Neurotin? Does it help?

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Regular Member

Date Joined Jul 2008
Total Posts : 53
   Posted 8/5/2008 5:11 PM (GMT -6)   
Hey everyone,
 I am going to Rheumy for first time to hopefully get officall dx. I have been told by primary care doc that I have fibro and it seems syptoms fit but we will see. My PC doc gave me lyrica but had reaction. I have read some take neurotin. Does it help fibro? Does it cause weight gain? What are other meds used to treat fibro? I especaily want to stay away from meds that cause weight gain because I have fought that with the meds I take for depression and mood disoders. Any and all advice would be welcome. Thank you!

Regular Member

Date Joined May 2008
Total Posts : 68
   Posted 8/5/2008 8:49 PM (GMT -6)   
my doc would not prescribe the lyrica for me because of the weight gain. he put me on Neurotin instead. he said take one pill a day for a few days, then up it to two, then after a few more days 3 pills, on until I was taking 6 pills a day.

on the 3rd day I took 2 pills, and I got totally snockered. I couldn't drive I couldn't walk up or down the stairs, I was so groggy. so I had to go about 2 weeks before I built up enough tolerance that I could up the dosage. took me a few months to get up to the 6 pills. I noticed almost right away, even when just taking 1 pill a day, that I felt better. not cured, but my symptoms weren't as strong. I was thrilled!

well, a few weeks after I started the 6 per day, I started to lose my vision. everything was very very blurry, and it wouldn't go away. I started to have jerky hand movements, and would get really dizzy, fell a few times. it had become toxic to me, I had to slowly wean myself off of it, stepping down backwards, the same way I had built it up. it took about a month for me to get rid of the toxic effects after I had stopped the med.

I need to go back in to the doc and see if maybe I can try a lower dosage, or if I have just become sensitive to it and have to give it up. I have been on various meds over the last 6 yrs, but now I only take 2 rx. Sinemet for RLS, and Ultram for pain. I use over the counter things, like Salan Pas pain pads (can't live without them!) and recently started taking malic acid/magnesium. there is a big thread about it here on the board, you can read about it there. I've been on the M&M (malic acid/magnesium) for about 6 weeks now, and I really think it is helping me. but like usual with fibromyalgia, not everything works for everyone.

Regular Member

Date Joined Jul 2007
Total Posts : 269
   Posted 8/6/2008 7:30 AM (GMT -6)   
I also tried Gabapentin (generic for Neurontin) it worked wonderfully for a short while and then stopped working. I was very loopy on just a small careful if you try to drive with it. It was cheaper than Lyrica but still expensive for me because I have no insurance. I understand that Lyrica and Neurontin are related drugs. You can do a search on line.
I found my relief accidently by taking one of hubby's Xanax. I took one at night because it seemed to help him sleep. The next morning I had no pain so I asked my doctor for my own perscription. 1/2 of 0.25mg works for me, sometimes I can get away with 1/4. I'm trying to use as little as I can so it won't lose it's effect on me. I get by with that and over the counter tylenol and sometimes Excedrin Migraine with head aches. I don't have to take these very often now.
I have my order in for the malic acid and magnesium tablets. Some here have had great success with these supliments.
I've not experienced any weight gain with what I take but I watch my weight closely and eat right.
Blessings POCO
"For God, who commanded the light to shine out of darkness, hath shined in our hearts, to give the light of the knowledge of the glory of God in the face of Jesus Christ." 2 Corinthians 4:6
A woman is like a tea bag- you never know how strong she is until she gets in hot water.
Eleanor Roosevelt

Veteran Member

Date Joined Jun 2008
Total Posts : 726
   Posted 8/6/2008 3:34 PM (GMT -6)   
I am on a very small dose of neurontin (300mg at night), and honestly, I don't know if it's helping or not.  But, I continue to take it, in hopes that something-anything will help with the pain. sad   I see my GP next week, and I'm gonna ask if he could raise my dosage, because I really don't feel any pain relief.  Also, I know that 300mg is a very low dose.  I didn't have any problems when I started taking it, but I take a lot of other meds, and I have a very high tolerance due to my checkered past.  Sometimes I say that my past is so checkered that it's plaid. tongue
Anyway, the only advice that I can give you is to try it out.  What works for some people doesn't work for everyone.  Good luck! :-)

FINALLY dxd on 06/13/08
Vicodin, Neurontin, Ibuprofen for pain-which doesn't help, BTW
Zoloft & methadone (NOT for pain) for sanity-which doesn't help, BTW
Klonopin for anxiety (Guess what?  Doesn't help!)
"I'll take the Chivas instead"
-Kelly Clarkson

Regular Member

Date Joined Jun 2006
Total Posts : 110
   Posted 8/6/2008 4:22 PM (GMT -6)   
I am on gabapentim (neurorontin) i started at 1x300 mg at night and after a year went to 3x300mg a day
It is the best i have found but not a cure. in many cases it will bring people with fibro down from daily pain to a mild ache.
watch about going to a higher dose to quickly

I would start at 100mg 3 time a day and work up till you get results or it starts causing side affects .

Many people that have tried gabapentin have side affects at higher doses it is a drug that works for fibro but it is a balancing act.

I believe that some doctors don't understand gabapentin and start people at way to high of dose.
this causes many to quit taking gabapentin because of the side effects.
Part of it is there is research papers that show gabapentin to be affective at 1200 to 1600 mg.
But these papers don't say how long it took for these people to get to that level.
so the doctor start at that dose.
I have seen doctors start people with fibro at 1200 to 1600 mg a day and these people quit because of the side affects.
I believe many of these people would have been helped if they had started at low dose and worked up to a working dose.

Some times i have to cut my dose because it gives me headaches. i just skip 1 dose and take the next when needed.

Veteran Member

Date Joined Apr 2008
Total Posts : 605
   Posted 8/6/2008 4:39 PM (GMT -6)   
Well sometimes I feel like I am the town cryer for Lyrica but here I go again.  I could not use neurontin and did try for a month but was so darn ripped and sleepy I couldnt function.  I got on the Lyrica after reading a bunch of posts online about the pros and cons of it and decided to give it a chance.  I was very concerned about weight gain as I have worked so hard to drop over 75 pounds this past year.  Heck I cant gain any as I gave away all my fat clothes or should I say fatter clothes as I am still a chubby size 16.  But I did start the Lyrica and what I found as far as a reason why it might make you gain weight is that at night I was getting the munchies bad!!  But I kept low cal and low fat snacks on hand and after a time these cravings went away as long as I made sure to have a good dinner.
I was woozy at first on the lyricaand with each dose increase but it faded after about 5 days and then I would level out to normal.  I have gotten a great deal of pain relief on the things that could not be helped by narcotic drugs,mainly the horrible neuropathic leg pain that also had the feel of restless leg synndrome with it. I had been at the point of rocking and crying from late afternoon tillbedtime and then up most of the night hurting and that was gone the first pill and had stayed gone.  I did get all over pain relief at first but that seemed to fade but the main pain I was concerned about never came back.  I did have to titrate my dose and am now on the high end at 600mg a day but alot of ppl never go that high.  My doctor told me that when I got to my optimum dose I would hld steady in pain relief and I have for 5 months now with no weight gain.
I did have some edema at first but learned the signs of it and it would happen if I was on my feet too long on hot days so I now whatch for it and put my feet up and it goes away.  Good luck in whatever you try.  What works great for some doesnt work for others.
Soft Hugs,
Mom of one gramma to 4
Fibromyalgia,IBS,Stroke x2,endometriosis,Diabetes type 2,neuropathic pain,nerve damage due to tailbone removel,nerve damage due to fractured back,deppresion,high blood pressure,severe nausea,atrophy,chronic pain

New Member

Date Joined Jul 2008
Total Posts : 9
   Posted 8/7/2008 4:19 AM (GMT -6)   
I'm on Gaba. My family Doc prescribed me small doses at first. One 100 mg at night til I got used to that (about a week). Then increased to one 100 mg in the morning, (another week) then one 100 at noontime. It takes time to get accustomed to it, but it has definitely helped me. It has not cured me, as we all no there is no cure. I am now at 300 in the am, 300 at noon, and 300 at night. It's a slow process, but for me it was worth sticking it out. Gaba works in conjunction with the other pain meds I'm on... I've been trying to find a combination for the past 4 years, and I think this time we've finally hit on something. I work 40 hours a week with mild pain, compared to a year ago when I was ready to file for disability. Hope this helps...

Karen S...
"I can do all things through Him who strengthens me" - Philippians 4:13

Regular Member

Date Joined Jun 2008
Total Posts : 261
   Posted 8/7/2008 10:53 AM (GMT -6)   
Well the other day I spoke to my rheumatologist because the first thing he had me try, Skelaxin, didn't do anything for my pain and just made me feel sleepy, dizzy, weak, and uncoordinated.

Then he said he wanted to put me on Lyrica and I said that the drug is so new, how can I be sure it's safe. The doctor said that Lyrica is pretty much just Neurontin and has been renamed and repackaged for Fibromyalgia and since Neurontin has been around for awhile, they know it's safe. Now I was on Neurontin a long time ago, a psychiatrist put me on it as a mood stabilizer and it didn't do anything at all for me, it was like popping tic tacs. Then my rhematologist said that maybe I should try it again now that I have the fibro to see if it helps with this problem. Now I don't remember having any side effects the last time I was on it, but that doesn't mean I wouldn't this time. The whole possible weight gain thing really concerns me because I've had an endocrinologist tell me that I needed to loose weight because I'm at risk for diabetes, not to mention I can't afford to buy any new clothing if I do gain weight. I told my doctor I'd do research and think about it, but I doubt I'm going to give this medicine a try. It just seems to risky to me.
Allergies, Asthma, Anxiety, Depression, IBS, PCOS, Fibromyalgia

Regular Member

Date Joined Feb 2008
Total Posts : 233
   Posted 8/7/2008 11:56 AM (GMT -6)   

I was on neurontin several yrs. ago and it made me gain weight like crazy, 15lbs in 2 weeks, and up and up.  I have only recently been able to lose some of the weight.

However, except for the weight gain, I liked it.  It helped a lot with the pain and made me feel very mellow, nobody could rattle my cage.  The trouble was that it would only work for so long and then my neuro would up the dose, this happened every 3-4 months.  Then when I stopped taking it withdrawal was a total nightmare.  I was sick for days and it took me a couple of weeks to recover.

Of course, just like with any other med, everybody will react differently.

Gentle hugs,
Fibro, Osteoporosis, OA, RA, DDD, IBS, Vertigo, Tinnitus, Carpel Tunnel, Epilepsy, TMJ,  Hypothyroidism, Familial Tremors, Spasms, Neuropathy, Trigeminal neuralgia, heel spurs

Veteran Member

Date Joined Apr 2008
Total Posts : 2537
   Posted 8/10/2008 11:25 AM (GMT -6)   

If I take Neurontin at bedtime, I seem to be less stiff in the morning, and I love it!  It does make me 'woozy' if I take it during the daytime, though. 

Not sure about the weight gain, as I have gained some, but then again I'm easing into menopause, so it could be that.

Regular Member

Date Joined Aug 2008
Total Posts : 97
   Posted 9/4/2008 8:13 AM (GMT -6)   
I take 800 mg. of gabapentin -nuerotin 3 times a day. By no means is it a cure, but resting pain is non-existing, mild pain through out the day. Weight again is finally sabilizing, now I have to live with size 18, I gained about 40lbs. I still have to do a little at a time and rest but atleast I get some relief while resting. Other pain pills taken with nuerotin helps relieve some pain. I was on 400mg. 3xaday,however I took 2-pills one day due to fribro fog and felt so much better we upped the dosage to the 800mg.3xaday. Some times I tier easily but from the fibro I do any ways,so not a big deal.  I automaticly could cut back on the pain pills and felt like I had a clearer head. I haven't had any side effects. I did run short on pills due to forgetting about the holiday this last monday and the pain was out rageous. I really can't imagine ever living with out it. Hope this helps.
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