrythmia & headaches (all types)
 
*****************
Several meds too numerous to list or remember!


Statgeek
Veteran Member


Date Joined Jul 2008
Total Posts : 1495
   Posted 8/4/2008 4:32 PM (GMT -7)   

Hi John, I am glad you're feeling better.  It is nice to have some days that are virtually pain free.  It sounds like you had fun on your vacation and possibly overdid it on the cave.  But I wouldn't have been able to resist the cave either!  Hope the injections keep working.

Sue


Sherrine
Forum Moderator


Date Joined Apr 2005
Total Posts : 17094
   Posted 8/4/2008 4:33 PM (GMT -7)   
Hi, John!  It's good to hear from you.  I figured you were on a vacation or something.  It sounds like you had a wonderful time! 
 
I'm glad to see that you found something that is helping you.  It will be interesting to see how the injections help you with your next blood work.  That monavie stuff I'm not too sure of.  We have been spammed many times with this and they advertise in all the forums.  There isn't anything that helps all illnesses.  So, my guess is that the glutathione injections are what is giving you results.  I hope it continues!
 
Have a good evening and I hope the tropical storm doesn't give you any problems.
 
Sherrine
Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Marlee2
Veteran Member


Date Joined Aug 2007
Total Posts : 6067
   Posted 8/5/2008 12:07 PM (GMT -7)   
Thanks John for sharing. Glad you had a great vacation. I will bring the injections up to my doc and the Epstein Barr virus.
 
Hope the wind doesn't come knocking on your door.
 
luv and hugs
Marlee
Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


Jeannie143
Veteran Member


Date Joined Apr 2004
Total Posts : 6056
   Posted 8/5/2008 12:10 PM (GMT -7)   
Always good to hear better blood tests!
~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross


GamJill
Veteran Member


Date Joined Jun 2008
Total Posts : 1279
   Posted 8/6/2008 8:00 AM (GMT -7)   
Hi John-
What a fun vacation- you did alot! Love those pain free days, I have had only a couple since this hit me but they were cherished. :) And hopefully this flare will end soon.
Your injections seem to be helping by the blood work being better and the change in your symptoms - I'm "all" for feeling better!! GamJill
 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck
 
Zoloft, Tylenol 4000 mg., Zanaflex


Boppy
New Member


Date Joined Aug 2009
Total Posts : 2
   Posted 8/24/2009 8:36 PM (GMT -7)   
John,
What a weird coincidence. I have the same issues you have with CFS and just started the glutathione/ATP injections. I, also, am going to San Antonio to the exact same places your family went. I'm worried that my energy won't hold out, but I'm praying for the best.

Here's my question for anyone. After suffering for 30 years, apparently with Epstein Barr, can anyone tell me why it is that none of my previous doctors ever thought to test my glutathione levels? Just this year I have sought help from a neurologist, internist, endocrinologist, orthopedic surgeon, 2 chiropractors, 1 nutritionist, psychiatrist, and a health and wellness doctor. Not one of them ever mentioned a possibility of CFS. Why not??? I just don't get this. If 95% of the population has Epstein Barr virus, it makes no sense to me that doctors don't automatically check our glutathione levels? Does anyone know why that is? I thank God for the one doctor I just found, who finally diagnosed me properly. I feel so validated, after being called a hypochondriac by my psychiatrist. I reminded my psychiatrist (who is now fired) that if it hadn't been for me, my benign adrenal tumor would have never been diagnosed and I would probably be dead since my doctors misdiagnosed me for years and it nearly cost me my life several times. It was Google and my own determination that allowed me to get the help I needed, in order to save myself.

Thanks,
Boppy
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